National Academies Press: OpenBook

Collecting Sexual Orientation and Gender Identity Data in Electronic Health Records: Workshop Summary (2013)

Chapter: Appendix C: Biographical Sketches of Workshop Speakers

« Previous: Appendix B: Registered Workshop Attendees
Suggested Citation:"Appendix C: Biographical Sketches of Workshop Speakers." Institute of Medicine. 2013. Collecting Sexual Orientation and Gender Identity Data in Electronic Health Records: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/18260.
×

Appendix C

Biographical Sketches of Workshop Speakers

Edward J. Callahan, Ph.D., is the Associate Dean for Academic Personnel & Professor of Family and Community Medicine, University of California, Davis, School of Medicine. Since 2009, Dr. Callahan has led the Task Force for Inclusion of Sexual Orientation and Gender Identity in the Electronic Health Record at the University of California, Davis. As a scholar, Dr. Callahan has studied physician-patient interaction and health outcomes and as an educator he developed educational efforts in Culture in Medicine and early efforts to understand and reduce health care disparities.

Ronald L. Copeland, M.D., FACS, is President and Executive Medical Director for the Ohio Permanente Medical Group. Dr. Copeland is the President and Executive Medical Director of the Ohio Permanente Medical Group, with executive responsibility for all clinical care services provided to Ohio Kaiser Permanente members. He is a Board Certified General Surgeon, a Fellow of the American College of Surgeons, and continues a limited practice. After 15 years in this role, effective January 1, 2013, Dr. Copeland will move from Cleveland, Ohio, to the California Bay area to become Senior Vice President, National Diversity Strategy and Policy and Chief Diversity Officer for Kaiser Foundation Hospitals and Kaiser Foundation Health Plan, Inc. out of the Program Office in Oakland, California. A native of Rochester, New York, Dr. Copeland earned his B.A. degree from Dartmouth College and his medical degree from the University of Cincinnati Medical College. He completed his residency in General

Suggested Citation:"Appendix C: Biographical Sketches of Workshop Speakers." Institute of Medicine. 2013. Collecting Sexual Orientation and Gender Identity Data in Electronic Health Records: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/18260.
×

Surgery at the State University of New York, Upstate Medical Center in Syracuse. He joined Kaiser Permanente in 1988 after a 6-year honorable tour of duty in the U.S. Air Force Medical Corps. Dr. Copeland serves on several Kaiser Permanente national committees, including Co-Chair, Kaiser Permanente National Diversity Council, KP Institute for Culturally Competent Care. Additionally, he serves on the boards of several not-for-profit community organizations, including the Cleveland Museum of Natural History, The Cleveland Free Clinic, and the Minority Organ Tissue and Transplant Education Program (MOTTEP, Chairman). He has previously served on the Greater Cleveland and National American Heart Association Boards and currently serves as a Power to End Stroke Ambassador, as well as a member of the AHA Diversity Leadership Committee. He is a frequent lecturer on leadership development, culturally competent care, and community health issues.

Jesse M. Ehrenfeld, M.D., M.P.H., is an Assistant Professor at University Medical School in the Departments of Anesthesiology and Biomedical Informatics. Dr. Ehrenfeld is a board-certified anesthesiologist with an extensive background in clinical research, advocacy, and health care policy. He serves as Director of the Center for Evidence-Based Anesthesia, Director of the Perioperative Data Systems Research Group, and Medical Director for Perioperative Quality at Vanderbilt University Medical School. He is also a co-director of the Vanderbilt Program for LGBTI Health, and a Course Director for both the School of Medicine’s Continuity Clinical Experience and the immersion course titled “Sex, Sexuality, and Sexual Health.” Dr. Ehrenfeld’s research and policy interests include biomedical informatics and the application of information technology to increase patient safety and reduce health disparities. His research has been funded by NIH, the Anesthesia Patient Safety Foundation, and the Foundation for Anesthesia Education and Research. His work has led to the presentation of more than 100 abstracts at national/ international meetings and the publication of dozens of manuscripts in high-impact journals. He has co-authored 10 clinical textbooks. For the past decade, Dr. Ehrenfeld has advocated on behalf of LGBTI patients, students, and trainees in his role as Chair of the Massachusetts Committee on LGBT Health, Chair of the Massachusetts General Hospital LGBT Employee Resource Group, a member of the Board Committee on Quality at Fenway Community Health Center, and more recently, as co-director of the Vanderbilt University Program for LGBTI Health and a member of the Association of American Medical College’s LGBTI Liaison Group. Dr. Ehrenfeld holds an M.P.H. from the Harvard School of Public Health, and an M.D. from The University of Chicago. He completed residency and served as informatics fellowship director for the Department of Anesthesiology

