on Value & Science-Driven Health Care. Chapters 2 through 5 summarize the expert presentations at the workshop, and are organized by thematic focus on the presentations, while Chapter 6 covers the concluding discussion. Chapter 2 addresses data quality challenges and opportunities in a learning health system, including explorations of data heterogeneity and the importance of focusing on data of value to the patient. Chapter 3 focuses on the many uses of the digital health data utility, covering the management of patient populations, clinical research, translational informatics, and both national and local public health efforts. Chapter 4 looks at emerging issues and opportunities in the use of large datasets, including a discussion of the challenge of data bias, and recent advances in mathematics that promise to move research toward generating real time insights. Chapter 5 explores emerging innovations in the use of digital health data including distributed queries, data normalization, and data linkages. Chapter 6 summarizes the concluding discussion in which many workshop participants suggested potential strategies and actions to catalyze progress.


Decker, S. L., E. W. Jamoom, and J. E. Sisk. 2012. Physicians in nonprimary care and small practices and those age 55 and older lag in adopting electronic health record systems. Health Affairs 31(5):1-7.

IOM (Institute of Medicine). 2010. Redesigning the clinical effectiveness research paradigm: Innovation and practice-based approaches. Washington, DC: The National Academies Press.

———. 2011a. Clinical data as the basic staple for health learning: Creating and protecting a public good. Washington, DC: The National Academies Press.

———. 2011b. Digital infrastructure for the learning health system: The road to continuous improvement in health and health care. Washington, DC: The National Academies Press.

———. 2011c. Learning what works: Infrastructure required for comparative effectiveness research. Washington, DC: The National Academies Press.

The National Academies | 500 Fifth St. N.W. | Washington, D.C. 20001
Copyright © National Academy of Sciences. All rights reserved.
Terms of Use and Privacy Statement