Appendix B

Workshop Agenda

DIGITAL DATA PRIORITIES FOR CONTINUOUS LEARNING IN HEALTH AND HEALTH CARE

An Institute of Medicine Workshop Sponsored by the Office of the National Coordinator for Health Information Technology

MARCH 23, 2012

KECK CENTER 500 FIFTH STREET NW, WASHINGTON DC 20001

A LEARNING HEALTH SYSTEM ACTIVITY IOM ROUNDTABLE ON VALUE & SCIENCE-DRIVEN HEALTH CARE

Meeting objectives

1.  Discuss the current quality status of digital health data.

2.  Explore challenges, and identify key questions related to data quality in the use of EHRs, patient registries, administrative data, and public health sources for learning—continuous and episodic—and for system operational and improvement purposes.

3.  Engage individuals and organizations leading the way in improving the reliability, availability, and usability of digital health data for real-time knowledge generation and health improvement in a continuously learning health system.

4.  Identify and characterize the current deficiencies and consider strategies, priorities, and responsibilities to address the deficiencies.

5.  Initiate the development of a strategic framework for integrated and networked stewardship of efforts to continuously increase digital data utility.



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Appendix B Workshop Agenda DIGITAL DATA PRIORITIES FOR CONTINUOUS LEARNING IN HEALTH AND HEALTH CARE An Institute of Medicine Workshop Sponsored by the Office of the National Coordinator for Health Information Technology March 23, 2012 Keck Center 500 Fifth Street NW, Washington DC 20001 A Learning Health System Activity IOM Roundtable on Value & Science-Driven Health Care Meeting objectives 1. Discuss the current quality status of digital health data. 2. Explore challenges, and identify key questions related to data quality in the use of EHRs, patient registries, administrative data, and public health sources for learning—continuous and episodic—and for system operational and improvement purposes. 3. Engage individuals and organizations leading the way in improving the reliability, availability, and usability of digital health data for real-time knowledge generation and health improvement in a continuously learning health system. 4. Identify and characterize the current deficiencies and consider strategies, priorities, and responsibilities to address the deficiencies. 5. Initiate the development of a strategic framework for integrated and networked stewardship of efforts to continuously increase digital data utility. 57

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58 DIGITAL DATA IMPROVEMENT PRIORITIES Agenda 7:30 am Coffee and light breakfast available 8:00 am Welcome, introductions, and overview Welcome, framing of the meeting and agenda overview o J. Michael McGinnis (Institute of Medicine) o Farzad Mostashari (Office of the National Coordinator) o (Planning Committee Chair) James Walker 8:15 am Characteristics, challenges, and determinants of data quality Ø ession Description: This session includes brief comments S  on the data quality challenges that lie ahead and a longer discussion of the characteristics and determinants of digi- tal health data quality. Ø Topics: Key o Challenges on the horizon Doug Fridsma (ONC) o Characteristics and determinants of data quality Marc Overhage (Siemens) OPEN DISCUSSION 9:00 am Performance assessment Ø ession Description: This session focuses on the qual- S  ity of digital health data needed to evaluate clinical care delivery, population management and the business and operating processes that make up a learning health system. Ø Topics: Key o Assessing value Carol McCall (GNS) o Managing populations and processes Mark Leenay (OptumHealth) OPEN DISCUSSION 10:00 am Break

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APPENDIX B 59 10:15 am Enabling research Ø ession Description: This session focuses on the quality S  of digital health data needed to enable research. Ø Topics: Key o Clinical research  Rebecca Kush (Clinical Data Interchange Standards Consortium) o Translational informatics Mia Levy (Vanderbilt) OPEN DISCUSSION 11:15 am Supporting public health and surveillance Ø ession Description: This session focuses on the quality S  of digital health data needed to support of public health functions, including surveillance. Ø Topics: Key o Public health surveillance and management James Buehler (CDC) o State-level perspective Martin LaVenture (Minnesota Department of Health) OPEN DISCUSSION 12:15 pm Lunch keynote Who is your customer? James Heywood, PatientsLikeMe 1:00 pm Approaches to continuous improvement using large-scale datasets Ø ession Description: Session presentations will focus on S  the implications of digital health data quality on the potential for learning from large amounts of health data.

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60 DIGITAL DATA IMPROVEMENT PRIORITIES Ø Topics: Key o Using distributed data/Query Health Rich Platt (Harvard) and Rich Elmore (ONC) o Data analysis and discovery of significant patterns David Madigan (OMOP/Columbia) OPEN DISCUSSION 2:00 pm Innovative approaches to addressing data challenges Ø ession Description: This session will focus on innovative S  approaches to overcoming some prominent challenges associated with using health data. Topics: Ø o Data harmonization Chris Chute (Mayo) o Linking data across time and sources Vik Kheterpal (CareEvolution Inc.) OPEN DISCUSSION 3:00 pm Strategies going forward Ø ession Description: This session will include a rapid- S  fire, moderated discussion to identify the top 10 actions necessary for progress discussed during the course of the meeting. 1. dentification of potential action steps—20 min. (45 I seconds each) 2. Rapid identification of pros and cons—15 min. 3. Identification of top ten leading action steps—25 min. OPEN DISCUSSION 4:00 pm Next steps Ø ession Description: This session will build off of the 10 S  action steps identified in the previous session and outline options to move forward. 5:00 pm Adjourn