Suggested Citation:"Appendix C: Biographical Sketches of Workshop Speakers." Institute of Medicine. 2013. Collecting Sexual Orientation and Gender Identity Data in Electronic Health Records: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/18260.
×

at the Massachusetts General Hospital in Boston. Dr. Ehrenfeld has received numerous teaching awards and serves on several distinguished national committees including the American Society of Anesthesiologists Standards & Practice Parameters Committee, the New England Journal of Medicine Publications Committee, and the American Medical Association Public Health Committee. Dr. Ehrenfeld, a Lieutenant Commander in the U.S. Navy, also serves as a medical reserve officer.

Sylvia Fisher, Ph.D., is the Director in the Office of Research and Evaluation in the Office of Planning, Analysis and Evaluation, at the Health Resources and Services Administration (HRSA). In her position, Dr. Fisher manages evaluations of diverse federal health programs about health care workforce, maternal and child health, and primary health care services. Formerly a research psychologist at the Bureau of Labor Statistics, Office of Survey Methods Research, she specialized in the application of cognitive methods to improve the quality of large government surveys. As Director of Evaluation in the Child, Adolescent and Family Branch at SAMHSA from 2004 to 2010, Sylvia was project officer for the national evaluation of the systems of care program. She has been a counselor and psychological evaluator with children and adults with diverse clinical needs; has taught graduate and undergraduate courses in measurement, evaluation, systems change, and psychological assessment at several higher education institutions; and has presented and published in numerous academic and professional venues. Her extensive efforts to improve the health and well-being of LGBT populations include serving on both the Healthy People 2020 Committee on LGBT populations and the National Action Alliance on Suicide Prevention LGBT Task Force. While at SAMHSA, she launched and chaired a national workgroup to address the needs of youth in systems of care who are LGBT and their families. She received the Leadership Award for Outstanding Volunteer Service from the Lesbian Services Program of the Whitman-Walker Clinic in Washington, DC. Sylvia is lead editor of the recently published volume Improving Emotional and Behavioral Outcomes for LGBT Youth: A Guide for Professionals.

Alex Gonzalez, M.D., M.P.H., is the Medical Director at Fenway Health in Boston, Massachusetts. As Medical Director of Fenway Health, Alex oversees a staff of more than 50 physicians, physician assistants, nurse practitioners, nurses, medical assistants, and clerical staff in the delivery of medical care to Fenway’s approximately 17,000 patients. Programs within the Medical Department include outpatient primary care; specialty clinics in alternative insemination, nutrition, diabetes, HIV, pulmonology, podiatry, general infectious disease, transgender health, women’s health,

Suggested Citation:"Appendix C: Biographical Sketches of Workshop Speakers." Institute of Medicine. 2013. Collecting Sexual Orientation and Gender Identity Data in Electronic Health Records: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/18260.
×

and male and female colposcopy; complementary therapy services in massage, chiropractic, and acupuncture; nursing programs such as team-based nursing, the weekly hepatitis immunization and STD clinic, and the patient triage line; and community-based programs such as the biannual mammogram van. Alex obtained a bachelor of science degree in biology from Tulane University and a combined medical and public health degree from the University of Miami Miller School of Medicine. He completed his internship and residency training in Primary Care Internal Medicine at Beth Israel Deaconess Medical Center. He is currently an Instructor of Medicine at Harvard Medical School, and he has worked at Fenway since 2005.

