Working Toward a National System

In working toward a national system of data liquidity, Kean explained, coalition members would be making a commitment of time and resources and would be vested in the success of the resulting capabilities. Each capability would address a specific problem of importance to the user, and once delivered, the capability would be shared. In addition, the coalition would consistently seek to integrate and promulgate the capabilities.

The coalition would be a differentiated, hybrid model in a number of ways, Kean said. It would have the benefit of data exchange through open interfaces while commercial IT companies could be remunerated for their proprietary products or services. It would be a test bed for the capabilities necessary for interoperability. As an open forum, it would seek members from all constituencies; it is not intended to compete with any standard-setting body, but to work adjacent to them and benefit from their work. Importantly, Kean said, the coalition would help ensure that capabilities are not lost as one-off models but rather that they contribute to the national capability.

The coalition would also be different from other efforts, Kean said, in that it would not be a data aggregator or a database; it would not be for the benefit of one single community; it would not be owned or led by the government; it would not undermine proprietary software systems; and it would not be a collection of universal standards. It would also not force data sharing where this is not desired, she added.

A host of potential benefits would accrue from the successful launch and implementation of such a coalition, Kean concluded. In addition to addressing many or even most of the challenges discussed at the workshop, the activities of a successful stakeholder coalition could accelerate studies and advance new approaches to evidence generation and, ultimately, achieve benefits for all constituencies.

In closing, Kean invited participants’ feedback on the proposed coalition.

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