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Design of the National Children's Study: A Workshop Summary (2013)

Chapter: Committee on National Statistics

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Suggested Citation:"Committee on National Statistics." National Research Council and Institute of Medicine. 2013. Design of the National Children's Study: A Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/18386.
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COMMITTEE ON NATIONAL STATISTICS

The Committee on National Statistics (CNSTAT) was established in 1972 at the National Academies to improve the statistical methods and information on which public policy decisions are based. The committee carries out studies, workshops, and other activities to foster better measures and fuller understanding of the economy, the environment, public health, crime, education, immigration, poverty, welfare, and other public policy issues. It also evaluates ongoing statistical programs and tracks the statistical policy and coordinating activities of the federal government, serving a unique role at the intersection of statistics and public policy. The committee’s work is supported by a consortium of federal agencies through a National Science Foundation grant.

Suggested Citation:"Committee on National Statistics." National Research Council and Institute of Medicine. 2013. Design of the National Children's Study: A Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/18386.
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Suggested Citation:"Committee on National Statistics." National Research Council and Institute of Medicine. 2013. Design of the National Children's Study: A Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/18386.
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Page 81
Suggested Citation:"Committee on National Statistics." National Research Council and Institute of Medicine. 2013. Design of the National Children's Study: A Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/18386.
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Page 82
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The Children's Health Act mandated the National Children's Study (NCS) in 2000 with one of its purposes being to authorize the National Institute of Child Health and Human Development (NICHD) to study the environmental influences (including physical, chemical, biological, and psychosocial) on children's health and development. The NCS examines all aspects of the environment including air, water, diet, noise, family dynamics, and genetics, on the growth, development, and health of children across the United States, for a period of 21 years. The purpose of NCS is to improve the health and well-being of children and to contribute to understanding the role of these factors on health and disease.

The research plan for the NCS was developed from 2005 to 2007 in collaboration among the Interagency Coordinating Committee, the NCS Advisory Committee, the NCS Program Office, Westat, the Vanguard Center principal investigators, and federal scientists. The current design of the study, however, uses a separate pilot to assess quality of scientific output, logistics, and operations and a "Main Study" to examine exposure-outcome relationships. The NCS proposed the use of a multilayered cohort approach for the Main Study, which was one of the topics for discussion at the workshop that is the subject of this publication.

In the fall of 2012, NICHD requested that the Committee on National Statistics (CNSTAT) of the NRC and the IOM convene a joint workshop, to be led by CNSTAT. The workshop was to focus on issues related to the overall design (including the framework for implementation) of the NCS. The committee was provided a background paper which it used to select the challenges that were discussed at the workshop. Design of the National Children's Study: A Workshop Summary presents an overview of the workshop held on January 11, 2013. The publication includes summaries of the four sessions of the workshop, a list of participants, and the agenda.

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