• Methods for data use and representation;

• Implications of implementing effective informatics tools for research; and

• Sustainability, governance, policy, and trust.

Workshop sessions will also include some discussion about how to move beyond the reported shortcomings of the National Cancer Institute’s (NCI’s) Cancer Biomedical Informatics Grid (caBIG).

The workshop may incorporate illustrative “use cases” reflecting common research applications that rely on informatics and will include discussion of potential policy changes to facilitate effective implementation, adoption, and use of informatics tools in cancer research. An individually authored summary of the workshop will subsequently be prepared by a designated rapporteur.


February 27, 2012

7:30 a.m. Breakfast and Registration
8:00 a.m. Welcome from the Institute of Medicine (IOM) National Cancer Policy Forum
John Mendelsohn, M.D. Anderson Cancer Center
Chair, National Cancer Policy Forum
8:05 a.m. Workshop Introduction and Overview
Sharon Murphy, IOM


Overview of the Informatics Landscape: Where We Are, Framing the Problem, What’s Working, What’s Not Working, What’s Available?
Moderator: Sharon Murphy, IOM

8:15 a.m. Challenges, Gaps, and Opportunities in Cancer Informatics

• Lawrence Shulman, Dana-Farber Cancer Institute

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