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Collecting Sexual Orientation and Gender Identity Data in Electronic Health Records: Workshop Summary (2013)

Chapter: Appendix A: Workshop Agenda

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Suggested Citation:"Appendix A: Workshop Agenda." Institute of Medicine. 2013. Collecting Sexual Orientation and Gender Identity Data in Electronic Health Records: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/18260.
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Appendix A

Workshop Agenda

National Academy of Sciences Building
2101 Constitution Avenue, NW, Washington, DC

Friday, October 12, 2012

8:30-8:45

Welcome and Opening Remarks Ignatius Bau, Planning Committee Chair

8:45-9:25

Federal Perspective

 

Dr. Donald Moulds
  Acting Assistant Secretary for Planning and Evaluation
  Department of Health and Human Services

 

Dr. Sylvia Fisher
  Director, Office of Research and Evaluation

 

Dr. Yael Harris
 

Director, Office of Health Information Technology and Quality
  Health Resources and Services Administration
Page 56 Cite
Suggested Citation:"Appendix A: Workshop Agenda." Institute of Medicine. 2013. Collecting Sexual Orientation and Gender Identity Data in Electronic Health Records: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/18260.
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  Mr. Robert Tagalicod
  Director, Office of eHealth Standards and Services
  Centers for Medicare and Medicaid Services

9:25-9:50

Clinical Rationale for the Collection of Sexual Orientation and Gender Identity Data

 

      Dr. Harvey Makadon
        Clinical Professor of Medicine, Harvard Medical School

9:50-10:05

Break

10:05-12:00

Existing Practices
        Moderator: Harvey Makadon, Planning Committee

 

      Ms. Shane Snowdon
        Director, LGBT Health & Aging Program
        Human Rights Campaign Foundation

 

      Dr. John Knudsen
        Chief, LGBTI Practice Task Force, Mayo Clinic

 

      Dr. Ronald Copeland
 

President & Executive Medical Director, Ohio Permanente Medical Group

 

      Dr. Alex Gonzalez
        Medical Director, Fenway Health

 

      Dr. Jesse Ehrenfeld
 

Assistant Professor, Biomedical Informatics, Vanderbilt University

 

      Discussion
12:00-12:30

Supporting Providers in the Collection of Data Dr. Robin Weinick

12:30-1:15

Lunch Break
Page 57 Cite
Suggested Citation:"Appendix A: Workshop Agenda." Institute of Medicine. 2013. Collecting Sexual Orientation and Gender Identity Data in Electronic Health Records: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/18260.
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1:15-2:25 Developing Standardized Questions
        Panel moderator: Nancy Bates, Planning Committee

 

      Ms. JoAnne Keatley
 

Director, Center of Excellence for Transgender Health at University of California, San Francisco

 

      Dr. Kristen Miller
 

Director, Question Design Research Lab, National Center for Health Statistics

 

      Dr. David Grant
        Director, California Health Interview Survey

 

      Discussion

2:25-3:25

Technical Considerations
        Moderator: Ignatius Bau, Planning Committee Chair

 

      Dr. Edward Callahan
 

Professor, Family and Community Medicine, University of California, Davis, Health System

 

      Ms. Denise Rasmussen
        Clinical Informatics, Epic Systems Corporation

 

      Discussion

3:25-3:35

Break

3:35-4:30

Confidentiality and Privacy Concerns
        Moderator: Dan Kasprzyk, Planning Committee

 

      Ms. Sue McAndrew
 

Deputy Director, Health Information Privacy, Office for Civil Rights
        Department of Health and Human Services

 

      Ms. Deven McGraw
 

Director, Health Privacy Project, Center for Democracy & Technology

 

      Discussion
Page 58 Cite
Suggested Citation:"Appendix A: Workshop Agenda." Institute of Medicine. 2013. Collecting Sexual Orientation and Gender Identity Data in Electronic Health Records: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/18260.
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4:30-5:10 Supporting Patients in the Collection of Data
        Ms. Beverly Tillery
        Director, Community Education, Lambda Legal

5:10-5:30

Discussion and Comments
        Ignatius Bau, Planning Committee Chair
5:30 Adjourn
Page 55 Cite
Suggested Citation:"Appendix A: Workshop Agenda." Institute of Medicine. 2013. Collecting Sexual Orientation and Gender Identity Data in Electronic Health Records: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/18260.
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Suggested Citation:"Appendix A: Workshop Agenda." Institute of Medicine. 2013. Collecting Sexual Orientation and Gender Identity Data in Electronic Health Records: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/18260.
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Suggested Citation:"Appendix A: Workshop Agenda." Institute of Medicine. 2013. Collecting Sexual Orientation and Gender Identity Data in Electronic Health Records: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/18260.
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Suggested Citation:"Appendix A: Workshop Agenda." Institute of Medicine. 2013. Collecting Sexual Orientation and Gender Identity Data in Electronic Health Records: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/18260.
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Collecting Sexual Orientation and Gender Identity Data in Electronic Health Records: Workshop Summary reviews the statement of task set to the committee which required them to collect sexual orientation and gender identity data in electronic health records. This report summarizes the invited presentations and facilitated discussions about current practices around sexual orientation and gender identity data collection, the challenges in collecting these data, and ways in which these challenges can be overcome.

Areas of focus for the workshop include the clinical rationale behind collecting these data, standardized questions that can be used to collect these data, mechanisms for supporting providers and patients in the collection of these data, technical specifications involved in creating standards for sexual orientation and gender identity data collection and exchange, and policy considerations related to the health information technology (HIT) Meaningful Use process being overseen by the Department of Health and Human Services. This report summarizes the workshop agenda, select invited speakers and discussants, and moderate the discussions. Invited participants will include lesbian, gay, bisexual, and transgender (LGBT) health care consumer advocates, providers with experience working with LGBT populations, HIT vendors and other HIT specialists, health care administrators, and policy makers.

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