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Suggested Citation:"Appendix C: Registered Attendees." Institute of Medicine. 2012. Integrating Large-Scale Genomic Information into Clinical Practice: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/13256.
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Appendix C

Registered Attendees

Marc Allard

U.S. Food and Drug Administration

James Allred

American Cancer Society Cancer Action Network

George Annas

Boston University

Leposava Antonovic

U.S. Food and Drug Administration

Eric Assaraf

Washington Research Group

Igor Astsaturov

Fox Chase Cancer Center

Marian Ault

Mediatech/Cellgro

Nazneen Aziz

College of American Pathologists

LeeAnn Bailey

Deloitte Consulting

Sarah Beachy

National Cancer Institute

Elise Bendik

University of Miami

Judith Benkendorf

American College of Medical Genetics

Courtney Berrios

Johns Hopkins University

Leslie Biesecker

National Human Genome Research Institute

Paul Billings

Life Technologies

Susan Blanton

University of Miami

Suggested Citation:"Appendix C: Registered Attendees." Institute of Medicine. 2012. Integrating Large-Scale Genomic Information into Clinical Practice: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/13256.
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Bruce Blumberg

Kaiser Permanente

Mark Boguski

Center for Biomedical Informatics, Harvard Medical School

Denise Bonds

National Heart, Lung, and Blood Institute

Wylie Burke

University of Washington

Kathryn Camp

National Institutes of Health

Grant Campany

X Prize Foundation

Michael Cantor

Pfizer Inc.

Julie Cantor-Weinberg

College of American Pathologists

Alexis Carter

Emory University

C. Thomas Caskey

Baylor College of Medicine

Chia-Chien Chiang

Human Genome Sciences

Michael Christman

Coriell Institute for Medical Research

George Chrousos

Library of Congress

Emily Clements

Jones Public Affairs

Nadine Cohen

Johnson & Johnson

Sarah Comley

Independent

Sara Copeland

Health Resources and Services Administration

Maria DeTolve Donoghue

G&M Consulting

Helena Duncan

College of American Pathologists

Sherman Elias

Northwestern University

Raj Emmadi

University of Illinois at Chicago

W. Andrew Faucett

Geisinger Health System

W. Gregory Feero

National Human Genome Research Institute

Suzanne Feetham

University of Wisconsin, Milwaukee

Amanda Field

Children’s National Medical Center

Louis Fiore

Department of Veterans Affaris

Natalie Flechsig

FasterCures

Suggested Citation:"Appendix C: Registered Attendees." Institute of Medicine. 2012. Integrating Large-Scale Genomic Information into Clinical Practice: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/13256.
×

Ron Galloway

Method Content, LLC

John Gardenier

Independent

Rosalynn Gill

Rosalynn Gill Consulting, LLC

Geoffrey Ginsburg

Duke University

Jonathan Gitlin

National Human Genome Research Institute

Mark Gorman

National Coalition for Cancer Survivorship

Henry T. Greely

Stanford University

Ramachandra Gullapalli

University of Pittsburgh Medical Center

Susanne Haga

Duke University

Pauliana Hall

PCH Integrated Regulatory Services, Inc.

Heather Halvorson

U.S. Air Force

Madhuri Hegde

Emory University

Gerald Higgins

GenomeQuest, Inc.

C. J. Hoban

Southwest Oncology Group and University of Michigan

India Hook-Barnard

National Academy of Sciences

Ekopimo Ibia

Merck & Co., Inc.

Naoko Ishibe

National Institutes of Health

Justin Johnson

EdgeBio

Nicole Johnson

Johns Hopkins Medical Institute

Sam Joseph

University of Maryland, College Park

Jeffrey Kant

University of Pittsburgh Medical Center

Sharon Kardia

University of Michigan

Jill Kaufman

College of American Pathologists

James Kelly

Roche Molecular Systems

Mohamed Khan

Vancouver Cancer Centre

Muin Khoury

Centers for Disease Control and Prevention

Suggested Citation:"Appendix C: Registered Attendees." Institute of Medicine. 2012. Integrating Large-Scale Genomic Information into Clinical Practice: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/13256.
×

Roger Klein

Blood Center of Wisconsin/Medical College of Wisconsin

Bruce Korf

University of Alabama at Birmingham

Alla Lapidus

Fox Chase Cancer Center

Jennifer Leib

HealthFutures, LLC

Debra Leonard

Weill Cornell Medical Center

Dane Leone

Macquarie

Xueying Liang

U.S. Food and Drug Administration

Paul Lipkin

Robert Woods Johnson Foundation Health Policy Fellow

Tracy Lively

Cancer Diagnosis Program, National Institutes of Health

Michele Lloyd-Puryear

Health Resources and Services Administration

Juliana Macri

The Urban Institute

Teri Manolio

National Human Genome Research Institute

Elizabeth Mansfield

U.S. Food and Drug Administration

Denise Toyer McKan

AstraZeneca

Kathryn McLaughlin

Health Resources and Services Administration

Christine Micheel

Institute of Medicine

Ronald Miller

Air Force Medical Support Agency

C. Douglas Monroe

Kaiser Permanente Drug Information Services

Federico Monzon

The Methodist Hospital

Anne Mueller

AstraZeneca

Amy Muhlberg

Life Technologies

Nancy Munoz

Genesis HealthCare

Jessica Nadler

Deloitte Consulting

Marc Newman

Telecenter, LLC

Ginger Norris

Independent

Suggested Citation:"Appendix C: Registered Attendees." Institute of Medicine. 2012. Integrating Large-Scale Genomic Information into Clinical Practice: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/13256.
×

