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F
Population Health Data
273
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274 CHILD AND ADOLESCENT HEALTH
Data
Sponsoring Collection
Data Source Year Origination Agency Organization Frequency
American 1999 1983 Indian Health Indian Health Annual
Indian and Service Service
Alaska Native
Linked Birth/
Infant Death
Record
Database
Childhood 2006 1995 CDC CDC Annual
Blood Lead
Surveillance
Congenital 1983 CDC CDC Annual
Syphilis
(CS) Cases
Investigation
and Report
Consumer 2007 1995 AHRQ AHRQ
Assessment
of Healthcare
Providers and
Systems
Current 2010 Bureau of U.S. Census Monthly
Population Labor and Bureau
Survey Statistics
Decennial 2000 1790 U.S. Census U.S. Census Every 10 years
Census Bureau Bureau
Early 2001 2001 NCES NCES 5 waves;
Childhood 9 months to 6
Longitudinal years
Survey—Birth
Cohort
Early 2002 1998–1999 NCES; NCES Fall and Spring
Childhood ACYF; ERS; K and 1st
Longitudinal OSEP; Policy grade; Spring
Survey— and Programs 3rd and 5th
Kindergarten Studies grade
Cohort Services, U.S.
Department
of Education;
NCSER
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275
APPENDIX F
Design Sample Size Age Group Respondent Web Link
Birth and death http://aspe.hhs.
records gov/datacncl/
DataDir/ihs.
htm#aial
Cross-sectional N = 23,485,435 <72 months Laboratory http://www.cdc.
children reports gov/nceh/lead/
data/index.htm
Cross-sectional Reports http://aspe.hhs.
gov/datacncl/
DataDir/cdc1.
htm#cscir
Cross-sectional All ages Adult https://www.
cahps.ahrq.gov/
default.asp
Cross-sectional N = 50,000 >16 years Household http://www.
households respondent census.gov/cps/
Cross-sectional N = 281,421,906 All ages Household http://factfinder.
respondent census.gov/jsp/
saff/SAFFInfo.
jsp?_pageId=
sp4_decennial
Longitudinal N = 14,000 9 months to Adult, child, child http://nces.ed.gov/
children 6 years care provider, ECLS/Birth.asp
observation, and
birth certificate
Longitudinal N = 22,000 5–10 years Adult, child, http://nces.
children school records ed.gov/ecls/
kindergarten2010.
asp
continued
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276 CHILD AND ADOLESCENT HEALTH
Data
Sponsoring Collection
Data Source Year Origination Agency Organization Frequency
Global Youth 2000 1999 CDC Canadian Annual
Tobacco Survey Public Health
Association;
National
Cancer
Institute;
United Nations
Children
Emergency
Fund; WHO
Great Smoky 2003 1992 NIMH Duke 3 waves; 9, 11,
Mountains University and 13 years
Study and the North
Carolina State
Division of
Developmental
Disabilities,
Mental Health,
and Substance
Abuse Services
Head Start 2006 1997 ACF/OPRE; Mathematica Four cohorts
Family Head Start Policy
and Child Bureau Research, Inc.
Experiences
Survey
Head Start 2008 ACF/DHHS ACF/DHHS Annual
Program
Information
Report
Hispanic 1984 1982 NCHS/CDC NCHS/CDC One time
Health and
Nutrition
Examination
Survey,
1982–1984
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277
APPENDIX F
Design Sample Size Age Group Respondent Web Link
Cross-sectional N = 35,828 13–15 years Adolescents http://www.cdc.
gov/tobacco/
global/gyts/index.
htm
Longitudinal N = 1,073 9–16 years Child and adult http://devepi.duhs.
children duke.edu/gsms.
html
Longitudinal N = 3,500 3–4 years Adult http://www.acf.
children hhs.gov/programs/
opre/hs/faces/
faces_overview.
html
Cross-sectional All ages Adult http://eclkc.ohs.
acf.hhs.gov/hslc/
Program%20
Design%20
and%20
Management/
Head%20
Start%20
Requirements/
Progam%20
Information%20
Report
Cross-sectional N = 16,000 6 months–74 Adult http://www.cdc.
