Conducting Biosocial Surveys: Collecting, Storing, Accessing, and Protecting Biospecimens and Biodata

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Table of Contents
Front Matter R1-R12
Summary 1-6
1 Introduction 7-18
2 Collecting, Storing, Using, and Distributing Biospecimens 19-40
3 Protecting Privacy and Conἀdentiality: Sharing Digital Representations of Biological and Social Data 41-54
4 Informed Consent 55-72
5 Findings, Conclusions, and Recommendations 73-86
References 87-92
Appendix A Agenda for the Workshop on Collecting, Storing, Protecting, and Accessing Biological Data Collected in Social Surveys 93-96
Appendix B Participants in the Workshop on Collecting, Storing, Protecting, and Accessing Biological Data Collected in Social Surveys 97-98
Appendix C Biographical Sketches of Panel Members and Staff 99-104
Appendix D Acronyms 105-108
COMMITTEE ON NATIONAL STATISTICS 109-110
COMMITTEE ON POPuLATION 111-112

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11:35–11:55	Repository Issues and Practices
	MaryFran Sowers, University of Michigan
11:55–12:45 pm	Discussion
12:45–1:45	Lunch
1:45–3:00	SESSION 7: Collecting Our Thoughts
	Session Chair: Bob Hauser, University of Wisconsin
	Format: Brief comments from the chair followed by a period of general discussion. What have we learned? Remaining questions Conclusions Future directions
3:00 pm	Public Workshop Adjourn
3:15–5:30	CLOSED SESSION (COMMITTEE MEMBERS ONLY)—Room 213 Report preparation
6:30–8:30	Working Dinner

November 19, 2008

9:00–5:30 pm

CLOSED SESSION (COMMITTEE MEMBERS ONLY)—Room 208

Report preparation (cont.)

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