David Grant, Ph.D., is the Director of the California Health Interview Survey (CHIS) at the University of California, Los Angeles, Center for Health Policy Research. Dr. Grant joined the CHIS team in 2001 and became project director in 2006. He is responsible for all aspects of CHIS, including the planning, data collection, and dissemination phases of CHIS. For 20 years, Dr. Grant has been involved in applied social research at academic and public agencies. In addition to population health and survey methodology, his research has focused on urban poverty and demography. Dr. Grant received his undergraduate degree at the University of Michigan and his master’s and doctorate degrees (1998) in sociology at UCLA.

Yael Harris, Ph.D., MHS, is the Director in the Office of Health IT & Quality at the Health Resources and Services Administration (HRSA). The Office of Health IT & Quality provides technical assistance, support, and leadership across the agency to support improved care for safety net populations through the effective use of health information technology. Prior to her arrival at HRSA, Dr. Harris led the Office of Evaluation within the Office of the National Coordinator for Health Information Technology (ONC), initiating and overseeing the evaluation of ONC’s grant programs to support and advance the adoption of electronic health records. She also led ONC’s national measurement of EHR adoption in both ambulatory and inpatient settings. Dr. Harris currently co-chairs a cross federal Telehealth workgroup and a cross federal mobile health workgroup and represents the safety net community on the Health IT Policy Committee’s Meaningful Use workgroup where she focuses on quality improvement and population health. Prior to joining the ONC, Dr. Harris worked for the Centers for Medicare & Medicaid Services where she led efforts on measurement and quality improvement in long-term and post acute care. Before joining the federal government, Dr. Harris worked for a Med-PAC, a congressional advisory body, Georgetown University’s Institute for Health Care Policy & Research, and served as an adviser to senior

Suggested Citation:"Appendix C: Biographical Sketches of Workshop Speakers." Institute of Medicine. 2013. Collecting Sexual Orientation and Gender Identity Data in Electronic Health Records: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/18260.
×

staff on the House Ways and Means Subcommittee on Health. She holds a doctorate in public policy from the University of Maryland and a master’s degree in health sciences from Johns Hopkins University. Dr. Harris is an associate professor at the Erickson School of Aging where she teaches courses on technology and aging services.

Joanne Keatley, MSW, is the Director at the Center of Excellence for Transgender Health, University of California, San Francisco (UCSF). JoAnne was born in Mexico City and became a U.S. citizen in 1986. Ms. Keatley received a master of social welfare degree from the University of California, Berkeley. Beginning at CAPS in 1999, JoAnne directed numerous NIH transgender research projects, developed and directed transgender intervention projects, and is a recognized international expert in transgender health and HIV issues. Currently she directs the Center of Excellence (CoE) for Transgender Health and is also the Minority AIDS Initiative Program Manager at the Pacific AIDS Education and Training Center (PAETC) at UCSF. JoAnne has served on the UCSF Chancellors Advisory committee on LGBT (CACLGBT) issues since 2000 and leads the CACLGBT transgender subcommittee. In addition, she has consulted on transgender health at the Centers for Disease Control and Prevention (CDC), Health Resources and Services Administration (HRSA), and the Substance Abuse and Mental Health Services Administration (SAM-HSA). In 2010, she was invited to speak on transgender issues at the White House Office of National AIDS Policy (ONAP) meeting on HIV and Aging. As Director of the CoE for Transgender Health, Ms. Keatley is responsible for overseeing all aspects of the CoE scope of work. She develops the infrastructure to support successful and sustainable transgender programs, provides day-to-day leadership of CoE staff, oversees the National Advisory Board, supervises the design and implementation of all educational and marketing materials, identifies potential funding sources, and assures the quality of all deliverables.

John Knudsen, M.D., is the Chair of the LGBTI Practice Task Force at the Mayo Clinic. The Mayo Clinic LGBTI Practice Task Force which was formed in January 2012 by the Mayo Clinic Rochester Clinical Practice leadership to research, assess, and develop recommendations that facilitate building and sustaining an inclusive and welcoming environment for LGBTI patients and their families who seek medical care from a Mayo Clinic facility. This effort is coordinated with the Mayo Clinic Office of Diversity and Inclusion to address specific strategic goals, including increasing patient diversity and identifying and eliminating health disparities while becoming a national leader in the science and promotion of health equity. The effort was initiated following a presentation from

