Appendix B
Workshop Agenda and Questions to Panelists

January 11, 2010


Keck Center of The National Academies

500 Fifth Street, N.W., Room 100

Washington, DC

8:30 am

PUBLIC FORUM

 

Ethan Basch, American Society of Clinical Oncology

Christopher Bever, Chair, Quality Measures and Reporting, American Academy of Neurology

Terrie Cowley, President and Cofounder, The Temporomandibular Joint and Muscle Disorders Association

Steven Findlay, Senior Health Policy Analyst, Consumers Union

Merrill Goozner, Editor and Publisher, Health Tech Review/GoozNews.com

David Paul Harries, International Spine Intervention Society

Belinda Ireland, Senior Epidemiologist, BJC HealthCare

Norman Kahn, Executive Vice President and Chief Executive Officer, Council of

Medical Specialty Societies Lisa Mojer-Torres, Chair, Citizens’ Advisory Council for the Division of Addiction Services, State of New Jersey (via telephone)



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Appendix B Workshop Agenda and Questions to Panelists January 11, 2010 Keck Center of The National Academies 500 Fifth Street, N.W., Room 100 Washington, DC PUBLIC FORUM 8:30 am Ethan Basch, American Society of Clinical Oncology Christopher Bever, Chair, Quality Measures and Reporting, American Academy of Neurology Terrie Cowley, President and Cofounder, The Temporomandibular Joint and Muscle Disorders Association Steven Findlay, Senior Health Policy Analyst, Consumers Union Merrill Goozner, Editor and Publisher, Health Tech Review/GoozNews.com David Paul Harries, International Spine Intervention Society Belinda Ireland, Senior Epidemiologist, BJC HealthCare Norman Kahn, Executive Vice President and Chief Executive Officer, Council of Medical Specialty Societies Lisa Mojer-Torres, Chair, Citizens’ Advisory Council for the Division of Addiction Services, State of New Jersey (via telephone) 209

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210 CLINICAL PRACTICE GUIDELINES WE CAN TRUST Katherine Nordal, Executive Director for Professional Practice, American Psychological Association Jennifer Padberg, Vice President of Clinical Affairs, Infectious Diseases Society of America William Rich, Medical Director of Health Policy, American Academy of Ophthalmology Richard Rosenfeld, Guideline Development Task Force, American Academy of Otolaryngology–Head and Neck Surgery Kathleen Sazama, President, Society for the Advancement of Blood Management Aryeh Shander, President-Elect, Society for the Advancement of Blood Management Christopher Wolfkiel, Director of Practice Guidelines, American College of Occupational and Environmental Medicine Diana Zuckerman, President, National Research Center for Women & Families Moderated by Dr. Sheldon Greenfield COMMITTEE Q&A PANELS BEGIN 10:05 Panel One: Clinical Practice Guideline (CPG) Developers I 10:05 Alice Jacobs, M.D., American College of Cardiology and American Heart Association (ACC/AHA) Joan McClure, M.D., National Comprehensive Cancer Network Katrin Uhlig, M.D., M.S., National Kidney Foundation Jim Schibanoff, M.D., Milliman Care Guidelines Michael Bettmann, M.D., American College of Radiology Moderated by Dr. Sheldon Greenfield Panel Two: CPG Developers II 11:30 Ted Ganiats, M.D., Family Physician Sandra Zelman Lewis, Ph.D., American College of Chest Physicians Laura Fochtmann, M.D., American Psychiatric Association Vincenza Snow, M.D., American College of Physicians

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211 APPENDIX B William G. Adams, M.D., FAAP, American Academy of Pediatrics Moderated by Dr. Sheldon Greenfield 12:50–1:20 pm BREAK Panel Three: Government CPG Developers and Other 1:20 Government-Sponsored CPG Initiatives Vivian Coates, M.B.A., National Guidelines Clearinghouse/ECRI Institute David Atkins, M.D., M.P.H., Veterans Administration Nita L. Seibel, M.D., National Cancer Institute Denise Simons-Morton, M.D., Ph.D., National Heart, Lung, and Blood Institute Moderated by Dr. Earl Steinberg Panel Four: Organizational CPG Consumers 2:45 Marguerite Koster, M.A., M.F.T., Kaiser Permanente Southern California Kent Bottles, M.D., Institute for Clinical Systems Improvement Louis B. Jacques, M.D., Centers for Medicare & Medicaid Services Richard Kahn, Ph.D., Former Chief Scientific and Medical Officer of the American Diabetes Association Elizabeth Mort, M.D., M.P.H., Vice President, Quality and Safety, Massachusetts General Hospital and Massachusetts General Physicians Organization Moderated by Dr. Earl Steinberg Panel Five: Clinician and Patient CPG Consumers 4:10 Cynthia Boyd, M.D., M.P.H., Physician Expert in Multi- morbidity, Johns Hopkins Department of Medicine Arleen Brown, M.D., Ph.D., Physician Expert in Health Disparities, UCLA Internal Medicine Karen Kelly-Thomas, Ph.D., R.N., CAE, FAAN, National Association of Pediatric Nurse Practitioners Joyce Dubow, AARP Zobeida Bonilla, Ph.D., Our Bodies Ourselves Moderated by Dr. Earl Steinberg 5:30 Adjourn

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212 CLINICAL PRACTICE GUIDELINES WE CAN TRUST Questions for the Panelists • What do you believe are the biggest challenges clinical prac- tice guidelines developers/users face today? For example: o What do you do when the scientific evidence is absent or poor? o How do you reconcile disagreements in evidence inter- pretation among guidelines? o How do guidelines accommodate subgroups (e.g., older populations or persons with multimorbidities) whose treatment outcomes may differ from the average patient? o Are there other challenges you believe are important? • What topics and/or processes do you think the committee should consider in deriving quality standards for clinical practice guidelines? For example: o What should the composition of CPG development pan- els, in particular the balance of methodologists, topical experts, and consumers, look like? o What methods might be developed for determining which recommendations among those in a guideline should be applied to quality measures or electronic medical record decision prompts? o Is there an available assessment tool that adequate- ly rates both the level of the scientific evidence and strength of clinical recommendations that should be used as standard practice in guideline development? o What administrative (e.g., accreditation) or legal ap- proaches might improve the quality of clinical practice guidelines? o What explicit approaches might harmonize guideline developers and increase guidelines convergence? o What types of strategies might promote greater use of guidelines? o Are there other characteristics of guideline standards you think are important for the committee to consider?