Design of the
National Children’s Study
A Workshop Summary
Nancy Kirkendall, Rapporteur
Committee on National Statistics
Division of Behavioral and Social Sciences and Education
Board on Children, Youth, and Families
Institute of Medicine
NATIONAL RESEARCH COUNCIL AND
INSTITUTE OF MEDICINE
OF THE NATIONAL ACADEMIES
THE NATIONAL ACADEMIES PRESS
Washington, D.C.
THE NATIONAL ACADEMIES PRESS 500 Fifth Street, NW Washington, DC 20001
NOTICE: The project that is the subject of this report was approved by the Governing Board of the National Research Council, whose members are drawn from the councils of the National Academy of Sciences, the National Academy of Engineering, and the Institute of Medicine. The members of the committee responsible for the report were chosen for their special competences and with regard for appropriate balance.
This study was supported by Contract/Grant No. HHSN263000019 between the National Academy of Sciences and the U.S. Department of Health and Human Services. Support of the work of the Committee on National Statistics is provided by a consortium of federal agencies through a grant from the National Science Foundation (No. SES-1024012). Any opinions, findings, conclusions, or recommendations expressed in this publication are those of the author(s) and do not necessarily reflect the views of the organizations or agencies that provided support for the project.
International Standard Book Number-13: 978-0-309-28840-8
International Standard Book Number-10: 0-309-28840-1
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Copyright 2013 by the National Academy of Sciences. All rights reserved.
Printed in the United States of America
Suggested citation: National Research Council and Institute of Medicine. (2013). Design of the National Children’s Study: A Workshop Summary. Nancy Kirkendall, Rapporteur. Committee on National Statistics, Division of Behavioral and Social Sciences and Education. Board on Children, Youth, and Families, Institute of Medicine. Washington, DC: The National Academies Press.
THE NATIONAL ACADEMIES
Advisers to the Nation on Science, Engineering, and Medicine
The National Academy of Sciences is a private, nonprofit, self-perpetuating society of distinguished scholars engaged in scientific and engineering research, dedicated to the furtherance of science and technology and to their use for the general welfare. Upon the authority of the charter granted to it by the Congress in 1863, the Academy has a mandate that requires it to advise the federal government on scientific and technical matters. Dr. Ralph J. Cicerone is president of the National Academy of Sciences.
The National Academy of Engineering was established in 1964, under the charter of the National Academy of Sciences, as a parallel organization of outstanding engineers. It is autonomous in its administration and in the selection of its members, sharing with the National Academy of Sciences the responsibility for advising the federal government. The National Academy of Engineering also sponsors engineering programs aimed at meeting national needs, encourages education and research, and recognizes the superior achievements of engineers. Dr. C. D. Mote, Jr., is president of the National Academy of Engineering.
The Institute of Medicine was established in 1970 by the National Academy of Sciences to secure the services of eminent members of appropriate professions in the examination of policy matters pertaining to the health of the public. The Institute acts under the responsibility given to the National Academy of Sciences by its congressional charter to be an adviser to the federal government and, upon its own initiative, to identify issues of medical care, research, and education. Dr. Harvey V. Fineberg is president of the Institute of Medicine.
The National Research Council was organized by the National Academy of Sciences in 1916 to associate the broad community of science and technology with the Academy’s purposes of furthering knowledge and advising the federal government. Functioning in accordance with general policies determined by the Academy, the Council has become the principal operating agency of both the National Academy of Sciences and the National Academy of Engineering in providing services to the government, the public, and the scientific and engineering communities. The Council is administered jointly by both Academies and the Institute of Medicine. Dr. Ralph J. Cicerone and Dr. C. D. Mote, Jr., are chair and vice chair, respectively, of the National Research Council.
