• surveillance programs or other means to ascertain survival, length of follow-up (e.g., 5 years, lifetime), and completeness of follow-up.

  • Whether there is passive follow-up of reported cancer cases through linkage of cancer registry reports with death records to update vital status, and completeness.
  • Whether year and place of birth of diseased/deceased individuals are available
  • Procedures for request and release of cancer incidence and cancer mortality data at the address and census tract level, including associated costs and estimated time frames.
  • References to any publications about registry operations or findings.
  • Any other information you think might be relevant to a national study of cancer incidence and mortality among persons living near nuclear facilities.

I have also addressed the request for cancer mortality data information to [Name] from the Office of Vital Statistics. However, I understand that cancer registries can often facilitate access to the mortality data; therefore I hope that you will be able to provide me with the requested information.

Any information you provide to me by November 15, 2011 will be considered in support of the study. Please note that all written information that you provide will be included in the Public Access File for this study.

If you have questions about this request or would prefer to respond by telephone I would be happy to contact you. I can be reached by email (kcrowley@nas.edu) or telephone (202-334-3066).

                                                                                                                                 Kevin Crowley
Study Director

The National Academies of Sciences, Engineering, and Medicine
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