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Suggested Citation:"Front Matter." National Research Council and Institute of Medicine. 2013. Design of the National Children's Study: A Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/18386.
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Design of the
National Children’s Study

A Workshop Summary

Nancy Kirkendall, Rapporteur

Committee on National Statistics

Division of Behavioral and Social Sciences and Education


Board on Children, Youth, and Families

Institute of Medicine

NATIONAL RESEARCH COUNCIL AND

INSTITUTE OF MEDICINE

OF THE NATIONAL ACADEMIES

THE NATIONAL ACADEMIES PRESS

Washington, D.C.

www.nap.edu

Suggested Citation:"Front Matter." National Research Council and Institute of Medicine. 2013. Design of the National Children's Study: A Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/18386.
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THE NATIONAL ACADEMIES PRESS     500 Fifth Street, NW     Washington, DC 20001

NOTICE: The project that is the subject of this report was approved by the Governing Board of the National Research Council, whose members are drawn from the councils of the National Academy of Sciences, the National Academy of Engineering, and the Institute of Medicine. The members of the committee responsible for the report were chosen for their special competences and with regard for appropriate balance.

This study was supported by Contract/Grant No. HHSN263000019 between the National Academy of Sciences and the U.S. Department of Health and Human Services. Support of the work of the Committee on National Statistics is provided by a consortium of federal agencies through a grant from the National Science Foundation (No. SES-1024012). Any opinions, findings, conclusions, or recommendations expressed in this publication are those of the author(s) and do not necessarily reflect the views of the organizations or agencies that provided support for the project.

International Standard Book Number-13: 978-0-309-28840-8
International Standard Book Number-10: 0-309-28840-1

Additional copies of this report are available from the National Academies Press, 500 Fifth Street, NW, Keck 360, Washington, DC 20001; (800) 624-6242 or (202) 334-3313; http://www.nap.edu/.

Copyright 2013 by the National Academy of Sciences. All rights reserved.

Printed in the United States of America

Suggested citation: National Research Council and Institute of Medicine. (2013). Design of the National Children’s Study: A Workshop Summary. Nancy Kirkendall, Rapporteur. Committee on National Statistics, Division of Behavioral and Social Sciences and Education. Board on Children, Youth, and Families, Institute of Medicine. Washington, DC: The National Academies Press.

Suggested Citation:"Front Matter." National Research Council and Institute of Medicine. 2013. Design of the National Children's Study: A Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/18386.
×

THE NATIONAL ACADEMIES

Advisers to the Nation on Science, Engineering, and Medicine

The National Academy of Sciences is a private, nonprofit, self-perpetuating society of distinguished scholars engaged in scientific and engineering research, dedicated to the furtherance of science and technology and to their use for the general welfare. Upon the authority of the charter granted to it by the Congress in 1863, the Academy has a mandate that requires it to advise the federal government on scientific and technical matters. Dr. Ralph J. Cicerone is president of the National Academy of Sciences.

The National Academy of Engineering was established in 1964, under the charter of the National Academy of Sciences, as a parallel organization of outstanding engineers. It is autonomous in its administration and in the selection of its members, sharing with the National Academy of Sciences the responsibility for advising the federal government. The National Academy of Engineering also sponsors engineering programs aimed at meeting national needs, encourages education and research, and recognizes the superior achievements of engineers. Dr. C. D. Mote, Jr., is president of the National Academy of Engineering.

The Institute of Medicine was established in 1970 by the National Academy of Sciences to secure the services of eminent members of appropriate professions in the examination of policy matters pertaining to the health of the public. The Institute acts under the responsibility given to the National Academy of Sciences by its congressional charter to be an adviser to the federal government and, upon its own initiative, to identify issues of medical care, research, and education. Dr. Harvey V. Fineberg is president of the Institute of Medicine.

