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OCR for page 58
Guidebook 56 Communicating the Value of Transportation Research 1 Practice St. Jude Children's Research Hospital Best Context donors, and the general public. The mission of St. Jude Children's Research Hospital Communication Approach is to advance cures, and means of prevention, for pediatric catastrophic diseases through research Communication at St. Jude is centralized, but and treatment. Most importantly, St. Jude's goal compartmentalized. All communication initiates is to increase the survival rate of children suffering from St. Jude's main campus in Memphis, from these diseases. St. Jude welcomes referrals Tennessee; however, the hospital, fundraising from treating physicians of children and adolescents arm, and physician referral units all have their with newly diagnosed untreated or suspected own communication specialists who generate cancer; HIV infections; or certain hematologic, communication for their own unit. Each immunologic, or genetic diseases. Since the communication unit incorporates information to hospital is a research center, every child accepted is demonstrate the value of St. Jude research in nearly enrolled in a specific study or "protocol." Information every communication product created. gathered from these studies is used in developing Outcomes better treatments. The value of research is communicated in terms of Research efforts are directed toward understanding lives saved and the number of new and improved the molecular, genetic, and chemical bases of treatments through simple and easy-to-digest facts catastrophic diseases in children, identifying cures and updates. St. Jude facilitates frequent updates for such diseases, and promoting their prevention. focusing on the research results and their direct Research is focused specifically on cancers, acquired impact on patients. and inherited immunodeficiencies, infectious diseases, and genetic disorders. The current basic and clinical research at St. Jude includes work in gene therapy, bone marrow transplant, chemotherapy, and many more. Leaders of St. Jude and The American Lebanese Syrian Associated Charities (ALSAC), the fundraising arm of the St. Jude organization, are crucial players in communicating the research conducted at St. Jude. The hospital and ALSAC also have staff dedicated to communicating within different areas of the organization through publications produced by scientific editors. The development of partnerships with medical institutions and fund- raising organizations to recruit support for key programs is paramount. (St. Jude has a specialist for handling each type of media, fundraising, and physician referral communication). Key audiences include patients--and their parents--physicians,