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Future Uses of the Department of Defense Joint Pathology Center Biorepository (2012)

Chapter: Appendix A: Public Meeting Agendas

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Suggested Citation:"Appendix A: Public Meeting Agendas." Institute of Medicine. 2012. Future Uses of the Department of Defense Joint Pathology Center Biorepository. Washington, DC: The National Academies Press. doi: 10.17226/13443.
×

Appendix A

Public Meeting Agendas

PUBLIC MEETING

April 21, 2011
Keck Center of the National Academies
500 Fifth Street, NW, Washington, DC

1:00 p.m.
Conduct of the Open Session and Introduction of Participants
James Childress, PhD
Professor, Director of Practical Ethics and Public Life, University of Virginia Committee Chair
 
1:05 p.m.
Charge to the Committee/Background on the AFIP and the JPC
Thomas P. Baker, MD, COL, MC
Interim Director, Joint Pathology Center; and Chief, Integrated Department of Pathology, Walter Reed Army Medical Center and National Naval Medical Center
 
2:30 p.m.
Open Session Adjourns; Break
 
2:45 p.m.
Committee Departs Keck Center for the JPC Repository
Suggested Citation:"Appendix A: Public Meeting Agendas." Institute of Medicine. 2012. Future Uses of the Department of Defense Joint Pathology Center Biorepository. Washington, DC: The National Academies Press. doi: 10.17226/13443.
×
 
3:15 p.m.
Open Session Reconvenes at the JPC Repository
Tour conducted by Dr. Baker and JPC staff
 
4:45 p.m.
Open Session Ends; Committee Returns to Keck Center

WORKSHOP

July 11, 2011
Keck Center of the National Academies
500 Fifth Street, NW, Washington, DC

12:30 p.m.
Welcome; Conduct of the Open Session and Introduction of Participants
James Childress, PhD
Professor, Director of Practical Ethics and Public Life, University of Virginia CommitteeChair
 
12:35 p.m.
The State of the AFIP Repository in 2008
Victoria Blanc, PhD
Vice President, Strategic Planning and Government Affairs, Asterand, Inc.
 
1:05 p.m.
Legal and Ethical Issues Related to the Management of the Repository
Catherine M. With, MA, JD, LLM, LLM
Major, Judge Advocate, U.S. Army; Legal Counsel, Armed Forces Institute of Pathology
 
1:35 p.m.
Special Considerations in the Use and Management of Military Biorepositories
Victor W. Weedn, MD, JD
Maryland State Office of the Medical Examiner
 
2:05 p.m.
Management of the Department of Veterans Affairs Biorepository Assets Marianna Bledsoe, MA
Senior Program Manager for Biorepository and Biobanking, U.S. Department of VeteransAffairs
Suggested Citation:"Appendix A: Public Meeting Agendas." Institute of Medicine. 2012. Future Uses of the Department of Defense Joint Pathology Center Biorepository. Washington, DC: The National Academies Press. doi: 10.17226/13443.
×
 
2:35 p.m.
Roundtable Discussion 1
James Childress, PhD, moderator
 
3:05 p.m.
Break
 
3:15 p.m
Recommendations of the 2005 AFIP Tissue Repository Consensus Conference
David Korn, MD
Vice Provost for Research, Harvard University; Professor of Pathology, Harvard Medical School
 
3:45 p.m.
Property and Intellectual Property Issues Regarding Biorepository Assets
David E. Winickoff, MA, JD
Associate Professor, Bioethics and Society, University of California, Berkeley
 
4:15 p.m.
A Perspective on Stakeholder Interests in the Use of Biorepository Assets
Simone Sommer, MD
Founder, the Chordoma Foundation
 
4:45 p.m.
Roundtable Discussion 2
James Childress, PhD, moderator
 
5:15 p.m.
Workshop and Open Session End

PUBLIC MEETING

September 8, 2011
J. Eric Jonsson Center of The National Academies
Woods Hole, MA

1:00 p.m.
Conduct of the Open Session and Introduction of Participants
James Childress, PhD
Professor, Director of Practical Ethics and Public Life, University of Virginia Committee Chair
Suggested Citation:"Appendix A: Public Meeting Agendas." Institute of Medicine. 2012. Future Uses of the Department of Defense Joint Pathology Center Biorepository. Washington, DC: The National Academies Press. doi: 10.17226/13443.
×
 
1:05 p.m.
Proposed Changes to the Common Rule
Jerry Alan Menikoff, MD, JD [participating via conference call]
Director, Office for Human Research Protections, Office of the Secretary,
Department of Health and Human Services
 
1:30 p.m.
Roundtable Discussion—Committee, Speaker, and Observers
James Childress, PhD, moderator
 
2:00 p.m.
Open Session Ends
Suggested Citation:"Appendix A: Public Meeting Agendas." Institute of Medicine. 2012. Future Uses of the Department of Defense Joint Pathology Center Biorepository. Washington, DC: The National Academies Press. doi: 10.17226/13443.
×
Page 137
Suggested Citation:"Appendix A: Public Meeting Agendas." Institute of Medicine. 2012. Future Uses of the Department of Defense Joint Pathology Center Biorepository. Washington, DC: The National Academies Press. doi: 10.17226/13443.
×
Page 138
Suggested Citation:"Appendix A: Public Meeting Agendas." Institute of Medicine. 2012. Future Uses of the Department of Defense Joint Pathology Center Biorepository. Washington, DC: The National Academies Press. doi: 10.17226/13443.
×
Page 139
Suggested Citation:"Appendix A: Public Meeting Agendas." Institute of Medicine. 2012. Future Uses of the Department of Defense Joint Pathology Center Biorepository. Washington, DC: The National Academies Press. doi: 10.17226/13443.
×
Page 140
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Founded during the Civil War as the Army Medical Museum, the Armed Forces Institute of Pathology (AFIP) amassed the world's largest collection of human pathologic specimens and was considered a premier consultation, education, and research facility by the end of the 20th century. Samples from the AFIP were instrumental in helping to solve public health mysteries, such as the sequence of the genome of the 1918 influenza virus that killed more than 40 million people worldwide.

In 2005, the federal Base Realignment and Closure Commission recommended that the AFIP be closed, and its biorepository was transferred to the newly created Joint Pathology Center. During the transition, the Department of Defense asked the IOM to provide advice on operating the biorepository, managing its collection, and determining appropriate future use of specimens for consultation, education, and research.

Future Uses of the Department of Defense Joint Pathology Center Biorepository, the IOM proposes a series of protocols, standards, safeguards, and guidelines that could help to ensure that this national treasure continues to be available to researchers in the years to come, while protecting the privacy of the people who provided the materials and maintaining the security of their personal information.

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