The National Research Council was organized by the National Academy of Sciences in 1916 to associate the broad community of science and technology with the Academy’s purposes of furthering knowledge and advising the federal government. Functioning in accordance with general policies determined by the Academy, the Council has become the principal operating agency of both the National Academy of Sciences and the National Academy of Engineering in providing services to the government, the public, and the scientific and engineering communities. The Council is administered jointly by both Academies and the Institute of Medicine. Dr. Ralph J. Cicerone and Dr. C. D. Mote, Jr., are chair and vice chair, respectively, of the National Research Council.

www.national-academies.org

Suggested Citation:"Front Matter." National Research Council and Institute of Medicine. 2013. Design of the National Children's Study: A Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/18386.
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Suggested Citation:"Front Matter." National Research Council and Institute of Medicine. 2013. Design of the National Children's Study: A Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/18386.
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STEERING COMMITTEE
A WORKSHOP ON DESIGN OF THE NATIONAL
CHILDREN’S STUDY MAIN STUDY

Sara McLanahan (Chair), Center for Research on Child Wellbeing, Princeton University

Barbara Lepidus Carlson, Mathematica Policy Research, Inc., Boston

Steven B. Cohen, Agency for Healthcare Research and Quality

Naihua Duan, Columbia University Medical Center

Greg Duncan, School of Education, University of California, Irvine

Elena Fuentes-Afflick, Department of Pediatrics, School of Medicine, University of California, San Francisco

Irwin Garfinkel, School of Social Work and Population Research Center, Columbia University

Carol J. Henry, Consultant

Marie C. McCormick, Department of Social and Behavioral Sciences, Harvard School of Public Health and Harvard Medical School

Edward J. Sondik, National Center for Health Statistics

Nancy Kirkendall, Study Director

Agnes E. Gaskin, Administrative Assistant

Suggested Citation:"Front Matter." National Research Council and Institute of Medicine. 2013. Design of the National Children's Study: A Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/18386.
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COMMITTEE ON NATIONAL STATISTICS
2012-2013

Lawrence D. Brown (Chair), Department of Statistics, The Wharton School, University of Pennsylvania

John M. Abowd, School of Industrial and Labor Relations, Cornell University

David Card, Department of Economics, University of California, Berkeley

Alicia Carriquiry, Department of Statistics, Iowa State University

Constantine Gatsonis, Center for Statistical Sciences, Brown University

James S. House, Survey Research Center, Institute for Social Research, University of Michigan, Ann Arbor

Michael Hout, Survey Research Center, University of California, Berkeley

Sallie Keller, Department of Statistics, University of Waterloo, Ontario, Canada

Lisa Lynch, The Heller School for Social Policy and Management, Brandeis University

Sally C. Morton, Department of Biostatistics, Graduate School of Public Health, University of Pittsburgh

Ruth Peterson, Criminal Justice Research Center, Ohio State University

Edward H. Shortliffe, Columbia University and Arizona State University

Hal Stern, Donald Bren School of Information and Computer Sciences, University of California, Irvine

John H. Thompson, NORC at the University of Chicago

Roger Tourangeau, Westat, Rockville, MD

Constance F. Citro, Director

Suggested Citation:"Front Matter." National Research Council and Institute of Medicine. 2013. Design of the National Children's Study: A Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/18386.
×

BOARD ON CHILDREN, YOUTH, AND FAMILIES
2013

Bernard Guyer (Chair), Department of Population and Family Health Sciences, Bloomberg School of Public Health, Johns Hopkins University

Shari Barkin, Department of Pediatrics, Monroe Carell Jr. Children’s Hospital, Vanderbilt University

Thomas F. Boat, College of Medicine, Academic Health Center, University of Cincinnati

W. Thomas Boyce, Faculty of Medicine, University of British Columbia

David A. Brent, Western Psychiatric Institute and Clinic, University of Pittsburgh School of Medicine

David V. B. Britt, Retired CEO, Sesame Workshop

Debbie I. Chang, Nemours, Policy and Prevention

Janet M. Currie, Center for Health and Well-Being, Woodrow Wilson School of Public and International Affairs, Princeton University

Patrick H. DeLeon, F. Edward Hebert School of Medicine, Graduate School of Nursing, Uniformed Services University of the Health Sciences

Angela Diaz, Department of Pediatrics and Community Preventive Medicine, Mount Sinai School of Medicine

Gary W. Evans, Department of Design & Environmental Analysis and Department of Human Development, Cornell University

Elena Fuentes-Afflick, Department of Pediatrics, School of Medicine, University of California, San Francisco

Eugene E. García, Professor Emeritus, Mary Lou Fulton Teachers’ College, Arizona State University