years gov/nchs/nhanes/
hhanes.htm
continued
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278 CHILD AND ADOLESCENT HEALTH
Data
Sponsoring Collection
Data Source Year Origination Agency Organization Frequency
Kids’ Inpatient 2006 1997 AHRQ AHRQ Every 3 years
Database
Linked Birth 2005 1995 CDC CDC Annual
and Infant
Death Data
Medical 2002 1996 AHRQ AHRQ Annual
Expenditure
Panel Survey
Metropolitan 2004 1967 CDC CDC Annual
Atlanta
Congenital
Defects
Program
Monitoring the 2009 1975 NIDA; Survey Annual
Future Survey Research
Research Center,
Center Institute
for Social
Research,
University of
Michigan
National Child 2007 1990 Children’s Children’s Annual
Abuse and Bureau, U.S. Bureau, U.S.
Neglect Data Department Department
System of Health of Health
and Human and Human
Services Services
National 2003 2003 NCHS/CDC NCHS/CDC One time
Asthma Survey
National 2001 2001 NIMH/NIH NIMH/NIH One time
Comorbidity
Survey-
Adolescent
(NCS-A)
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279
APPENDIX F
Design Sample Size Age Group Respondent Web Link
Cross-sectional N = 3,131,324 <20 years Records http://www.
pediatric hcup-us.ahrq.gov/
discharges kidoverview.jsp
Cross-sectional N = 4,138,573 Birth certificate http://www.cdc.
live births and death gov/nchs/linked.
certificate htm
Cross-sectional N = 11,500 <18 years Household http://www.
panels children/year respondent meps.ahrq.gov/
mepsweb/
Cross-sectional N = 51,676 live 0–6 years Records http://www.cdc.
births gov/ncbddd/bd/
macdp.htm
Cross-sectional N = 50,000 8th, 12–45 years Adolescent and http://www.
10th, and 12th young adult monitoringthe
graders future.org/
College students
and young adults
Cross-sectional N = 794,000 <18 years State records http://www.acf.
children hhs.gov/programs/
victims of child cb/systems/index.
maltreatment htm#ncands
>3.5 million
children received
CPS assessments
or investigations
N = 955 in All ages Adult http://www.cdc.
national study; gov/nchs/slaits/
N = 5,741 in nas.htm
four-state study
13–17 years Adolescent http://www.hcp.
med.harvard.edu/
ncs/instruments.
php
continued
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280 CHILD AND ADOLESCENT HEALTH
Data
Sponsoring Collection
Data Source Year Origination Agency Organization Frequency
National 2004 1993 CDC CDC Annual
Electronic
Disease
Surveillance
Systems
National 1994–2004 1971 NCHS/CDC CDC Annual since
Health and 1999
Nutrition
Examination
Survey
National 2007 1965 NCHS/CDC CDC
Health Care
Survey
National 2002 1957 NCHS/CDC CDC Annual
Health
Interview
Survey
National 2007 1991 NCES NCES Approx. every
Household 2 years
Education
Surveys
Program
National 1999 1994 NCHS/CDC NCHS/CDC
Immunization
Provider
Record Check
Study
National 2008 1995 NCIRD/ National Annual
Immunization NCHS, CDC Opinion
Survey Research
Center,
University of
Chicago
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281
APPENDIX F
Design Sample Size Age Group Respondent Web Link
Cross-sectional Varies All ages Medical case http://www.cdc.
report forms gov/NEDSS/index.
htm
Cross-sectional N = 5085 All ages Adult http://www.cdc.
<20 years, gov/nchs/nhanes.
4,880 adults htm
Cross-sectional All ages Health care http://www.cdc.
provider gov/nchs/nhcs.htm
Cross-sectional N = 12,524; All ages Adult http://www.cdc.
