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Design of the National Children's Study: A Workshop Summary (2013)

Chapter: Appendix B: Registered Participants

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Suggested Citation:"Appendix B: Registered Participants." National Research Council and Institute of Medicine. 2013. Design of the National Children's Study: A Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/18386.
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Appendix B

Registered Participants

WORKSHOP ON THE DESIGN OF THE NATIONAL CHILDREN’S STUDY MAIN STUDY

Deborah Baca, National Institute of Child Health and Human Development (NICHD) Office of Acquisitions

Marion Balsam, NICHD/National Children’s Study (NCS)

Arthur Bennett, National Institutes of Health (NIH)/NICHD

Valerie Betley, Circle Solutions, Inc.

Lizbet Boroughs, American Psychiatric Association

Andrew Bowman, Drinker Biddle and Reath, LLP

Elizabeth Boyle, Westat

Michael Bracken, Yale University School of Public Health

Amy Branum, Centers for Disease and Control Prevention(CDC)/National Center for Health Statistics (NCHS)

Ruth Brenner, NICHD/NCS

Andrew Briggs, Booz Allen Hamilton

Margot Brown, U.S. Environmental Protection Agency (EPA) Office of Children’s Health Protection

Antonia Calafat, CDC

Nicole Cardello Deziel, National Cancer Institute

Barbara Carlson, Mathematica Policy Research

Kirti Chadha, Booz Allen Hamilton

Richard Chestek, Booz Allen Hamilton

Kendall Cislo, Michigan Alliance of the National Children’s Study

Marguerite Clarkson, PricewaterhouseCoopers

Suggested Citation:"Appendix B: Registered Participants." National Research Council and Institute of Medicine. 2013. Design of the National Children's Study: A Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/18386.
×

Steven Cohen, Agency for Healthcare Research and Quality

Leslie Cooke, NICHD/NCS

Dorr Dearborn, Case Western Reserve University

Mark del Monte, American Academy of Pediatrics

Michael Dellarco, NICHD/NCS

Ana Diez Roux, University of Michigan, Ann Arbor

Naihua Duan, Columbia University

Greg Duncan, University of California, Irvine

Eric Fatemi, Labor, HHS Subcommittee, Senate Appropriations Committee

Alexa Fraser, Westat Health Sector

Mischka Garel, Johns Hopkins University

Irwin Garfinkel, Columbia University

John Gohagan, NIH

Jessica Graber, NICHD/NCS

Alan Guttmacher, NICHD

Alycia Halladay, Autism Speaks

Brian Harris-Kojetin, Office of Management and Budget

Paymon Hashemi, Booz Allen Hamilton

Maire Heikkinen, Westat

Steven Hirschfeld, NICHD/NCS

Charlotte Hobbs, University of Arkansas Medical Sciences and Arkansas Children’s Hospital

Mary Jo Hoeksema, Population Association of America

Valerie Hsu, Westat

David Hubble, Westat

Grace Ji, Avar Consulting, Inc.

Lisa Kaeser, NICHD/NIH

Graham Kalton, Westat

Carol Kasten, NICHD/NCS

Jean Kerver, Michigan State University

Jennifer Kwan, NICHD/NCS

Colleen Lee, NICHD/NCS

Kate Lefauve, NORC at the University of Chicago

Roderick Little, University of Michigan, Ann Arbor

Maria Lopez-Class, NICHD/NCS

R. Eric Lorenzo, NICHD/NCS

John Lumpkin, NICHD/NCS

Cora MacPherson, Social and Scientific Systems

Jennifer Madans, NCHS

Nina Markovic, University of Pittsburgh

Dave Mason, Mason Consulting, LLC

Marie McCormick, Harvard University

Suggested Citation:"Appendix B: Registered Participants." National Research Council and Institute of Medicine. 2013. Design of the National Children's Study: A Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/18386.
×

Sara McLanahan, Princeton University

Thomas McLaughlin, University of Massachusetts Medical School

Lori Merrill, Westat

Mark Meschter, Circle Solutions, Inc.

