Appendix C

Registered Attendees

Marc Allard

U.S. Food and Drug Administration

James Allred

American Cancer Society Cancer Action Network

George Annas

Boston University

Leposava Antonovic

U.S. Food and Drug Administration

Eric Assaraf

Washington Research Group

Igor Astsaturov

Fox Chase Cancer Center

Marian Ault


Nazneen Aziz

College of American Pathologists

LeeAnn Bailey

Deloitte Consulting

Sarah Beachy

National Cancer Institute

Elise Bendik

University of Miami

Judith Benkendorf

American College of Medical Genetics

Courtney Berrios

Johns Hopkins University

Leslie Biesecker

National Human Genome Research Institute

Paul Billings

Life Technologies

Susan Blanton

University of Miami

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OCR for page 87
Appendix C Registered Attendees Marc Allard LeeAnn Bailey U.S. Food and Drug Administration Deloitte Consulting James Allred Sarah Beachy American Cancer Society Cancer National Cancer Institute Action Network Elise Bendik George Annas University of Miami Boston University Judith Benkendorf Leposava Antonovic American College of Medical U.S. Food and Drug Administration Genetics Eric Assaraf Courtney Berrios Washington Research Group Johns Hopkins University Igor Astsaturov Leslie Biesecker Fox Chase Cancer Center National Human Genome Research Institute Marian Ault Paul Billings Mediatech/Cellgro Life Technologies Nazneen Aziz Susan Blanton College of American Pathologists University of Miami 87

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88 INTEGRATING LARGE-SCALE GENOMIC INFORMATION Bruce Blumberg Emily Clements Kaiser Permanente Jones Public Affairs Mark Boguski Nadine Cohen Center for Biomedical Informatics, Johnson & Johnson Harvard Medical School Sarah Comley Denise Bonds Independent National Heart, Lung, and Blood Sara Copeland Institute Health Resources and Services Wylie Burke Administration University of Washington Maria DeTolve Donoghue Kathryn Camp G&M Consulting National Institutes of Health Helena Duncan Grant Campany College of American Pathologists X Prize Foundation Sherman Elias Michael Cantor Northwestern University Pfizer Inc. Raj Emmadi Julie Cantor-Weinberg University of Illinois at Chicago College of American Pathologists W. Andrew Faucett Alexis Carter Geisinger Health System Emory University W. Gregory Feero C. Thomas Caskey National Human Genome Research Baylor College of Medicine Institute Chia-Chien Chiang Suzanne Feetham Human Genome Sciences University of Wisconsin, Milwaukee Michael Christman Amanda Field Coriell Institute for Medical Children’s National Medical Center Research Louis Fiore George Chrousos Department of Veterans Affaris Library of Congress Natalie Flechsig FasterCures

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89 APPENDIX C Ron Galloway C. J. Hoban Method Content, LLC Southwest Oncology Group and University of Michigan John Gardenier India Hook-Barnard Independent National Academy of Sciences Rosalynn Gill Ekopimo Ibia Rosalynn Gill Consulting, LLC Merck & Co., Inc. Geoffrey Ginsburg Naoko Ishibe Duke University National Institutes of Health Jonathan Gitlin Justin Johnson National Human Genome Research Institute EdgeBio Mark Gorman Nicole Johnson National Coalition for Cancer Johns Hopkins Medical Institute Survivorship Sam Joseph Henry T. Greely University of Maryland, College Stanford University Park Ramachandra Gullapalli Jeffrey Kant University of Pittsburgh Medical University of Pittsburgh Medical Center Center Susanne Haga Sharon Kardia Duke University University of Michigan Pauliana Hall Jill Kaufman PCH Integrated Regulatory Services, College of American Pathologists Inc. James Kelly Heather Halvorson Roche Molecular Systems U.S. Air Force Mohamed Khan Madhuri Hegde Vancouver Cancer Centre Emory University Muin Khoury Gerald Higgins Centers for Disease Control and GenomeQuest, Inc. Prevention

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90 INTEGRATING LARGE-SCALE GENOMIC INFORMATION Roger Klein Elizabeth Mansfield Blood Center of Wisconsin/Medical U.S. Food and Drug Administration College of Wisconsin Denise Toyer McKan Bruce Korf AstraZeneca University of Alabama at Kathryn McLaughlin Birmingham Health Resources and Services Alla Lapidus Administration Fox Chase Cancer Center Christine Micheel Jennifer Leib Institute of Medicine HealthFutures, LLC Ronald Miller Debra Leonard Air Force Medical Support Agency Weill Cornell Medical Center C. Douglas Monroe Dane Leone Kaiser Permanente Drug Macquarie Information Services Xueying Liang Federico Monzon U.S. Food and Drug Administration The Methodist Hospital Paul Lipkin Anne Mueller Robert Woods Johnson Foundation AstraZeneca Health Policy Fellow Amy Muhlberg Tracy Lively Life Technologies Cancer Diagnosis Program, Nancy Munoz National Institutes of Health Genesis HealthCare Michele Lloyd-Puryear Jessica Nadler Health Resources and Services Administration Deloitte Consulting Juliana Macri Marc Newman The Urban Institute Telecenter, LLC Teri Manolio Ginger Norris National Human Genome Research Independent Institute

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91 APPENDIX C Robert Nussbaum Mary Relling University of California, San St. Jude Children’s Research Francisco School of Medicine Hospital Lolita O’Donnell Ronald Rerko Defense Centers of Excellence Cleveland Clinic for Psychological Health and Ann Rose Traumatic Brain Injury ViCro Brad Ozenberger Mary Rubino National Human Genome Research Institute Health Affairs June Peters Nicholas Schork National Cancer Institute Scripps Translational Science Institute Margaret Piper Beverlyn Settles-Reaves Blue Cross/Blue Shield Association Howard University Aidan Power Robert Shelton Pfizer Inc. Private Access, Inc. Victoria Pratt Andy Shih Quest Diagnostics Nichols Institute Autism Speaks Ronald Przygodzki Dee Simons Department of Veterans Affairs Biogen Idec Michael Raff Jennifer Skornik MultiCare Health System Independent Kate Reed Scott Steele National Coalition for Health Professional Education in University of Rochester Genetics Errol Strain Heidi Rehm U.S. Food and Drug Administration Partners HealthCare and Harvard Katherine Johansen Taber Medical School American Medical Association Naved Rehman Cara Tenenbaum Brother Ovarian Cancer National Alliance

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92 INTEGRATING LARGE-SCALE GENOMIC INFORMATION Sharon Terry Michael S. Watson Genetic Alliance American College of Medical Genetics Umesh Thakkar Daniel Wattendorf Department of Veterans Affairs Department of the Air Force Barry Thompson Angele White American College of Medical Genetics Fair Chance, Inc. Bernadette Toner Catherine A. Wicklund GenomeWeb LLC Northwestern University Lois Tully Kelly Wilkicki National Institute of Nursing U.S. Food and Drug Administration Research Hui-Lee Wong Martha Turner U.S. Food and Drug Administration American Nurses Association Robert Yates Lisa Vasquez Social & Scientific Systems, Inc. Health Resources and Services Melanie Young Administration Independent Natalia Volfovsky Wenqi Zeng SAIC–Frederick Ambry Genetics Robert Wassman Life Designs Ventures