Design of the
National Children’s Study

A Workshop Summary

Nancy Kirkendall, Rapporteur

Committee on National Statistics

Division of Behavioral and Social Sciences and Education


Board on Children, Youth, and Families

Institute of Medicine

NATIONAL RESEARCH COUNCIL AND

INSTITUTE OF MEDICINE

OF THE NATIONAL ACADEMIES

THE NATIONAL ACADEMIES PRESS

Washington, D.C.

www.nap.edu



The National Academies | 500 Fifth St. N.W. | Washington, D.C. 20001
Copyright © National Academy of Sciences. All rights reserved.
Terms of Use and Privacy Statement



Below are the first 10 and last 10 pages of uncorrected machine-read text (when available) of this chapter, followed by the top 30 algorithmically extracted key phrases from the chapter as a whole.
Intended to provide our own search engines and external engines with highly rich, chapter-representative searchable text on the opening pages of each chapter. Because it is UNCORRECTED material, please consider the following text as a useful but insufficient proxy for the authoritative book pages.

Do not use for reproduction, copying, pasting, or reading; exclusively for search engines.

OCR for page R1
Design of the National Children’s Study A WORKSHOP SU M MARY Nancy Kirkendall, Rapporteur Committee on National Statistics Division of Behavioral and Social Sciences and Education Board on Children, Youth, and Families Institute of Medicine

OCR for page R1
THE NATIONAL ACADEMIES PRESS   500 Fifth Street, NW   Washington, DC 20001 NOTICE: The project that is the subject of this report was approved by the Govern­ng Board of the National Research Council, whose members are drawn i from the councils of the National Academy of Sciences, the National Academy of Engineering, and the Institute of Medicine. The members of the committee responsible for the report were chosen for their special competences and with regard for appropriate balance. This study was supported by Contract/Grant No. HHSN263000019 between the National Academy of Sciences and the U.S. Department of Health and Human Services. Support of the work of the Committee on National Statistics is provided by a consortium of federal agencies through a grant from the National Science Foundation (No. SES-1024012). Any opinions, findings, conclusions, or recom- mendations expressed in this publication are those of the author(s) and do not necessarily reflect the views of the organizations or agencies that provided sup- port for the project. International Standard Book Number-13:  978-0-309-28840-8 International Standard Book Number-10:  0-309-28840-1 Additional copies of this report are available from the National Academies Press, 500 Fifth Street, NW, Keck 360, Washington, DC 20001; (800) 624-6242 or (202) 334-3313; http://www.nap.edu/. Copyright 2013 by the National Academy of Sciences. All rights reserved. Printed in the United States of America Suggested citation: National Research Council and Institute of Medicine. (2013). Design of the National Children’s Study: A Workshop Summary. Nancy Kirkendall, Rapporteur. Committee on National Statistics, Division of Behavioral and Social Sciences and Education. Board on Children, Youth, and Families, Institute of Medicine. Washington, DC: The National Academies Press.

OCR for page R1
The National Academy of Sciences is a private, nonprofit, self-perpetuating society of distinguished scholars engaged in scientific and engineering research, dedicated to the furtherance of science and technology and to their use for the general welfare. Upon the authority of the charter granted to it by the Congress in 1863, the ­ cademy has a mandate that requires it to advise the federal govern- A ment on scientific and technical matters. Dr. Ralph J. Cicerone is president of the National Academy of Sciences. The National Academy of Engineering was established in 1964, under the char- ter of the National Academy of Sciences, as a parallel organization of outstand- ing engineers. It is autonomous in its administration and in the selection of its m ­ embers, sharing with the National Academy of Sciences the responsibility for advising the federal government. The National Academy of Engineering also sponsors engineering programs aimed at meeting national needs, encourages education and research, and recognizes the superior achievements of engineers. Dr. C. D. Mote, Jr., is president of the National Academy of Engineering. The Institute of Medicine was established in 1970 by the National Academy of Sciences to secure the services of eminent members of appropriate professions in the examination of policy matters pertaining to the health of the public. The Institute acts under the responsibility given to the National Academy of Sciences by its congressional charter to be an adviser to the federal government and, upon its own initiative, to identify issues of medical care, research, and education. Dr. Harvey V. Fineberg is president of the Institute of Medicine. The National Research Council was organized by the National Academy of Sciences in 1916 to associate the broad community of science and technology with the Academy’s purposes of furthering knowledge and advising the federal government. Functioning in accordance with general policies determined by the Academy, the Council has become the principal operating agency of both the National Academy of Sciences and the National Academy of Engineering in pro- viding services to the government, the public, and the scientific and engineering communities. The Council is administered jointly by both Academies and the Institute of Medicine. Dr. Ralph J. Cicerone and Dr. C. D. Mote, Jr., are chair and vice chair, respectively, of the National Research Council. www.national-academies.org

OCR for page R1

OCR for page R1
STEERING COMMITTEE A WORKSHOP ON DESIGN OF THE NATIONAL CHILDREN’S STUDY MAIN STUDY Sara McLanahan (Chair), Center for Research on Child Wellbeing, Princeton University Barbara Lepidus Carlson, Mathematica Policy Research, Inc., Boston Steven B. Cohen, Agency for Healthcare Research and Quality Naihua Duan, Columbia University Medical Center Greg Duncan, School of Education, University of California, Irvine Elena Fuentes-Afflick, Department of Pediatrics, School of Medicine, University of California, San Francisco Irwin Garfinkel, School of Social Work and Population Research Center, Columbia University Carol J. Henry, Consultant Marie C. McCormick, Department of Social and Behavioral Sciences, Harvard School of Public Health and Harvard Medical School Edward J. Sondik, National Center for Health Statistics Nancy Kirkendall, Study Director Agnes E. Gaskin, Administrative Assistant v

