References

Albritton, K., W. Stock, and M. Paulussen. 2004. Cancer at the interface of pediatric and medical oncology: Striving to understand and improve outcomes. ASCO Educational Book 587–594.

Badr, H., R. J. Paxton, J. L. Ater, D. Urbauer, and W. Demark-Wahnefried. 2011. Health behaviors and weight status of childhood cancer survivors and their parents: Similarities and opportunities for joint interventions. Journal of the American Dietetic Association 111(12):1917–1923.

Belanger, L. J., R. C. Plotnikoff, A. Clark, and K. S. Courneya. 2011. Physical activity and health-related quality of life in young adult cancer survivors: A Canadian provincial survey. Journal of Cancer Survivorship 5(1):44–53.

Bleyer, A., M. O’Leary, R. Barr, and L. Reis. 2006. Cancer epidemiology in older adolescents and young adults 15 to 29 years of age, including SEER incidence and survival: 1975–2000. NIH Publication Number 06-5767. Bethesda, MD: National Cancer Institute.

Bleyer, A., R. Barr, B. Hayes-Lattin, D. Thomas, C. Ellis, and B. Anderson. 2008. The distinctive biology of cancer in adolescents and young adults. Nature Reviews Cancer 8(4):288–298.

Bleyer, A., C. Ulrich, and S. Martin. 2012. Young adults, cancer, health insurance, socioeconomic status, and the Patient Protection and Affordable Care Act. Cancer 118(24):6018–6021.

Castellino, S. M., J. Casillas, M. M. Hudson, A. C. Mertens, J. Whitton, S. L. Brooks, L. K. Zeltzer, A. Ablin, R. Castleberry, W. Hobbie, S. Kaste, L. L. Robison, and K. C. Oeffinger. 2005. Minority adult survivors of childhood cancer: A comparison of longterm outcomes, health care utilization, and health-related behaviors from the childhood cancer survivor study. Journal of Clinical Oncology 23(27):6499–6507.

Clarke, S. A., and C. Eiser. 2007. Health behaviours in childhood cancer survivors: A systematic review. European Journal of Cancer 43(9):1373–1384.



The National Academies | 500 Fifth St. N.W. | Washington, D.C. 20001
Copyright © National Academy of Sciences. All rights reserved.
Terms of Use and Privacy Statement



Below are the first 10 and last 10 pages of uncorrected machine-read text (when available) of this chapter, followed by the top 30 algorithmically extracted key phrases from the chapter as a whole.
Intended to provide our own search engines and external engines with highly rich, chapter-representative searchable text on the opening pages of each chapter. Because it is UNCORRECTED material, please consider the following text as a useful but insufficient proxy for the authoritative book pages.

Do not use for reproduction, copying, pasting, or reading; exclusively for search engines.

OCR for page 65
References Albritton, K., W. Stock, and M. Paulussen. 2004. Cancer at the interface of pediatric and medical oncology: Striving to understand and improve outcomes. ASCO Educational Book 587–594. Badr, H., R. J. Paxton, J. L. Ater, D. Urbauer, and W. Demark-Wahnefried. 2011. Health behaviors and weight status of childhood cancer survivors and their parents: Similarities and opportunities for joint interventions. Journal of the American Dietetic Association 111(12):1917–1923. Belanger, L. J., R. C. Plotnikoff, A. Clark, and K. S. Courneya. 2011. Physical activity and health-related quality of life in young adult cancer survivors: A Canadian provincial survey. Journal of Cancer Survivorship 5(1):44–53. Bleyer, A., M. O’Leary, R. Barr, and L. Reis. 2006. Cancer epidemiology in older adolescents and young adults 15 to 29 years of age, including SEER incidence and survival: 1975–2000. NIH Publication Number 06-5767. Bethesda, MD: National Cancer Institute. Bleyer, A., R. Barr, B. Hayes-Lattin, D. Thomas, C. Ellis, and B. Anderson. 2008. The distinctive biology of cancer in adolescents and young adults. Nature Reviews Cancer 8(4):288–298. Bleyer, A., C. Ulrich, and S. Martin. 2012. Young adults, cancer, health insurance, socioeconomic status, and the Patient Protection and Affordable Care Act. Cancer 118(24):6018–6021. Castellino, S. M., J. Casillas, M. M. Hudson, A. C. Mertens, J. Whitton, S. L. Brooks, L. K. Zeltzer, A. Ablin, R. Castleberry, W. Hobbie, S. Kaste, L. L. Robison, and K. C. Oeffinger. 2005. Minority adult survivors of childhood cancer: A comparison of long- term outcomes, health care utilization, and health-related behaviors from the childhood cancer survivor study. Journal of Clinical Oncology 23(27):6499–6507. Clarke, S. A., and C. Eiser. 2007. Health behaviours in childhood cancer survivors: A systematic review. European Journal of Cancer 43(9):1373–1384. 65