26,191 children in gov/nchs/nhis.htm
person file
Cross-sectional Varies: Varies but always Adult and http://nces.ed.gov/
N = 7,000 includes adolescent nhes/
<18 years
12–35 months Provider http://www.cdc.
gov/nchs/nhis/
niprcs/niprcs.htm
Cross-sectional All ages Adult, doctors http://www.cdc.
and other gov/NIS/
vaccination
providers
continued
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282 CHILD AND ADOLESCENT HEALTH
Data
Sponsoring Collection
Data Source Year Origination Agency Organization Frequency
National 2007–2008 1994–1995 NICHD Carolina 4 waves;
Longitudinal Population 1, 7, and 13
Survey of Center year follow-up
Adolescent
Health (also
known as Add
Health)
National 1997 1997 DOL Bureau of Various
Longitudinal Labor Statistics
Survey of
Youth 1997
National 1988 1988 NCHS/CDC NCHS/CDC One time
Maternal and
Infant Health
Survey 1988
National 1991 1988 NCHS/CDC NCHS/CDC 3 years
Maternal and
Infant Health
Survey 1991
Longitudinal
Follow up to
1988
National 2006 1989 NCHC/CDC CDC Annual
Mortality Data
National 1993 1961 NCHC/CDC CDC Annual
Mortality
Followback
Survey
National 2003 2001 NIMH/NIH Program for
Survey of Research
American Life on Black
Americans,
Institute
for Social
Research,
University of
Michigan
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283
APPENDIX F
Design Sample Size Age Group Respondent Web Link
Longitudinal N = 20,745 Grades 7–12; Adolescent and http://www.cpc.
adolescents young adults adult unc.edu/projects/
(Wave 1); 18–26; addhealth
N = 14,738 adults 24–32
adolescents
(Wave 2);
N = 15,197
young adults
(Wave 3);
N = 15701
adults
(Wave 4)
Longitudinal N = 8,984 12–16 years Adolescent and http://www.bls.
adolescents adult gov/nls/nlsy97.
htm
Cross-sectional N = 18,594 Adult, birth and http://www.
death certificates, cdc.gov/nchs/
and reports of products/elec_
fetal death prods/subject/
mihs.htm
Longitudinal N = 2,000 women Adult http://www.
cdc.gov/nchs/
products/elec_
prods/subject/
lfnmihs.htm
Cross-sectional N = 2,426,264 All ages Death certificates http://www.cdc.
gov/nchs/deaths.
htm
Cross-sectional N = 9,636 >15 years Death certificates http://www.cdc.
gov/nchs/nvss/
nmfs.htm
N = 1,170 13–17 years Adolescent and http://www.rcgd.
adolescents adult isr.umich.edu/
prba/nsal
continued
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284 CHILD AND ADOLESCENT HEALTH
Data
Sponsoring Collection
Data Source Year Origination Agency Organization Frequency
National 2002 1997 Urban Urban 3 series;
Survey of Insitute Institute 1997, 1999,
America’s and 2002
Families
National 2005–2006 2000–2001 MCHB NCHS/CDC Varies
Survey of
Children with
Special Health
Care Needs
National 2007–2008 2003–2004 MCHB NCHS/CDC Varies
Survey of
Children’s
Health
National 2000 2000 AAP/MCHB NCHS/CDC One time
Survey of Early
Childhood
Health
National 2001–2003 1987–1988 NICHD/NIA University of 3 waves;
Survey of Wisconsin 5 and 8 years
Families and Survey Center
Households
National 2006–2009 1973 NCHS/CDC NCHS/CDC 7 cycles
Survey of
Family Growth
National 2008 1972 SAMHSA OAS/ Annual since
Survey on Drug SAMHSA 1991
Use and Health
(formerly
National
Household
Survey on Drug
Abuse)
NHLBI 2000 1985 NHLBI/NIH NHLBI/NIH Annual
Growth and
Health Study
(NGHS)
Pediatric 2007 1973 CDC CDC Annual
Nutrition
Surveillance
System
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285
APPENDIX F
Design Sample Size Age Group Respondent Web Link
Cross-sectional N = 43,157 All ages Adult http://www.urban.
households org/center/anf/
nsaf.cfm
Cross-sectional N = 40,804 <18 years Adult http://cshcndata.
