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Appendix A Workshop Agenda National Academy of Sciences Building 2101 Constitution Avenue, NW, Washington, DC Friday, October 12, 2012 8:30-8:45 Welcome and Opening Remarks Planning Committee Chair Ignatius Bau, 8:45-9:25 Federal Perspective Dr. Donald Moulds Acting Assistant Secretary for Planning and Evaluation Department of Health and Human Services Dr. Sylvia Fisher Director, Office of Research and Evaluation Dr. Yael Harris Director, Office of Health Information Technology and Quality Health Resources and Services Administration 55

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56 COLLECTING SEXUAL ORIENTATION AND GENDER IDENTITY DATA Mr. Robert Tagalicod Director, Office of eHealth Standards and Services Centers for Medicare and Medicaid Services 9:25-9:50 Clinical Rationale for the Collection of Sexual Orientation and Gender Identity Data Makadon Dr. Harvey Clinical Professor of Medicine, Harvard Medical School 9:50-10:05 Break 10:05-12:00 Existing Practices Harvey Makadon, Planning Committee Moderator: Ms. Shane Snowdon Director, LGBT Health & Aging Program Human Rights Campaign Foundation Dr. John Knudsen Chief, LGBTI Practice Task Force, Mayo Clinic Dr. Ronald Copeland President & Executive Medical Director, Ohio Permanente Medical Group Dr. Alex Gonzalez Medical Director, Fenway Health Dr. Jesse Ehrenfeld Assistant Professor, Biomedical Informatics, Vanderbilt University Discussion 12:00-12:30 Supporting Providers in the Collection of Data Dr. Robin Weinick Associate Director, RAND Health 12:30-1:15 Lunch Break

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APPENDIX A 57 1:15-2:25 Developing Standardized Questions Panel moderator: Nancy Bates, Planning Committee Ms. JoAnne Keatley Director, Center of Excellence for Transgender Health at University of California, San Francisco Dr. Kristen Miller Director, Question Design Research Lab, National Center for Health Statistics Dr. David Grant Director, California Health Interview Survey Discussion 2:25-3:25 Technical Considerations Ignatius Bau, Planning Committee Chair Moderator: Dr. Edward Callahan Professor, Family and Community Medicine, University of California, Davis, Health System Ms. Denise Rasmussen Clinical Informatics, Epic Systems Corporation Discussion 3:25-3:35 Break 3:35-4:30 Confidentiality and Privacy Concerns Dan Kasprzyk, Planning Committee Moderator: Ms. Sue McAndrew Deputy Director, Health Information Privacy, Office for Civil Rights Department of Health and Human Services Ms. Deven McGraw Director, Health Privacy Project, Center for Democracy & Technology Discussion

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58 COLLECTING SEXUAL ORIENTATION AND GENDER IDENTITY DATA 4:30-5:10 Supporting Patients in the Collection of Data Ms. Beverly Tillery Director, Community Education, Lambda Legal 5:10-5:30 Discussion and Comments Ignatius Bau, Planning Committee Chair 5:30 Adjourn