BOX 1-1 Statement of Task

An ad hoc committee will plan and conduct a public workshop on collecting sexual orientation and gender identity data in electronic health records. The workshop will feature invited presentations and facilitated discussions about current practices around sexual orientation and gender identity data collection, the challenges in collecting these data, and ways in which these challenges can be overcome.

Areas of focus for the workshop will include the clinical rationale behind collecting these data, standardized questions that can be used to collect these data, mechanisms for supporting providers and patients in the collection of these data, technical specifications involved in creating standards for sexual orientation and gender identity data collection and exchange, and policy considerations related to the Health Information Technology (HIT) Meaningful Use process being overseen by the Department of Health and Human Services (HHS).

The committee will develop the workshop agenda, select invited speakers and discussants, and moderate the discussions. Invited participants will include lesbian, gay, bisexual, and transgender (LGBT) health care consumer advocates, providers with experience working with LGBT populations, HIT vendors and other HIT specialists, health care administrators, and policy makers. A workshop summary will be prepared by a designated rapporteur in accordance with National Research Council policies and procedures.

information, and some hesitancy on the part of patients to disclose this information may be barriers to the collection of meaningful data on sexual orientation and gender identity.

As the next step in exploring this recommendation, an ad hoc committee was assembled to plan and conduct a public workshop on collecting sexual orientation and gender identity data in electronic health records (see Box 1-1). The workshop, held on October 12, 2012, featured invited presentations and facilitated discussions about current practices around sexual orientation and gender identity data collection, the challenges in collecting these data, and ways in which these challenges can be overcome.

ABOUT THIS SUMMARY

This document was prepared by rapporteurs Joe Alper, Monica N. Feit, and Jon Q. Sanders for the Board on the Health of Select Populations of the Institute of Medicine (IOM) as a factual summary of what occurred at the workshop Collecting Sexual Orientation and Gender Identity Data in Electronic Health Records. The workshop speakers and



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