Suggested Citation:"Appendix C: Biographical Sketches of Workshop Speakers." Institute of Medicine. 2013. Collecting Sexual Orientation and Gender Identity Data in Electronic Health Records: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/18260.
×

the LGBTI Mayo Clinic Employee Resource Group to clinical practice leadership identifying specific patient care related issues encountered by Mayo Clinic LGBTI employees and their families while seeking care at Mayo Clinic. Dr. Knudsen’s professional background includes Assistant Professor of Radiology, Mayo Clinic College of Medicine; Staff Radiologist at Mayo Clinic for 21 years with subspecialty practice focus in Ultrasound and Abdominal Imaging; and Former Associate Chair for Clinical Practice in the Department of Radiology at Mayo Clinic Rochester, Minnesota. He has spent 12 years at Mayo Clinic in Rochester, Minnesota (2000-present), and 9 years at Mayo Clinic in Jacksonville, Florida (1991-2000). Dr. Knudsen completed his residency training at Mayo Clinic in Rochester, Minnesota (1986-1990) and Abdominal Imaging fellowship at Duke University Medical Center (1990-1991).

Harvey J. Makadon, M.D., is Clinical Professor of Medicine at Harvard Medical School and Director of the National LGBT Health Education Center at The Fenway Institute, a division of Fenway Health, Boston. He is a member of the Division of General Medicine at Beth Israel Medical Center in Boston, where he has had a primary care practice and served as Vice President of Medical Affairs. He is currently the LGBT Advisor in Harvard Medical School’s Office for Recruitment and Multi-cultural Affairs. Dr. Makadon is the lead editor of The Fenway Guide to Lesbian, Gay, Bisexual, and Transgender Health, published by the American College of Physicians in 2008. In addition to writing numerous articles and chapters related to LGBT health, he served on the Committee on LGBT Health Issues and Research Gaps and Opportunities of the Institute of Medicine of the National Academy of Sciences for The Health of Lesbian, Gay, Bisexual, and Transgender People: Building a Foundation for Better Understanding in March 2011. He spoke at a White House Conference on HIV and the LGBT Community in April 2012. Dr. Makadon was the recipient of the Community Service Award (2000) and the Harold Amos Diversity Award (2008) at Harvard Medical School; an Achievement Award from the Gay and Lesbian Medical Association; and the Michael Tye Leadership Award (2004) from Fenway Health.

Sue McAndrew, J.D., is the Deputy Director for Health Information Privacy at the Office for Civil Rights (OCR) in the U.S. Department of Health and Human Services (HHS). As Deputy Director, Ms. McAndrew has responsibility for implementing and enforcing the Privacy and Security Rules issued pursuant to the Health Insurance Portability and Accountability Act of 1996 (HIPAA). She also has the responsibility for the Health Information Technology for Economic and Clinical Health Act of 2009 (HITECH) that sets forth a plan for promoting health information technology

Suggested Citation:"Appendix C: Biographical Sketches of Workshop Speakers." Institute of Medicine. 2013. Collecting Sexual Orientation and Gender Identity Data in Electronic Health Records: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/18260.
×

and electronic health information exchange to improve quality of care and establish a foundation for health care reform. Ms. McAndrew has worked primarily on the HIPAA Privacy Rule for HHS since May 2000 and is the senior adviser to the director of OCR on health information privacy and technology matters. In 2006, the Secretary of HHS delegated to OCR the responsibility for enforcement of the confidentiality protections for patient safety work product under the Patient Safety and Quality Improvement Act of 2005 (PSQIA); in May 2008, the Genetic Information Nondiscrimination Act (GINA) that prohibits most health plans from using or disclosing genetic information for underwriting purposes was added; and in July 2009, responsibility for the HIPAA Security Rule was transferred from CMS to OCR. The HIP Division leads these new enforcement efforts within OCR. Ms. McAndrew has more than 20 years of federal government experience. Ms. McAndrew received her J.D. from Georgetown University Law Center and, prior to joining HHS, practiced law in the District of Columbia, including 12 years at Wilmer, Cutler & Pickering (now WilmerHale).