org/Content/
Default.aspx
Cross-sectional N = 91,642 <18 years Child and adult http://www.cdc.
children gov/nchs/slaits/
nsch.htm
Cross-sectional N = 2,068 4–35 months Adult http://www.cdc.
children gov/nchs/slaits/
nsech.htm
Longitudinal N = 2,500 <18 years Child and adult http://www.ssc.
children wisc.edu/nsfh/
Cross-sectional N = +16,000 All ages Adolescent and http://www.cdc.
adult gov/nchs/NSFG.
htm
Cross-sectional N = 68,736 >12 years Adolescent and http://www.oas.
adult samhsa.gov/
nhsda.htm
Longitudinal N = 2,379 girls 9–19 years Adolescents https://biolincc.
nhlbi.nih.gov/
studies/nghs/
Cross-sectional 8,164,612 Birth–5 years Records http://www.cdc.
children gov/PEDNSS/
index.htm
continued
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286 CHILD AND ADOLESCENT HEALTH
Data
Sponsoring Collection
Data Source Year Origination Agency Organization Frequency
Pediatric 1988 CDC CDC Every 6
Spectrum of months
HIV Disease
Pregnancy Risk 2009 1987 CDC CDC/State 6 phases
Assessment health
Monitoring departments
System
Runaway and 1998 1989 ACF/DHHS ACF/DHHS Annual
Homeless
Youth
Management
Information
System
SCHIP 2000 2000 ASPE Mathematica One time
Evaluation Policy
Research, Inc.
Study of Early 2006 1991 NICHD NICHD/NIH 4 phases
Child Care
and Youth
Development
Young Men’s 2000 1994 CDC CDC Varies
Survey
Youth Risk 2007 1991 NCHS/CDC CDC 2 years
Behavior
Surveillance
System
NOTE: AAP = American Academy of Pediatrics; ACF = Administration for Children and
Families; ACYF = Administration on Children, Youth and Families; AHRQ = Agency for
Healthcare Research and Quality; ASPE = The Assistant Secretary for Planning and Evalu-
ation; CDC = Centers for Disease Control and Prevention; CPS = Child Protective Services;
DHHS = U.S. Department of Health and Human Services (now HHS); DOL = U.S. Depart-
ment of Labor; ERS = Economic Research Service; MCHB = Maternal and Child Health
Bureau; NCES = National Center for Education Statistics; NCHC = National Coalition on
Health Care; NCHS = National Center for Health Statistics; NCIRD = National Center for
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287
APPENDIX F
Design Sample Size Age Group Respondent Web Link
>17,000 children Medical records http://aspe.hhs.
gov/datacncl/
DataDir/cdc1.
htm#psd
Cross-sectional Adult http://www.cdc.
gov/prams/
Cross-sectional N = 11,308 <18 years Agencies http://www.acf.
youth hhs.gov/programs/
fysb/content/
youthdivision/
resources/
rhymsfactsheet.
htm
Cross-sectional N = 9,850 All ages Adult http://aspe.hhs.
gov/health/schip/
background.htm
Cross-sectional N = 1,073 Age 0–9th grade Child and adult http://www.nichd.
children nih.gov/research/
supported/seccyd.
cfm
Cross-sectional N = 3,449 young 15–22 years Adolescent and http://aspe.hhs.
men young adult gov/datacncl/
DataDir/cdc1.
htm#yms
Cross-sectional N = 14,041 14–17 years Adolescent http://www.
adolescents cdc.gov/
HealthyYouth/
yrbs/index.htm
Immunization and Respiratory Diseases; NCSER = National Center for Special Education Re-
search; NHLBI = National Heart, Lung, and Blood Institute; NIA = National Institute on Ag-
ing; NICHD = National Institute of Child Health and Human Development; NIDA = National
Institute on Drug Abuse; NIH = National Institutes of Health; NIMH = National Institutes of
Mental Health; OAS = Office of Applied Studies; OPRE = Office of Planning, Research and
Evaluation; OSEP = Office of Special Education Programs; SAMHSA = Substance Abuse and
Mental Health Services Administration; WHO = World Health Organization.
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