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APPENDIX Workshop Agenda A Workshop to Obtain Input on the Gulf Long-Term Follow-Up Study for Oil Spill Clean-Up Workers and Volunteers Hosted by the Committee to Review the Federal Response to the Health Effects Associated with the Gulf of Mexico Oil Spill September 22, 2010 Snowy Egret Grand Hyatt Tampa Bay Hotel 2900 Bayport Drive Tampa, FL 33607 8:00 a.m. Opening Remarks Harvey V. Fineberg, president, Institute of Medicine 8:10 a.m. Remarks Francis Collins, director, National Institutes of Health 8:30 a.m. Welcome, Introductions, and Overview of Workshop Lynn R. Goldman, committee chair and dean, George Washington University School of Public Health and Health Services 8:40 a.m. Overview of NIH Gulf Long-Term Follow-Up of Cleanup Workers Study Dale Sandler, chief, Epidemiology Branch, National Institute of Environmental Health Sciences 9:40 a.m. Session 1: Study Goals and Design Session chair: Bernard Goldstein, committee member and professor of environmental and occupational health, Graduate School of Public Health, University of Pittsburgh Reaction panelists: Robert Wallace, director of the Center for Aging and professor of epidemiology, College of Public Health, University of Iowa Stephen Cole, professor of epidemiology, Gillings School of Global Public Health, University of North Carolina, Chapel Hill David Kalman, professor and chair, Department of Environmental and Occupational Health Sciences, School of Public Health, University of Washington 17

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18 REVIEW OF THE PROPOSAL FOR THE GULF LONG-TERM FOLLOW-UP STUDY GuLF Study investigator representative: Larry Engel, Epidemiology Service, Memorial Sloan-Kettering Cancer Center 11:45 a.m. Lunch 12:45 p.m. Session 2: Data Collection and Cohort Surveillance and Maintenance Session chair: Francesca Dominici, committee member and professor of biostatistics, Harvard School of Public Health Reaction panelists: DeJuran Richardson, associate dean of the faculty and professor of mathematics and computer science, Lake Forest College David Tollerud, professor and chair of the Department of Environmental and Occupational Health Sciences, School of Public Health and Information Sciences, University of Louisville Leslie E. Wolf, associate professor of law, Georgia State University College of Law GuLF Study investigator representative: Richard Kwok, Epidemiology Branch, National Institute of Environmental Health Sciences 2:00 p.m. Session 3: Relating to the Community: Enrollment, Trust, Transparency, and Communication of Study Results Session chair: Susan L. Santos, committee member and assistant professor of health education and behavioral science, University of Medicine and Dentistry of New Jersey Reaction panelists: Roxane Cohen Silver, professor, Department of Psychology and Social Behavior Department of Medicine, University of California, Irvine Maureen Y. Lichtveld, professor and chair, Freeport McMoRan Chair of Environmental Policy, associate director of Population Sciences, Louisiana Cancer Research Consortium, Tulane University Howard J. Osofsky, Kathleen and John Bricker Chair and professor of psychiatry, School of Medicine, Louisiana State University GuLF Study investigator representatives: Aubrey Miller, Office of the Director, National Institute of Environmental Health Sciences Dale Sandler, chief, Epidemiology Branch, National Institute of Environmental Health Sciences 3:15 p.m. Break

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REVIEW OF THE PROPOSAL FOR THE GULF LONG-TERM FOLLOW-UP STUDY 19 3:30 p.m. Session 4: Interagency Collaboration on Studies of Health Effects from the Gulf Oil Spill Session chair: Lynn R. Goldman, committee chair and dean, George Washington University School of Public Health and Health Services Panelists: Tracy Collier, adviser, Oceans and Human Health Program, and Shelby Walker, Office of Policy, Planning, and Evaluation, National Oceanic and Atmospheric Administration Michele Conlon, assistant laboratory director, National Exposure Research Laboratory, Office of Research and Development, Environmental Protection Agency RAdm. Scott Deitchman, associate director for terrorism preparedness and emergency response, National Center for Environmental Health and the Agency for Toxic Substances and Disease Registry, Centers for Disease Control and Prevention James M. Galloway, U.S. Department of Health and Human Services representative to National Incident Command for Deepwater Horizon Oil Spill Princess D. Jackson, supervisory public health analyst, Health Resources and Services Administration CDR Erica Schwartz, preventive medicine officer and clinical epidemiologist, U.S. Coast Guard, and Jennifer Rusiecki, officer, U.S. Coast Guard Reserve and assistant professor of epidemiology, Uniformed Services University Capt. James S. Spahr, associate director, Emergency Preparedness and Response, Office of the Director, National Institute of Occupational Safety and Health NIH Representative: Teri Manolio, director, Office of Population Genomics, National Institutes of Health 4:30 p.m. Summaries of Panel Discussions Moderator: Harvey V. Fineberg, President, Institute of Medicine The chairs from each panel will have 10 minutes to present issues and options identified within the panel discussion. 5:15 p.m. Public Comment Moderator: Lynn R. Goldman, committee chair and dean of the George Washington University School of Public Health and Health Services Comments limited to 5 minutes per person.

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20 REVIEW OF THE PROPOSAL FOR THE GULF LONG-TERM FOLLOW-UP STUDY 6:15 p.m. Closing Remarks Lynn R. Goldman, committee chair and dean, George Washington University School of Public Health and Health Services 6:30 p.m. Adjourn