OCR for page R1
COMMITTEE ON NATIONAL STATISTICS 2012-2013 Lawrence D. Brown (Chair), Department of Statistics, The Wharton School, University of Pennsylvania John M. Abowd, School of Industrial and Labor Relations, Cornell University David Card, Department of Economics, University of California, Berkeley Alicia Carriquiry, Department of Statistics, Iowa State University Constantine Gatsonis, Center for Statistical Sciences, Brown University James S. House, Survey Research Center, Institute for Social Research, University of Michigan, Ann Arbor Michael Hout, Survey Research Center, University of California, Berkeley Sallie Keller, Department of Statistics, University of Waterloo, Ontario, Canada Lisa Lynch, The Heller School for Social Policy and Management, Brandeis University Sally C. Morton, Department of Biostatistics, Graduate School of Public Health, University of Pittsburgh Ruth Peterson, Criminal Justice Research Center, Ohio State University Edward H. Shortliffe, Columbia University and Arizona State University Hal Stern, Donald Bren School of Information and Computer Sciences, University of California, Irvine John H. Thompson, NORC at the University of Chicago Roger Tourangeau, Westat, Rockville, MD Constance F. Citro, Director vi

OCR for page R1
BOARD ON CHILDREN, YOUTH, AND FAMILIES 2013 Bernard Guyer (Chair), Department of Population and Family Health Sciences, Bloomberg School of Public Health, Johns Hopkins University Shari Barkin, Department of Pediatrics, Monroe Carell Jr. Children’s Hospital, Vanderbilt University Thomas F. Boat, College of Medicine, Academic Health Center, University of Cincinnati W. Thomas Boyce, Faculty of Medicine, University of British Columbia David A. Brent, Western Psychiatric Institute and Clinic, University of Pittsburgh School of Medicine David V. B. Britt, Retired CEO, Sesame Workshop Debbie I. Chang, Nemours, Policy and Prevention Janet M. Currie, Center for Health and Well-Being, Woodrow Wilson School of Public and International Affairs, Princeton University Patrick H. DeLeon, F. Edward Hebert School of Medicine, Graduate School of Nursing, Uniformed Services University of the Health Sciences Angela Diaz, Department of Pediatrics and Community Preventive Medicine, Mount Sinai School of Medicine Gary W. Evans, Department of Design & Environmental Analysis and Department of Human Development, Cornell University Elena Fuentes-Afflick, Department of Pediatrics, School of Medicine, University of California, San Francisco Eugene E. García, Professor Emeritus, Mary Lou Fulton Teachers’ College, Arizona State University J. David Hawkins, Social Development Research Group, School of Social Work, University of Washington Jacqueline Jones, Early Childhood Education Specialist, Princeton, NJ Ann S. Masten, Institute of Child Development, University of Minnesota Susan E. Mayer, Harris Graduate School of Public Policy Studies, University of Chicago Velma McBride Murry, Peabody College, Department of Human and Organizational Development, Vanderbilt University Bruce S. McEwen, Harold and Margaret Milliken Hatch Laboratory of Neuroendocrinology, The Rockefeller University Pamela Morris, Department of Applied Psychology, Steinhardt School of Culture, Education, and Human Development, New York University Taha E. Taha, Bloomberg School of Public Health, Johns Hopkins University Kimber Bogard, Director vii

OCR for page R1

OCR for page R1
Reviewers T his workshop summary has been reviewed in draft form by indi- viduals chosen for their diverse perspectives and technical exper- tise, in accordance with procedures approved by the NRC’s Report Review Committee. The purpose of this independent review is to provide candid and critical comments that will assist the institution in making its published summary as sound as possible and to ensure that the sum- mary meets institutional standards for clarity, objectivity and responsive- ness to the charge. The review comments and draft manuscript remain confidential to protect the integrity of the process. We wish to thank the following individuals for their review of this workshop summary: Elena Fuentes-Afflick, Department of Pediatrics, School of Medicine, Univer- sity of California, San Francisco; Roderick J.A. Little, Department of Bio­ statistics, School of Public Health, University of Michigan, Ann Arbor; Marie C. McCormick, Department of Social and Behavioral Sciences, Harvard School of Public Health and Harvard Medical School; Melissa McPheeters, Vanderbilt Evidence-based Practice Center and Emphasis Program Area on Healthcare and Public Health Research and Manage- ment, Institute for Medicine and Public Health, Vanderbilt University Medical Center; and Samuel H. Preston, Population Studies Center, Uni- versity of Pennsylvania. Although the reviewers listed above have pro- vided many constructive comments and suggestions, they did not see the final draft of the workshop summary before its release. The review of this summary was overseen by Shari Barkin, Department of Pediatrics, Monroe Carell Jr. Children’s Hospital at Vanderbilt University. Appointed ix

OCR for page R1
x REVIEWERS by the National Research Council, she was responsible for making certain that an independent examination of this summary was carried out in accordance with institutional procedures and that all review comments were carefully considered. Responsibility for the final content of this sum- mary rests entirely with the author and the institution.

OCR for page R1
Contents 1 Introduction 1 2 Environmental Measures 5 3 Sample Design—Consideration of Multiple Cohorts 23 4 Imputation and Estimation 45 5 Moving Forward 61 References 71 Appendixes A Workshop Agenda 73 B Registered Participants 77 xi

OCR for page R1