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STEERING COMMITTEE
A WORKSHOP ON DESIGN OF THE NATIONAL
CHILDREN’S STUDY MAIN STUDY
Sara McLanahan (Chair), Center for Research on Child Wellbeing, Princeton University
Barbara Lepidus Carlson, Mathematica Policy Research, Inc., Boston
Steven B. Cohen, Agency for Healthcare Research and Quality
Naihua Duan, Columbia University Medical Center
Greg Duncan, School of Education, University of California, Irvine
Elena Fuentes-Afflick, Department of Pediatrics, School of Medicine, University of California, San Francisco
Irwin Garfinkel, School of Social Work and Population Research Center, Columbia University
Carol J. Henry, Consultant
Marie C. McCormick, Department of Social and Behavioral Sciences, Harvard School of Public Health and Harvard Medical School
Edward J. Sondik, National Center for Health Statistics
Nancy Kirkendall, Study Director
Agnes E. Gaskin, Administrative Assistant
COMMITTEE ON NATIONAL STATISTICS
2012-2013
Lawrence D. Brown (Chair), Department of Statistics, The Wharton School, University of Pennsylvania
John M. Abowd, School of Industrial and Labor Relations, Cornell University
David Card, Department of Economics, University of California, Berkeley
Alicia Carriquiry, Department of Statistics, Iowa State University
Constantine Gatsonis, Center for Statistical Sciences, Brown University
James S. House, Survey Research Center, Institute for Social Research, University of Michigan, Ann Arbor
Michael Hout, Survey Research Center, University of California, Berkeley
Sallie Keller, Department of Statistics, University of Waterloo, Ontario, Canada
Lisa Lynch, The Heller School for Social Policy and Management, Brandeis University
Sally C. Morton, Department of Biostatistics, Graduate School of Public Health, University of Pittsburgh
Ruth Peterson, Criminal Justice Research Center, Ohio State University
Edward H. Shortliffe, Columbia University and Arizona State University
Hal Stern, Donald Bren School of Information and Computer Sciences, University of California, Irvine
John H. Thompson, NORC at the University of Chicago
Roger Tourangeau, Westat, Rockville, MD
Constance F. Citro, Director
BOARD ON CHILDREN, YOUTH, AND FAMILIES
2013
Bernard Guyer (Chair), Department of Population and Family Health Sciences, Bloomberg School of Public Health, Johns Hopkins University
Shari Barkin, Department of Pediatrics, Monroe Carell Jr. Children’s Hospital, Vanderbilt University
Thomas F. Boat, College of Medicine, Academic Health Center, University of Cincinnati
W. Thomas Boyce, Faculty of Medicine, University of British Columbia
David A. Brent, Western Psychiatric Institute and Clinic, University of Pittsburgh School of Medicine
David V. B. Britt, Retired CEO, Sesame Workshop
Debbie I. Chang, Nemours, Policy and Prevention
Janet M. Currie, Center for Health and Well-Being, Woodrow Wilson School of Public and International Affairs, Princeton University
Patrick H. DeLeon, F. Edward Hebert School of Medicine, Graduate School of Nursing, Uniformed Services University of the Health Sciences
Angela Diaz, Department of Pediatrics and Community Preventive Medicine, Mount Sinai School of Medicine
Gary W. Evans, Department of Design & Environmental Analysis and Department of Human Development, Cornell University
Elena Fuentes-Afflick, Department of Pediatrics, School of Medicine, University of California, San Francisco
Eugene E. García, Professor Emeritus, Mary Lou Fulton Teachers’ College, Arizona State University
J. David Hawkins, Social Development Research Group, School of Social Work, University of Washington
Jacqueline Jones, Early Childhood Education Specialist, Princeton, NJ
Ann S. Masten, Institute of Child Development, University of Minnesota
Susan E. Mayer, Harris Graduate School of Public Policy Studies, University of Chicago
Velma McBride Murry, Peabody College, Department of Human and Organizational Development, Vanderbilt University
Bruce S. McEwen, Harold and Margaret Milliken Hatch Laboratory of Neuroendocrinology, The Rockefeller University
Pamela Morris, Department of Applied Psychology, Steinhardt School of Culture, Education, and Human Development, New York University
Taha E. Taha, Bloomberg School of Public Health, Johns Hopkins University
Kimber Bogard, Director
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Reviewers
This workshop summary has been reviewed in draft form by individuals chosen for their diverse perspectives and technical expertise, in accordance with procedures approved by the NRC’s Report Review Committee. The purpose of this independent review is to provide candid and critical comments that will assist the institution in making its published summary as sound as possible and to ensure that the summary meets institutional standards for clarity, objectivity and responsiveness to the charge. The review comments and draft manuscript remain confidential to protect the integrity of the process. We wish to thank the following individuals for their review of this workshop summary: Elena Fuentes-Afflick, Department of Pediatrics, School of Medicine, University of California, San Francisco; Roderick J.A. Little, Department of Biostatistics, School of Public Health, University of Michigan, Ann Arbor; Marie C. McCormick, Department of Social and Behavioral Sciences, Harvard School of Public Health and Harvard Medical School; Melissa McPheeters, Vanderbilt Evidence-based Practice Center and Emphasis Program Area on Healthcare and Public Health Research and Management, Institute for Medicine and Public Health, Vanderbilt University Medical Center; and Samuel H. Preston, Population Studies Center, University of Pennsylvania. Although the reviewers listed above have provided many constructive comments and suggestions, they did not see the final draft of the workshop summary before its release. The review of this summary was overseen by Shari Barkin, Department of Pediatrics, Monroe Carell Jr. Children’s Hospital at Vanderbilt University. Appointed
by the National Research Council, she was responsible for making certain that an independent examination of this summary was carried out in accordance with institutional procedures and that all review comments were carefully considered. Responsibility for the final content of this summary rests entirely with the author and the institution.