economics, behavioral economics, health care delivery, payer, and patient communities. Workshop discussions focused on

  • building insights on and recognition of the necessity of increased patient, family, and citizen engagement in achieving better outcomes and lower costs in health care;
  • exploring what has been learned about effective approaches for building patient demand and involvement in improving evidence, care, and value—including principles and barriers;
  • considering strategies and policies for activities to be undertaken at multiple levels to advance patients, in partnership with providers, as leaders and drivers of care delivery improvement through the protected use of clinical data, informed shared decisions, and value improvement; and
  • identifying important policy and research opportunities for developing the additional insights needed to accelerate progress.

Strong efforts were made to include members of the patient community, and a number of patients and patient representatives were speakers, active discussants, and workshop attendees.

The publication of the workshop proceedings provides the Roundtable with a broader mechanism to inform not only vested stakeholders, but also other interested parties about what transpired at the workshop. The workshop proceedings should not be confused with a National Academies consensus report. The proceedings do not contain findings or recommendations endorsed by the National Academies or the IOM, the Roundtable, or the Planning Committee. Opinions and statements included in the proceedings are solely those of the individual persons or participants at the workshop, and are not necessarily adopted, endorsed, or verified as accurate by the National Academies. What follows in Chapters 2 and 3 are the proceedings of the meeting. Embedded in this are important lessons for the reader. The proceedings have been edited to eliminate grammatical errors. In addition, workshop speakers were provided an opportunity to edit their remarks to ensure clarity and accuracy of statements. Corresponding PowerPoint presentations may be downloaded from the workshop website ( A copy of the workshop agenda (Appendix A), biographies of the workshop speakers (Appendix B), and a list of the workshop registrants (Appendix C) are appended.

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