Deven McGraw, J.D., is the Director of the Health Privacy Project at the Center for Democracy & Technology. Ms. McGraw is active in efforts to advance the adoption and implementation of health information technology and electronic health information exchange to improve health care. She was one of three persons appointed by Kathleen Sebelius, the Secretary of the U.S. Department of Health and Human Services (HHS), to serve on the Health Information Technology (HIT) Policy Committee, a federal advisory committee established in the American Recovery and Reinvestment Act of 2009. She co-chairs the Committee’s Privacy and Security “Tiger Team” and serves as a member of its Meaningful Use, Information Exchange, and Strategic Plan Workgroups. She also served on two key workgroups of the American Health Information Community (AHIC), the federal advisory body established by HHS in the Bush administration to develop recommendations on how to facilitate use of health information technology to improve health. Specifically, she co-chaired the Confidentiality, Privacy, and Security Workgroup and was a member of the Personalized Health Care Workgroup. She also served on the Policy Steering Committee of the eHealth Initiative and now serves on its Leadership Council. She is also on the Steering Group of the Markle Foundation’s Connecting for Health multi-stakeholder initiative. Ms. McGraw has a strong background in health care policy. Prior to joining CDT, Ms. McGraw was the Chief Operating Officer of the National Partnership for Women & Families, providing strategic direction and oversight for all of the organization’s core program areas, including the promotion of initiatives to improve health care quality. Ms. McGraw also was an associate in

Suggested Citation:"Appendix C: Biographical Sketches of Workshop Speakers." Institute of Medicine. 2013. Collecting Sexual Orientation and Gender Identity Data in Electronic Health Records: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/18260.
×

the public policy group at Patton Boggs, LLP, and in the health care group at Ropes & Gray. She also served as Deputy Legal Counsel to the Governor of Massachusetts and taught in the Federal Legislation Clinic at the Georgetown University Law Center. Ms. McGraw graduated magna cum laude from the University of Maryland. She earned her J.D., magna cum laude, and her L.L.M. from Georgetown University Law Center and was Executive Editor of the Georgetown Law Journal. She also has a master of public health from Johns Hopkins School of Hygiene and Public Health.

Kristen Miller, Ph.D., is the Director at the Question Design Research Laboratory, National Center for Health Statistics (NCHS), at the CDC. Dr. Miller is a senior methodologist whose writings have focused on question comparability, including question design and equivalence for lower SES respondents and the improvement of evaluation methods for cross-cultural and cross-national testing studies. Through her tenure at NCHS, she has led collaborative international testing projects with collaborators including the European Social Survey, the World Bank, the World Health Organization, and the United Nations. Dr. Miller holds a Ph.D. in Sociology from the University of Delaware.

Don Moulds, Ph.D., is the Acting Assistant Secretary for Planning and Evaluation at the U.S. Department of Health and Human Services. In August 2012, Don Moulds assumed the role of Acting Assistant Secretary for Planning and Evaluation at the U.S. Department of Health and Human Services after serving as Principal Deputy Assistant Secretary since July 2009. Dr. Moulds is currently the Department’s liaison to the U.S. Interagency Council on Homelessness and to the White House on the President’s Strong Cities, Strong Communities initiative. He works closely with the Department of Housing and Urban Development on numerous initiatives affecting common target populations, including homeless individuals and families, and is overseeing multiple case studies and demonstrations aimed at identifying successful interventions for homelessness. He is currently overseeing the development of the National Strategy to End Alzheimer’s Disease, and is a member of the Federal Advisory Council on Alzheimer’s Research, Care, and Services. Prior to becoming Principal Deputy Assistant Secretary, Dr. Moulds served as Vice President for the California Medical Association’s Center for Medical and Regulatory Policy. In that capacity, he oversaw the development of the association’s health policy initiatives, guided its positions on legislation, and oversaw all of its regulatory work. From 2004 through 2007, Dr. Moulds was the director of the Senate Office of Research, the bipartisan research arm of the California State Senate. There he was responsible for developing the Senate’s research agenda on everything from health care to water

