Citizen organizations

Many states that have created state prevention plans derive their original proposals under the stimulation and leadership of a special task force, study group, or governor's panel, with prominent representation by members of the Developmental Disabilities Council or Association for Retarded Citizens. Such committees usually remain in effect even after the state's Office for Prevention is operational and serve a valuable watchdog function in a voluntary setting

and services for children with special health care needs. The programs of the Centers for Disease Control include injury control, lead poisoning prevention, childhood immunization, school health, and AIDS prevention. The new CDC Disabilities Prevention Program supports the planning, coordination, and evaluation of prevention services.

The Office of Human Development Services supports Head Start programs, state Developmental Disabilities Councils, and University Affiliated Programs for persons with developmental disabilities. The Health Care Financing Administration administers the federal contribution to Medicaid programs, which provide health care reimbursements for persons meeting state financial eligibility criteria.

Reimbursement for services in the Early Periodic Screening, Diagnosis, and Treatment Program is also managed by this agency.

Access to medical care and preventive services is an essential component of the prevention agenda. Persons who are socioeconomically disadvantaged need access to programs providing family planning information and comprehensive prenatal care. In addition, the private sector needs to be more active in programs to prevent developmental disabilities, as in the model to provide a "medical home" to children with disabilities that was developed by the Tennessee chapter of the American Academy of Pediatrics.

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