BOX 3-1
Data Collection Activities Considered by the Committee

HIV Care–Specific Data Systems

Public

  • National HIV Surveillance System
  • Medical Monitoring Project
  • Ryan White HIV/AIDS Program (Ryan White Services Report; Ryan White AIDS Drug Assistance Program Reports; Ryan White Dental Services Report)
  • Clinical Case Registry: HIV
  • Housing Opportunities for Persons with AIDS
  • Minority AIDS Initiative
  • HIV Outpatient Study
  • Study to Understand the Natural History of HIV/AIDS in the Era of Effective Therapy
  • Enhanced Comprehensive HIV Prevention Planning Project
  • 12 Cities Project

Private

  • North American AIDS Cohort Collaboration on Research and Design
  • CFAR Network of Integrated Clinical Systems
  • HIV Research Network
  • AIDS United

Data Systems with Information that Includes People Living with HIV

Public

  • Medicaid Statistical Information System
  • Chronic Condition Data Warehouse
  • Resource and Patient Management System
  • Bureau of Prisons Electronic Medical Record
  • Bureau of Primary Health Care–Federally Qualified Health Center Uniform Data System
  • Substance Abuse and Mental Health Services Administration
  • Healthcare Cost and Utilization Project
  • National Ambulatory Medical Care Survey
  • National Hospital Ambulatory Medical Care Survey
  • National Vital Statistics System

Private

  • Private health insurers (Aetna, Kaiser Permanente, United Health [Ingenix Normative Health Information Database®], Wellpoint [HealthCore Integrated Research Database®])
  • MarketScan Research Databases
  • HMO Research Network


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