Robert Nussbaum

University of California, San Francisco School of Medicine

Lolita O’Donnell

Defense Centers of Excellence for Psychological Health and Traumatic Brain Injury

Brad Ozenberger

National Human Genome Research Institute

June Peters

National Cancer Institute

Margaret Piper

Blue Cross/Blue Shield Association

Aidan Power

Pfizer Inc.

Victoria Pratt

Quest Diagnostics Nichols Institute

Ronald Przygodzki

Department of Veterans Affairs

Michael Raff

MultiCare Health System

Kate Reed

National Coalition for Health Professional Education in Genetics

Heidi Rehm

Partners HealthCare and Harvard Medical School

Naved Rehman

Brother

Mary Relling

St. Jude Children’s Research Hospital

Ronald Rerko

Cleveland Clinic

Ann Rose

ViCro

Mary Rubino

Health Affairs

Nicholas Schork

Scripps Translational Science Institute

Beverlyn Settles-Reaves

Howard University

Robert Shelton

Private Access, Inc.

Andy Shih

Autism Speaks

Dee Simons

Biogen Idec

Jennifer Skornik

Independent

Scott Steele

University of Rochester

Errol Strain

U.S. Food and Drug Administration

Katherine Johansen Taber

American Medical Association

Cara Tenenbaum

Ovarian Cancer National Alliance

Suggested Citation:"Appendix C: Registered Attendees." Institute of Medicine. 2012. Integrating Large-Scale Genomic Information into Clinical Practice: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/13256.
×

Sharon Terry

Genetic Alliance

Umesh Thakkar

Department of Veterans Affairs

Barry Thompson

American College of Medical Genetics

Bernadette Toner

GenomeWeb LLC

Lois Tully

National Institute of Nursing Research

Martha Turner

American Nurses Association

Lisa Vasquez

Health Resources and Services Administration

Natalia Volfovsky

SAIC–Frederick

Robert Wassman

Life Designs Ventures

Michael S. Watson

American College of Medical Genetics

Daniel Wattendorf

Department of the Air Force

Angele White

Fair Chance, Inc.

Catherine A. Wicklund

Northwestern University

Kelly Wilkicki

U.S. Food and Drug Administration

Hui-Lee Wong

U.S. Food and Drug Administration

Robert Yates

Social & Scientific Systems, Inc.

Melanie Young

Independent

Wenqi Zeng

Ambry Genetics

Suggested Citation:"Appendix C: Registered Attendees." Institute of Medicine. 2012. Integrating Large-Scale Genomic Information into Clinical Practice: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/13256.
×
Page 87
Suggested Citation:"Appendix C: Registered Attendees." Institute of Medicine. 2012. Integrating Large-Scale Genomic Information into Clinical Practice: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/13256.
×
Page 88
Suggested Citation:"Appendix C: Registered Attendees." Institute of Medicine. 2012. Integrating Large-Scale Genomic Information into Clinical Practice: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/13256.
×
Page 89
Suggested Citation:"Appendix C: Registered Attendees." Institute of Medicine. 2012. Integrating Large-Scale Genomic Information into Clinical Practice: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/13256.
×
Page 90
Suggested Citation:"Appendix C: Registered Attendees." Institute of Medicine. 2012. Integrating Large-Scale Genomic Information into Clinical Practice: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/13256.
×
Page 91
Suggested Citation:"Appendix C: Registered Attendees." Institute of Medicine. 2012. Integrating Large-Scale Genomic Information into Clinical Practice: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/13256.
×
Page 92
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The initial sequencing of the human genome, carried out by an international group of experts, took 13 years and $2.7 billion to complete. In the decade since that achievement, sequencing technology has evolved at such a rapid pace that today a consumer can have his or her entire genome sequenced by a single company in a matter of days for less than $10,000, though the addition of interpretation may extend this timeframe. Given the rapid technological advances, the potential effect on the lives of patients, and the increasing use of genomic information in clinical care, it is important to address how genomics data can be integrated into the clinical setting. Genetic tests are already used to assess the risk of breast and ovarian cancers, to diagnose recessive diseases such as cystic fibrosis, to determine drug dosages based on individual patient metabolism, and to identify therapeutic options for treating lung and breast tumors, melanoma, and leukemia.

With these issues in mind and considering the potential impact that genomics information can have on the prevention, diagnosis, and treatment of disease, the Roundtable on Translating Genomic-Based Research for Health hosted a workshop on July 19, 2011, to highlight and identify the challenges and opportunities in integrating large-scale genomic information into clinical practice.

Integrating Large-Scale Genomic Information into Clinical Practice summarizes the speaker presentations and the discussions that followed them. This report focuses on several key topics, including the analysis, interpretation, and delivery of genomic information plus workforce, ethical, and legal issues.

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