Main Workshop Themes Identified by Amy Abernethy

  1. Embrace cancer informatics. Cancer informatics provides opportunities to do the following:

• improve the efficiency of the discovery engine;

• bridge the gap between discovery and health;

• reduce the risk of losing valuable data assets; and

• share lessons learned in cancer research so they can be leveraged in cancer care and other medical disciplines.

  2. Embrace solutions. Embrace complexity and find solutions to address the following issues:

• data availability, integration, and exchange;

• democratization of information;

• technical hurdles;

• interoperability;

• governance;

• value and appropriate use of experimental and observational data;

• validation and quality;

• workforce;

• analytics and methods development;

• visualization and representation of big datasets; and

• cyberinfrastructure.

  3. Establish an ecosystem of partners, including, but not limited to, the following:

• patients, consumers, advocates;

• cancer centers, physicians;

• biomedical research;

• clinical researchers, quantitative scientists, basic scientists, outcomes researchers; in industry, academia, and government;

• cancer clinical trials cooperative groups;

• information technology developers and providers;

• payers, administrators; and

• federal agencies.

  4. Generate trust. Earning the trust of patients, providers, researchers, and society in general is the core underlying issue for the following concerns:

• data privacy and security;

• accountability; and

• data ownership.



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