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Appendix A Contents COHORT STUDIES 123 Atherosclerosis Risk in Communities (ARIC), 123 The Cardiovascular Health Study (CHS), 125 COPDGene® Study, 126 The Coronary Artery Risk Development in Young Adults (CARDIA) Study, 128 Eight Americas, 129 Framingham Heart Study, 130 Millennium Cohort Study, 130 Multi-Ethnic Study of Atherosclerosis (MESA), 132 National Longitudinal Study of Adolescent Health (Add Health), 133 Olmstead County Study, 137 Rancho-Bernardo Study, 138 Strong Heart Study (SHS), 138 REGISTRIES 139 Cardiac Arrest Registry to Enhance Survival (CARES) Registry, 139 Cardiovascular Research Network (CVRN): The HMO Research Network (HMORN), 140 COPD Foundation Bronchiectasis Research Registry, 141 COPD Foundation Research Registry, 142 International Registry of Acute Aortic Dissection (IRAD), 143 National Cardiovascular Data Registry (NCDR), 144 Paul Coverdell National Acute Stroke Registry, 145 SURVEYS 146 Behavioral Risk Factor Surveillance System (BRFSS), 146 California Health Interview Survey, 146 Hawaii Health Survey (HHS), 147 Healthcare Cost and Utilization Project (HCUP), 148 Illinois County Behavior Risk Factor Survey (ICBRFS), 149 121

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122 A NATIONWIDE FRAMEWORK FOR SURVEILLANCE OF CARDIOVASCULAR AND CHRONIC LUNG DISEASES Iowa Household Health Survey (IHHS), 150 Los Angeles County Health Survey (LACHS), 151 Medical Expenditure Panel Survey (MEPS), Household Component, 153 Minnesota Heart Survey, 153 National Ambulatory Medical Care Survey (NAMCS), 154 National Diabetes Surveillance System (NDSS), 158 National Health and Nutrition Examination Survey (NHANES), 159 National Health Interview Survey (NHIS), 160 National Hospital Ambulatory Medical Care Survey (NHAMCS), 161 National Hospital Discharge Survey (NHDS), 165 New York City Community Health Survey, 167 New York City Community Health Survey Heart Follow-up Study, 168 New York City Health and Nutrition Examination Survey, 168 New York City Youth Risk Behavior Survey, 169 Primary Care Information Project, 170 State Cardiovascular Health Examination Survey, 171 Youth Risk Behavior Surveillance System, 171 QUALITY PERFORMANCE MEASURES 172 Healthcare Effectiveness Data and Information (HEDIS)—Health Plan, 172 Healthcare Effectiveness Data and Information (HEDIS)—Physicians, 173 REFERENCES 173