Suggested Citation:"Appendix C: Biographical Sketches of Workshop Speakers." Institute of Medicine. 2013. Collecting Sexual Orientation and Gender Identity Data in Electronic Health Records: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/18260.
×

policy, overseeing the Senate’s policy-related publications, and managing the Senate’s relations with the federal government. From 1998 through 2004, Dr. Moulds served as Principal Consultant to Senate President Pro Tempore, John Burton, and was the lead staffer in the Senate on numerous issues, including insurance, health system reform, and select labor issues. Dr. Moulds has served on numerous boards and commissions, including the State Compensation Insurance Fund Board, the Advisory Board of the California Health Policy Research Council, the Advisory Board of the Sacramento Campus of the University of Southern California, the Advisory Committee of the Workers Compensation Research Institute, the Steering Committee of the University of California’s Policy Research Center, and the State of California Health Insurance Portability and Accountability Act Implementation Advisory Board. He holds a B.A. degree from Bates College and M.A. and Ph.D. degrees in philosophy from the University of Illinois. He has taught philosophy and ethics courses at the University of Illinois, Harvard University, and California State University, Sacramento.

Denise Rasmussen, R.N., is a nurse on the clinical informatics team at Epic. Her nursing background is in pediatrics and her background with Epic is in implementation. She has been with Epic for 10 years and has implemented the inpatient software at a variety of organizations, including Kaiser Permanente and the Cleveland Clinic. One of her many roles is to work with the development team on driving the future of the applications.

Shane Snowdon works in on the LGBT Health & Aging Program at the Human Rights Campaign. The Human Rights Campaign, which administers the national Healthcare Equality Index for hospitals and other facilities, is the largest LGBT organization in the United States. Shane previously founded and led the Center for LGBT Health and Equity at the University of California, San Francisco, for 14 years the nation’s only LGBT office in a health care or health education setting. She has provided LGBT health training and consulting for hundreds of hospitals, health professional schools, and other health organizations throughout the country. She has also written extensively on LGBT health, serving as Project Adviser for The Joint Commission’s LGBT Field Guide (2011) and as lead author of Recommendations for LGBT Equity & Inclusion in Health Professions Education (2012). Shane has designed and convened numerous LGBT health meetings, including the annual LGBTQI Health Forum for Health Professional Students and the National Summit on LGBT Concerns in Medical Education for faculty and administrators. She also serves on the boards of the National LGBT Health Coalition, the Pacific AIDS

Suggested Citation:"Appendix C: Biographical Sketches of Workshop Speakers." Institute of Medicine. 2013. Collecting Sexual Orientation and Gender Identity Data in Electronic Health Records: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/18260.
×

Education & Training Center, and the Alliance Health Project. Shane’s groundbreaking work has received extensive recognition, including the Health Achievement Award of the Gay & Lesbian Medical Association, the Transgender Law Center Ally Award, the KQED Local Hero Award, and the University of California Award for Exceptional University Service and Award for GLBT Leadership.

Robert Tagalicod is the Director of the Office of eHealth Standards and Services, at the Centers for Medicare and Medicaid Services and its Senior Agency Official for Privacy. In this capacity, he leads and directs a multi-billion-dollar effort—the Medicare and Medicaid Electronic Health Records (EHRs) Incentive Program—to promote the adoption and meaningful use of EHRs in the United States as part of health care transformation: better care, better health, at lower cost without compromising quality. In addition, he oversees the implementation of Administrative Simplification (i.e., Operating Rules for HIPAA Transactions), including ICD-10. Previously, Rob was the Deputy Director and Acting Director of CMS’s Office of Communications and also served as Special Assistant in the Office of the Administrator, assisting with oversight and reporting on key ARRA initiatives such as HITECH, Prevention, and Comparative Effectiveness Research. Rob brings his 20+ years of management practice in the areas of health policy, program operations, communications, and finance, as well as his experience in project and performance management of several health initiatives for state and county health systems in California and the University of California, San Francisco.

