. "Appendix E: Public Comment Summary." Critical Needs and Gaps in Understanding Prevention, Amelioration, and Resolution of Lyme and Other Tick-Borne Diseases: The Short-Term and Long-Term Outcomes: Workshop Report. Washington, DC: The National Academies Press, 2011.
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Critical Needs and Gaps in Understanding Prevention, Amelioration, and Resolution of Lyme and Other Tick-Borne Diseases: The Short-Term and Long-Term Outcomes - Workshop Report
Is there a possibility of chronic Lyme disease, and if so, what data is there to support the existence of chronic or persistent Lyme disease? What symptoms could describe such a condition?
In regards to RMSF case studies are other tick-borne infections-for example, Bartonella, Babesia, Mycoplasma-investigated as well? If not, is there an area where retrospective analysis could be helpful, particularly in fatal cases?
Why is late-stage Lyme not considered a disability according to SSDI guidelines?
Has anyone looked at the possibility of ongoing Babesia infection due to Borrelia coinfection?
Is there a connection between acute or chronic Lyme disease and infection with Bartonella or a Bartonella-like organisms?
If a patient has Lyme and Babesia, do you think it could complicate eradication of the diseases and warrant further antibiotics/antimalarials?
What is the benefit of prophylactic antibiotic therapy, and how effective would such therapy be in preventing disease?
What is being done to update the materials on tick-borne diseases taught to military personnel?
Would data from alternative sources (for example, home health care workers) be of value to physicians and researchers in accurately recording cases and disease symptoms?
How are researchers supposed to investigate a disease without proper funding when money is needed to begin the initial investigations (research paradox)?
What efforts would you suggest to increase communication between researchers and physicians?
AT-RISK POPULATIONS AND HUMAN FACE OF TICK-BORNE DISEASES
Does Lyme disease have the potential to cause postural orthostatic tachycardia syndrome (POTS)?
Has any research been done to investigate possible connections between Lyme disease and Alzheimer’s disease?
What genetic characteristics make one more susceptible to Lyme disease?
Are there any strains of Babesia that, given current lab techniques, are only able to be clinically diagnosed?
What services are available to help support families suffering from Lyme disease?