9:45–10:45

Discussion

10:45–11:00

Break

 

SESSION 2: Risks and Rewards of Data Linking

 

Session Chair: Hank Greely, Stanford University

11:00–11:20

Risks and Rewards

 

Katherine Mullan Harris, University of North Carolina

11:20–11:40

Legal and Ethical Issues in Using Biological Data and How They Differ from Social Science Data

 

Barbara Koenig, Mayo Clinic, University of Minnesota

11:40–12:30 pm

Discussion

12:30–1:30

Lunch

 

SESSION 3: Storing and Maintaining Biological Data

 

Session Chair: Maxine Weinstein, Georgetown University

1:30–1:45

Case Study 1—PENN Biomarker Core of the Alzheimer’s Disease Neuroimaging Initiative

 

Leslie M. Shaw, University of Pennsylvania

1:45–2:00

Case Study 2—SWAN: Current Practices of Receipt and Storage of Biospecimens

 

Kathi Shea, SeraCare Life Sciences, Inc.

2:00–2:15

Case Study 3—Laws and Regulations on Biobanks: Present Status and Future Directions

 

Bartha Knoppers, University of Montreal

2:15–3:15

Discussion

3:15–3:30

Break

 

SESSION 4: Informed Consent

 

Session Chair: Barbara Stanley, Columbia University

3:30–4:00

Informed Consent: Best Practices

 

Holly Taylor, Johns Hopkins University



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