Beverly Tillery is the Director of Community Education and Advocacy at Lambda Legal. Lambda Legal is the oldest and largest national legal organization committed to achieving full recognition of the civil rights of lesbians, gay men, bisexuals, transgender people, and people with HIV. Tillery coordinates Lambda Legal’s education and outreach work that actively engages the LGBT community and its allies in the ongoing fight for equality and justice. Through community forums, educational programs, and by building relationships with other organizations, Lambda Legal seeks to build a greater understanding of the issues it addresses through its litigation. Lambda Legal informs people about LGBT issues and rights and then gives them the tools to take individual and collective action to gain full equality of LGBT people and people with HIV in our society. Tillery has dedicated the past 15 years of her career to fighting all forms of oppression and working for social and economic justice through community-based direct action organizing, labor organizing, human rights and political advocacy, and popular education. Prior to joining the staff at Lambda Legal, she coordinated the Immigrant Worker Rights

Suggested Citation:"Appendix C: Biographical Sketches of Workshop Speakers." Institute of Medicine. 2013. Collecting Sexual Orientation and Gender Identity Data in Electronic Health Records: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/18260.
×

Project at the New York Coalition for Occupational Safety and Health. Tillery also worked as the Outreach Coordinator at Amnesty International where she developed a national field organizing program, and at the Service Employees International Union where she lead organizing campaigns to help health care workers form a union. She has designed and facilitated hundreds of trainings and workshops on a variety of subjects including organizing skills. She has also served as the President of the Board of the National Organizer’s Alliance, a national organization of social justice organizers.

Robin M. Weinick, Ph.D., is the Associate Director at RAND Health. Dr. Weinick’s specific areas of responsibility include RAND Health’s contract business line, managing policy and processes related to bid decisions, procurement, and administration of government and nonprofit contracts, with an emphasis on contracts with the Department of Health and Human Services. She also plays a key role in research staff recruitment and development, as well as business planning. As RAND Health’s senior leader on the East Coast, she frequently represents the unit in discussions with key contacts in government agencies, nonprofits, and nongovernmental entities based in the National Capitol region. Dr. Weinick is also a Senior Social Scientist at RAND. Her research focuses on improving the quality of medical care in the United States, with emphasis on developing and evaluating practical tools for use in the health care system, the development and use of measures for monitoring the status of health care, and supporting their use in driving both health system improvement and public policy initiatives. Dr. Weinick brings an extensive background in a wide variety of issues related to racial/ethnic disparities, including projects designed to provide guidance to the Commonwealth of Massachusetts regarding implementing disparities provisions of its Medicaid pay-for-performance program, and studies of the impact of pay-for-performance on disparities, and of quality improvement efforts related to reducing disparities in small physician practices. A previous project resulted in lead authorship of Creating Equity Reports: A Guide for Hospitals, which provides tools to help hospitals assess and understand racial/ethnic disparities in their performance measures. Dr. Weinick has played a national role in advancing health care provider collection of race/ethnicity data from patients, and has conducted extensive training of hospital registrars in this area. Prior to joining RAND, Dr. Weinick was a Senior Scientist in the Institute for Health Policy at Massachusetts General Hospital and an Assistant Professor of Medicine at Harvard Medical School. She has a 10-year history of federal service in a variety of positions at the Agency for Healthcare Research and Quality, and holds a Ph.D. from the Johns Hopkins University School of Public Health.

Suggested Citation:"Appendix C: Biographical Sketches of Workshop Speakers." Institute of Medicine. 2013. Collecting Sexual Orientation and Gender Identity Data in Electronic Health Records: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/18260.
×

