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Appendix A
Workshop Agenda
INFORMATICS NEEDS AND CHALLENGES
IN CANCER RESEARCH
February 27 and 28, 2012
The Keck Center of the National Academies
500 Fifth Street, NW--Room 100
Washington, DC 20001
STATEMENT OF TASK
An ad hoc committee will plan and conduct a public workshop whose
agenda will examine the informatics needs and challenges for 21st century
biomedical research, with a focus on the spectrum of cancer research, rang-
ing from basic science to clinical, comparative effectiveness, and health
services delivery research. The workshop, which will feature invited presen-
tations and discussion, will address such topics as
· Design, development, and integration of informatics in cancer
research;
· Standards for cancer informatics systems;
· Interoperability and harmonization;
· Infrastructure needs for research;
· Data annotation and curation of multiple complex datasets;
103
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104 INFORMATICS NEEDS AND CHALLENGES IN CANCER RESEARCH
· Methods for data use and representation;
· Implications of implementing effective informatics tools for
research; and
· Sustainability, governance, policy, and trust.
Workshop sessions will also include some discussion about how to
move beyond the reported shortcomings of the National Cancer Institute's
(NCI's) Cancer Biomedical Informatics Grid (caBIG).
The workshop may incorporate illustrative "use cases" reflecting com-
mon research applications that rely on informatics and will include dis-
cussion of potential policy changes to facilitate effective implementation,
adoption, and use of informatics tools in cancer research. An individually
authored summary of the workshop will subsequently be prepared by a
designated rapporteur.
AGENDA
February 27, 2012
7:30 a.m. Breakfast and Registration
8:00 a.m.Welcome from the Institute of Medicine (IOM) National
Cancer Policy Forum
John Mendelsohn, M.D. Anderson Cancer Center
Chair, National Cancer Policy Forum
8:05 a.m. Workshop Introduction and Overview
Sharon Murphy, IOM
SESSION I
Overview of the Informatics Landscape: Where We Are, Framing the
Problem, What's Working, What's Not Working, What's Available?
Moderator: Sharon Murphy, IOM
8:15 a.m. Challenges, Gaps, and Opportunities in Cancer
Informatics
· Lawrence Shulman, Dana-Farber Cancer Institute
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APPENDIX A 105
8:30 a.m. The Cancer Centers Perspective
· William Dalton, Moffitt Cancer Center & Research
Institute
8:50 a.m. The Perspective from Cancer Cooperative Group Chairs
· Robert Comis, Eastern Cooperative Oncology Group
· Mitchell Schnall, American College of Radiology
Imaging Network
9:30 a.m. Discussion
9:45 a.m. Coffee Break
10:00 a.m. The Perspective from Clinical Translational Researchers
· B radley Pollock, University of Texas Health Science
Center
10:20 a.m. Lessons Learned from caBIG
· Daniel Masys, University of Washington
10:50 a.m. Discussion
KEYNOTE ADDRESS
11:00 a.m. Informatics and Personalized Medicine
· Leroy Hood, Institute for Systems Biology
12:00 p.m. Lunch Break
SESSION II
Cancer Use Cases, Examples of Successful Informatics-Supported
Endeavors, How Industry Is Addressing Health Care Data, Large-Scale
Data Aggregation and Exchange, Overarching Issues, and Reactions
Moderator: Amy Abernethy, Duke University Cancer Care Research Program
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106 INFORMATICS NEEDS AND CHALLENGES IN CANCER RESEARCH
1:00 p.m.DELL-TGen Cloud Computing Collaboration in
Personalized Medicine for Pediatric Neuroblastoma
· August Calhoun, Dell Healthcare and Life Sciences
· Spyro Mousses, TGen
1:30 p.m.National Comprehensive Cancer Network (NCCN):
Database Reporting Systems and Analytics
· Kimary Kulig, NCCN Clinical and Translational
Outcomes Research
2:00 p.m.Information Technology (IT) Innovations in a Health
Care Network Devoted Exclusively to Cancer Research
and Treatment
· Asif Ahmad, Information and Technology Services,
US Oncology
2:30 p.m.Secondary Uses of Data for Comparative Effectiveness
Research
· Paul Wallace, The Lewin Group
3:00 p.m. Coffee Break
3:15 p.m. Panel Discussion
Moderator: Adam Clark, MedTran Health Strategies
Speakers joined by panelists:
· Gwen Darien, NCI Director's Consumer Liaison Group
and cancer survivor
· Deven McGraw, Center for Democracy and Technology
· James Cimino, National Institutes of Health (NIH)
Laboratory for Informatics Development
· Steven Piantadosi, Cedars-Sinai Medical Center
4:45 p.m. Wrap-up
Amy Abernethy, Duke University Cancer Care Research
Program
5:00 p.m. Adjourn Day 1
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APPENDIX A 107
February 28, 2012
7:30 a.m. Breakfast and Registration
SESSION III
Potential Pathways Forward, New Models
Co-moderators: Amy Abernethy, Duke University Cancer Care Research
Program, and William Dalton, Moffitt Cancer Center & Research Institute
8:00 a.m. Overview of the Needs for Cancer Research
· John Mendelsohn, M.D. Anderson Cancer Center
Chair, National Cancer Policy Forum
8:10 a.m.Systems and Personalized Medicine Enabled by Public
Data
· Atul Butte, Stanford University School of Medicine
8:55 a.m. A Systems-Based Approach to Cancer Informatics
· George Poste, Arizona State University Complex
Adaptive Systems Initiative
9:40 a.m. Discussion
9:50 a.m.How Cancer Informatics Will Enable Disruptive
Innovation
· Jason Hwang, Innosight Institute
10:15 a.m. Coffee Break
10:35 a.m. Perspectives from the Office of the National Coordinator
· Farzad Mostashari, Office of the National Coordinator
for Health Information Technology
10:55 a.m. Electronic Health Records (EHRs) and Cancer Research
· Sam Butler, Epic
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108 INFORMATICS NEEDS AND CHALLENGES IN CANCER RESEARCH
11:05 a.m.Democratizing Big Data Informatics for Cancer and
Other Therapeutic Areas
· Kris Joshi, Oracle
11:15 a.m. Cancer CenterBased Coalitions and IT Networks
· William Dalton, Moffitt Cancer Center & Research
Institute
11:35 a.m.A Proposal for a Coalition of All Stakeholders to Achieve
Data Liquidity in Cancer
· Marcia A. Kean, Feinstein Kean Healthcare
11:50 a.m. Panel Discussion
Moderator: Lynn Etheredge, Rapid Learning Project,
George Washington University
Speakers joined by panelists:
· Brandon Hayes-Lattin, Oregon Health & Science
University and LIVESTRONG
· Bradford Hesse, NCI
· Mia Levy, Vanderbilt-Ingram Cancer Center
· Allen Lichter, American Society of Clinical Oncology
12:50 p.m. Summary and Conclusions
1:00 p.m. Adjourn