Aubrey Miller, National Institute of Environmental Health Sciences (NIEHS)

Susan Mitchell, RTI International

Mary Mortensen, CDC

Nolan Morton, Circle Solutions, Inc.

Jack Moye, NICHD/NCS

Sheila Newton, NIEHS

Cindy Nowinski, National Children’s Study South Regional Operations Center

Colm O’Muircheartaigh, University of Chicago

Nigel Paneth, Michigan State University

Nancy Parfit Hondros, NICHD/NCS

Christina Park, NICHD/NCS

Albert Parker, Avar Consulting, Inc.

Melissa Perry, George Washington University

Nancy Reichman, Princeton University

Katie Rush, NICHD

Rajni Samavedam, Booz Allen Hamilton

Christian Sauter, PwS

Susan Schechter, NORC at the University of Chicago

Margo Schwab, Office of Management and Budget

Angela Sharpe, Consortium of Social Science Associations

Linda Sheldon, EPA

Ed Sondik, NCHS

Mike Spittel, NIH Office of Behavioral and Social Sciences Research

Aditi Srivastgav, American Academy of Pediatrics

Gerald Sroufe, American Educational Research Association

Karen Studwell, American Psychological Association

Gitanjali Taneja, NICHD/NCS

Richard Valliant, Joint Program in Survey Methodology at the University of Maryland and University of Michigan, Ann Arbor

Sandra Wadlinger, The Children’s Hospital of Philadelphia

Joan Wang, Avar Consulting, Inc.

Emil Wigode, March of Dimes

Anne Zajicek, NICHD

Tia Zeno, Population Association of America fellow

Suggested Citation:"Appendix B: Registered Participants." National Research Council and Institute of Medicine. 2013. Design of the National Children's Study: A Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/18386.
×

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Suggested Citation:"Appendix B: Registered Participants." National Research Council and Institute of Medicine. 2013. Design of the National Children's Study: A Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/18386.
×
Page 77
Suggested Citation:"Appendix B: Registered Participants." National Research Council and Institute of Medicine. 2013. Design of the National Children's Study: A Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/18386.
×
Page 78
Suggested Citation:"Appendix B: Registered Participants." National Research Council and Institute of Medicine. 2013. Design of the National Children's Study: A Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/18386.
×
Page 79
Suggested Citation:"Appendix B: Registered Participants." National Research Council and Institute of Medicine. 2013. Design of the National Children's Study: A Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/18386.
×
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The Children's Health Act mandated the National Children's Study (NCS) in 2000 with one of its purposes being to authorize the National Institute of Child Health and Human Development (NICHD) to study the environmental influences (including physical, chemical, biological, and psychosocial) on children's health and development. The NCS examines all aspects of the environment including air, water, diet, noise, family dynamics, and genetics, on the growth, development, and health of children across the United States, for a period of 21 years. The purpose of NCS is to improve the health and well-being of children and to contribute to understanding the role of these factors on health and disease.

The research plan for the NCS was developed from 2005 to 2007 in collaboration among the Interagency Coordinating Committee, the NCS Advisory Committee, the NCS Program Office, Westat, the Vanguard Center principal investigators, and federal scientists. The current design of the study, however, uses a separate pilot to assess quality of scientific output, logistics, and operations and a "Main Study" to examine exposure-outcome relationships. The NCS proposed the use of a multilayered cohort approach for the Main Study, which was one of the topics for discussion at the workshop that is the subject of this publication.

In the fall of 2012, NICHD requested that the Committee on National Statistics (CNSTAT) of the NRC and the IOM convene a joint workshop, to be led by CNSTAT. The workshop was to focus on issues related to the overall design (including the framework for implementation) of the NCS. The committee was provided a background paper which it used to select the challenges that were discussed at the workshop. Design of the National Children's Study: A Workshop Summary presents an overview of the workshop held on January 11, 2013. The publication includes summaries of the four sessions of the workshop, a list of participants, and the agenda.

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