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OCR for page 58
Guidebook
56
Communicating the Value of Transportation Research
1
Practice
St. Jude Children's Research Hospital
Best
Context donors, and the general public.
The mission of St. Jude Children's Research Hospital Communication Approach
is to advance cures, and means of prevention, for
pediatric catastrophic diseases through research Communication at St. Jude is centralized, but
and treatment. Most importantly, St. Jude's goal compartmentalized. All communication initiates
is to increase the survival rate of children suffering from St. Jude's main campus in Memphis,
from these diseases. St. Jude welcomes referrals Tennessee; however, the hospital, fundraising
from treating physicians of children and adolescents arm, and physician referral units all have their
with newly diagnosed untreated or suspected own communication specialists who generate
cancer; HIV infections; or certain hematologic, communication for their own unit. Each
immunologic, or genetic diseases. Since the communication unit incorporates information to
hospital is a research center, every child accepted is demonstrate the value of St. Jude research in nearly
enrolled in a specific study or "protocol." Information every communication product created.
gathered from these studies is used in developing
Outcomes
better treatments.
The value of research is communicated in terms of
Research efforts are directed toward understanding lives saved and the number of new and improved
the molecular, genetic, and chemical bases of treatments through simple and easy-to-digest facts
catastrophic diseases in children, identifying cures and updates. St. Jude facilitates frequent updates
for such diseases, and promoting their prevention. focusing on the research results and their direct
Research is focused specifically on cancers, acquired impact on patients.
and inherited immunodeficiencies, infectious
diseases, and genetic disorders. The current
basic and clinical research at St. Jude includes
work in gene therapy, bone marrow transplant,
chemotherapy, and many more.
Leaders of St. Jude and The American Lebanese
Syrian Associated Charities (ALSAC), the fundraising
arm of the St. Jude organization, are crucial players
in communicating the research conducted at
St. Jude. The hospital and ALSAC also have staff
dedicated to communicating within different
areas of the organization through publications
produced by scientific editors. The development of
partnerships with medical institutions and fund-
raising organizations to recruit support for key
programs is paramount. (St. Jude has a specialist
for handling each type of media, fundraising, and
physician referral communication). Key audiences
include patients--and their parents--physicians,
