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Critical Needs and Gaps in Understanding Prevention, Amelioration, and Resolution of Lyme and Other Tick-Borne Diseases: The Short-Term and Long-Term Outcomes: Workshop Report (2011)
Board on Population Health and Public Health Practice (BPH)

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. "Appendix E: Public Comment Summary." Critical Needs and Gaps in Understanding Prevention, Amelioration, and Resolution of Lyme and Other Tick-Borne Diseases: The Short-Term and Long-Term Outcomes: Workshop Report. Washington, DC: The National Academies Press, 2011.

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Critical Needs and Gaps in Understanding Prevention, Amelioration, and Resolution of Lyme and Other Tick-Borne Diseases: The Short-Term and Long-Term Outcomes - Workshop Report
  • Is there a possibility of chronic Lyme disease, and if so, what data is there to support the existence of chronic or persistent Lyme disease? What symptoms could describe such a condition?

  • In regards to RMSF case studies are other tick-borne infections-for example, Bartonella, Babesia, Mycoplasma-investigated as well? If not, is there an area where retrospective analysis could be helpful, particularly in fatal cases?

  • Why is late-stage Lyme not considered a disability according to SSDI guidelines?

  • Has anyone looked at the possibility of ongoing Babesia infection due to Borrelia coinfection?

  • Is there a connection between acute or chronic Lyme disease and infection with Bartonella or a Bartonella-like organisms?

  • If a patient has Lyme and Babesia, do you think it could compli­cate eradication of the diseases and warrant further antibiotics/antimalarials?

  • What is the benefit of prophylactic antibiotic therapy, and how ef­fective would such therapy be in preventing disease?

  • What is being done to update the materials on tick-borne diseases taught to military personnel?

  • Would data from alternative sources (for example, home health care workers) be of value to physicians and researchers in accurately recording cases and disease symptoms?

  • How are researchers supposed to investigate a disease without proper funding when money is needed to begin the initial investiga­tions (research paradox)?

  • What efforts would you suggest to increase communication between researchers and physicians?

AT-RISK POPULATIONS AND HUMAN FACE OF TICK-BORNE DISEASES

  • Does Lyme disease have the potential to cause postural orthostatic tachycardia syndrome (POTS)?

  • Has any research been done to investigate possible connections be­tween Lyme disease and Alzheimer’s disease?

  • What genetic characteristics make one more susceptible to Lyme disease?

  • Are there any strains of Babesia that, given current lab techniques, are only able to be clinically diagnosed?

  • What services are available to help support families suffering from Lyme disease?

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