J. David Hawkins, Social Development Research Group, School of Social Work, University of Washington

Jacqueline Jones, Early Childhood Education Specialist, Princeton, NJ

Ann S. Masten, Institute of Child Development, University of Minnesota

Susan E. Mayer, Harris Graduate School of Public Policy Studies, University of Chicago

Velma McBride Murry, Peabody College, Department of Human and Organizational Development, Vanderbilt University

Bruce S. McEwen, Harold and Margaret Milliken Hatch Laboratory of Neuroendocrinology, The Rockefeller University

Pamela Morris, Department of Applied Psychology, Steinhardt School of Culture, Education, and Human Development, New York University

Taha E. Taha, Bloomberg School of Public Health, Johns Hopkins University

Kimber Bogard, Director

Page viii Cite
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Suggested Citation:"Front Matter." National Research Council and Institute of Medicine. 2013. Design of the National Children's Study: A Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/18386.
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Reviewers

This workshop summary has been reviewed in draft form by individuals chosen for their diverse perspectives and technical expertise, in accordance with procedures approved by the NRC’s Report Review Committee. The purpose of this independent review is to provide candid and critical comments that will assist the institution in making its published summary as sound as possible and to ensure that the summary meets institutional standards for clarity, objectivity and responsiveness to the charge. The review comments and draft manuscript remain confidential to protect the integrity of the process. We wish to thank the following individuals for their review of this workshop summary: Elena Fuentes-Afflick, Department of Pediatrics, School of Medicine, University of California, San Francisco; Roderick J.A. Little, Department of Biostatistics, School of Public Health, University of Michigan, Ann Arbor; Marie C. McCormick, Department of Social and Behavioral Sciences, Harvard School of Public Health and Harvard Medical School; Melissa McPheeters, Vanderbilt Evidence-based Practice Center and Emphasis Program Area on Healthcare and Public Health Research and Management, Institute for Medicine and Public Health, Vanderbilt University Medical Center; and Samuel H. Preston, Population Studies Center, University of Pennsylvania. Although the reviewers listed above have provided many constructive comments and suggestions, they did not see the final draft of the workshop summary before its release. The review of this summary was overseen by Shari Barkin, Department of Pediatrics, Monroe Carell Jr. Children’s Hospital at Vanderbilt University. Appointed

Suggested Citation:"Front Matter." National Research Council and Institute of Medicine. 2013. Design of the National Children's Study: A Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/18386.
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by the National Research Council, she was responsible for making certain that an independent examination of this summary was carried out in accordance with institutional procedures and that all review comments were carefully considered. Responsibility for the final content of this summary rests entirely with the author and the institution.

Suggested Citation:"Front Matter." National Research Council and Institute of Medicine. 2013. Design of the National Children's Study: A Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/18386.
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The Children's Health Act mandated the National Children's Study (NCS) in 2000 with one of its purposes being to authorize the National Institute of Child Health and Human Development (NICHD) to study the environmental influences (including physical, chemical, biological, and psychosocial) on children's health and development. The NCS examines all aspects of the environment including air, water, diet, noise, family dynamics, and genetics, on the growth, development, and health of children across the United States, for a period of 21 years. The purpose of NCS is to improve the health and well-being of children and to contribute to understanding the role of these factors on health and disease.

The research plan for the NCS was developed from 2005 to 2007 in collaboration among the Interagency Coordinating Committee, the NCS Advisory Committee, the NCS Program Office, Westat, the Vanguard Center principal investigators, and federal scientists. The current design of the study, however, uses a separate pilot to assess quality of scientific output, logistics, and operations and a "Main Study" to examine exposure-outcome relationships. The NCS proposed the use of a multilayered cohort approach for the Main Study, which was one of the topics for discussion at the workshop that is the subject of this publication.

In the fall of 2012, NICHD requested that the Committee on National Statistics (CNSTAT) of the NRC and the IOM convene a joint workshop, to be led by CNSTAT. The workshop was to focus on issues related to the overall design (including the framework for implementation) of the NCS. The committee was provided a background paper which it used to select the challenges that were discussed at the workshop. Design of the National Children's Study: A Workshop Summary presents an overview of the workshop held on January 11, 2013. The publication includes summaries of the four sessions of the workshop, a list of participants, and the agenda.

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