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Conducting Biosocial Surveys: Collecting, Storing, Accessing, and Protecting Biospecimens and Biodata (2010)
Committee on National Statistics (CNSTAT)
Committee on Population (CPOP)

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Conducting Biosocial Surveys: Collecting, Storing, Accessing, and Protecting Biospecimens and Biodata

Wade, N. (2010). A new way to look for diseases’ genetic roots. The New York Times. Available: http://www.nytimes.com/2010/01/26/science/26gene.html [accessed March 29, 2010].

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Westin, A.F. (2008, November). Americans’ Changing Concerns About Health Privacy. Presentation at the Workshop on Collecting, Storing, Protecting, and Accessing Biological Data Collected in Social Surveys, November 17–18, National Research Council, Washington, DC.

Widom, C.S., and Brzustowicz, L.M. (2006). MAOA and the “cycle of violence”: Childhood abuse and neglect, MAOA genotype, and risk for violent and antisocial behavior. Biological Psychiatry, 60(7), 684–689.

Wolf, L.E., Croughan, M., and Lo, B. (2002). The challenges of IRB review and human subjects protections in practice-based research. Medical Care, 40(6), 521–529.

World Health Organization. (1998). Proposed International Guidelines on Ethical Issues in Medical Genetics and Genetic Services. Report of a WHO meeting on ethical issues in medical genetics. Geneva: Author. Available: http://www.who.int/genomics/publications/en/ethicalguidelines1998.pdf [accessed June 16, 2009].

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