make better use of existing data, offer a basis for integrating or linking different data sources, develop new data sources and data collection methods for difficult-to-measure indicators and difficult-to-reach populations, and put a system in place for continuously improving the measures and the measurement system.
This study responds to a mandate in the Children’s Health Insurance Program Reauthorization Act (CHIPRA) of 2009 for a study by the National Academies “on the extent and quality of efforts to measure child health status and the quality of health care for children across the age span and in relation to preventive care, treatments for acute conditions, and treatments aimed at ameliorating or correcting physical, mental, and developmental conditions in children.” To this end, the Institute of Medicine (IOM) and the National Research Council (NRC) of the National Academies were engaged under contract with the U.S. Department of Health and Human Services (HHS) to conduct an 18-month study “to identify key advances in the development of pediatric health and health care quality measures, examine the capacity of existing federal data sets to support these measures, and consider related research activities focused on the development of new measures to address current gaps.” The IOM and NRC subsequently formed the Committee on Pediatric Health and Health Care Quality Measures to conduct this study.
In interpreting its charge, the committee sought to (1) consider all of the major national population-based child health/health care reporting systems sponsored by the federal government; (2) examine strengths and deficiencies of current federal data collection efforts and reporting systems; and (3) make recommendations for improving and strengthening the timeliness, quality, public transparency, and accessibility of information on child health and health care quality.
The committee reviewed multiple federal sources of data on the health and health care quality of children and adolescents, 24 core measures of health care quality recommended by the Secretary of HHS in 2010 for voluntary reporting by Medicaid and CHIP programs, and a number of private-sector efforts aimed at developing valid and reliable measures of health and health care quality for children and adolescents, as well as the salient research literature. As a result of this review, the committee formulated conclusions in three key areas.