This page is blank

Suggested Citation:"Appendix C: Biographical Sketches of Workshop Speakers." Institute of Medicine. 2013. Collecting Sexual Orientation and Gender Identity Data in Electronic Health Records: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/18260.
×
Page 63
Suggested Citation:"Appendix C: Biographical Sketches of Workshop Speakers." Institute of Medicine. 2013. Collecting Sexual Orientation and Gender Identity Data in Electronic Health Records: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/18260.
×
Page 64
Suggested Citation:"Appendix C: Biographical Sketches of Workshop Speakers." Institute of Medicine. 2013. Collecting Sexual Orientation and Gender Identity Data in Electronic Health Records: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/18260.
×
Page 65
Suggested Citation:"Appendix C: Biographical Sketches of Workshop Speakers." Institute of Medicine. 2013. Collecting Sexual Orientation and Gender Identity Data in Electronic Health Records: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/18260.
×
Page 66
Suggested Citation:"Appendix C: Biographical Sketches of Workshop Speakers." Institute of Medicine. 2013. Collecting Sexual Orientation and Gender Identity Data in Electronic Health Records: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/18260.
×
Page 67
Suggested Citation:"Appendix C: Biographical Sketches of Workshop Speakers." Institute of Medicine. 2013. Collecting Sexual Orientation and Gender Identity Data in Electronic Health Records: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/18260.
×
Page 68
Suggested Citation:"Appendix C: Biographical Sketches of Workshop Speakers." Institute of Medicine. 2013. Collecting Sexual Orientation and Gender Identity Data in Electronic Health Records: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/18260.
×
Page 69
Suggested Citation:"Appendix C: Biographical Sketches of Workshop Speakers." Institute of Medicine. 2013. Collecting Sexual Orientation and Gender Identity Data in Electronic Health Records: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/18260.
×
Page 70
Suggested Citation:"Appendix C: Biographical Sketches of Workshop Speakers." Institute of Medicine. 2013. Collecting Sexual Orientation and Gender Identity Data in Electronic Health Records: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/18260.
×
Page 71
Suggested Citation:"Appendix C: Biographical Sketches of Workshop Speakers." Institute of Medicine. 2013. Collecting Sexual Orientation and Gender Identity Data in Electronic Health Records: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/18260.
×
Page 72
Suggested Citation:"Appendix C: Biographical Sketches of Workshop Speakers." Institute of Medicine. 2013. Collecting Sexual Orientation and Gender Identity Data in Electronic Health Records: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/18260.
×
Page 73
Suggested Citation:"Appendix C: Biographical Sketches of Workshop Speakers." Institute of Medicine. 2013. Collecting Sexual Orientation and Gender Identity Data in Electronic Health Records: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/18260.
×
Page 74
Collecting Sexual Orientation and Gender Identity Data in Electronic Health Records: Workshop Summary Get This Book
×
Buy Paperback | $37.00 Buy Ebook | $29.99
MyNAP members save 10% online.
Login or Register to save!
Download Free PDF

Collecting Sexual Orientation and Gender Identity Data in Electronic Health Records: Workshop Summary reviews the statement of task set to the committee which required them to collect sexual orientation and gender identity data in electronic health records. This report summarizes the invited presentations and facilitated discussions about current practices around sexual orientation and gender identity data collection, the challenges in collecting these data, and ways in which these challenges can be overcome.

Areas of focus for the workshop include the clinical rationale behind collecting these data, standardized questions that can be used to collect these data, mechanisms for supporting providers and patients in the collection of these data, technical specifications involved in creating standards for sexual orientation and gender identity data collection and exchange, and policy considerations related to the health information technology (HIT) Meaningful Use process being overseen by the Department of Health and Human Services. This report summarizes the workshop agenda, select invited speakers and discussants, and moderate the discussions. Invited participants will include lesbian, gay, bisexual, and transgender (LGBT) health care consumer advocates, providers with experience working with LGBT populations, HIT vendors and other HIT specialists, health care administrators, and policy makers.

  1. ×

    Welcome to OpenBook!

    You're looking at OpenBook, NAP.edu's online reading room since 1999. Based on feedback from you, our users, we've made some improvements that make it easier than ever to read thousands of publications on our website.

    Do you want to take a quick tour of the OpenBook's features?

    No Thanks Take a Tour »
  2. ×

    Show this book's table of contents, where you can jump to any chapter by name.

    « Back Next »
  3. ×

    ...or use these buttons to go back to the previous chapter or skip to the next one.

    « Back Next »
  4. ×

    Jump up to the previous page or down to the next one. Also, you can type in a page number and press Enter to go directly to that page in the book.

    « Back Next »
  5. ×

    Switch between the Original Pages, where you can read the report as it appeared in print, and Text Pages for the web version, where you can highlight and search the text.

    « Back Next »
  6. ×

    To search the entire text of this book, type in your search term here and press Enter.

    « Back Next »
  7. ×

    Share a link to this book page on your preferred social network or via email.

    « Back Next »
  8. ×

    View our suggested citation for this chapter.

    « Back Next »
  9. ×

    Ready to take your reading offline? Click here to buy this book in print or download it as a free PDF, if available.

    « Back Next »
Stay Connected!