OCR for page 65
66 NEEDS OF ADOLESCENTS AND YOUNG ADULTS WITH CANCER Collins, S. R., T. Garber, and R. Roberston. 2011. How the Affordable Care Act is helping young adults stay covered. Issue Brief (Commonwealth Fund) 5:1–26. Daly, C., D. Urbach, T. A. Stukel, W. Deitel, P. C. Nathan, L. F. Paszat, and N. N. Baxter. 2012. Rates of diagnostic imaging in long-term survivors of young adult malignancies. Journal of Clinical Oncology 30(Suppl 34):Abst 69. Day, G. L., W. J. Blot, R. E. Shore, J. K. McLaughlin, D. F. Austin, R. S. Greenberg, J. M. Liff, S. Preston-Martin, S. Sarkar, J. B. Schoenberg, and J. F. Fraumeni, Jr. 1994. Second cancers following oral and pharyngeal cancers: Role of tobacco and alcohol. Journal of the National Cancer Institute 86(2):131–137. de Moor, J. S., E. Puleo, R. M. Butterfield, F. P. Li, and K. M. Emmons. 2007. Availability of smoking prevention and cessation services for childhood cancer survivors. Cancer Causes and Control 18(4):423–430. Demark-Wahnefried, W., C. Werner, E. C. Clipp, A. B. Guill, M. Bonner, L. W. Jones, and P. M. Rosoff. 2005. Survivors of childhood cancer and their guardians. Cancer 103(10):2171–2180. Eiser, C., K. Absolom, D. Greenfield, A. Glaser, B. Horne, H. Waite, T. Urquhart, W. H. Wallace, R. Ross, and H. Davies. 2006. Follow-up after childhood cancer: Evaluation of a three-level model. European Journal of Cancer 42(18):3186–3190. Emmons, K. M., E. Puleo, A. Mertens, E. R. Gritz, L. Diller, and F. P. Li. 2009. Long-term smoking cessation outcomes among childhood cancer survivors in the partnership for health study. Journal of Clinical Oncology 27(1):52–60. Florin, T. A., G. E. Fryer, T. Miyoshi, M. Weitzman, A. C. Mertens, M. M. Hudson, C. A. Sklar, K. Emmons, A. Hinkle, J. Whitton, M. Stovall, L. L. Robison, and K. C. Oeffinger. 2007. Physical inactivity in adult survivors of childhood acute lymphoblastic leukemia: A report from the childhood cancer survivor study. Cancer Epidemiology, Biomarkers, and Prevention 16(7):1356–1363. Forsythe, L. P., E. E. Kent, K. E. Weaver, N. Buchanan, N. A. Hawkins, J. L. Rodriguez, A. B. Ryerson, and J. H. Rowland. 2013. Receipt of psychosocial care among cancer survivors in the United States. Journal of Clinical Oncology 31(16):1961–1969. Gupta, A. A., J. R. Anderson, A. S. Pappo, S. L. Spunt, R. Dasgupta, D. J. Indelicato, and D. S. Hawkins. 2012. Patterns of chemotherapy-induced toxicities in younger children and adolescents with rhabdomyosarcoma. Cancer 118(4):1130–1137. Gupta, V., S. Richards, and J. Rowe; Acute Leukemia Stem Cell Transplantation Trialists’ Collaborative Group. 2013. Allogeneic, but not autologous, hematopoietic cell transplantation improves survival only among younger adults with acute lymphoblastic leukemia in first remission: an individual patient data meta-analysis. Blood 121(2):339– 350. Guy, G. P., Jr., D. U. Ekwueme, K. R. Yabroff, E. C. Dowling, C. Li, J. L. Rodriguez, J. S. de Moor, and K. S. Virgo. 2013. Economic burden of cancer survivorship among adults in the United States. Journal of Clinical Oncology. September 16. [Epub ahead of print.] Hayes-Lattin, B., B. Mathews-Bradshaw, and S. Siegel. 2010. Adolescent and young adult oncology training for health professionals: A position statement. Journal of Clinical Oncology 28(32):4858–4861.

OCR for page 65
REFERENCES 67 HHS (U.S. Department of Health and Human Services) and LIVESTRONG Young Adult Alliance. 2006. Closing the gap: Research and care imperatives for adolescents and young adults with cancer. Report of the Adolescent and Young Adult Oncology Progress Review Group. http://planning.cancer.gov/library/AYAO_PRG_Report_2006_FINAL.pdf (accessed September 20, 2013). Hodgson, D. C. 2011. Late effects in the era of modern therapy for Hodgkin lymphoma. Hematology 2011:323–329. Hodgson, D. C., E. S. Gilbert, G. M. Dores, S. J. Schonfeld, C. F. Lynch, H. Storm, P. Hall, F. Langmark, E. Pukkala, M. Andersson, M. Kaijser, H. Joensuu, S. D. Fossa, and L. B. Travis. 2007. Long-term solid cancer risk among 5-year survivors of Hodgkin’s lymphoma. Journal of Clinical Oncology 25(12):1489–1497. Hudson, M. M., K. K. Ness, J. G. Gurney, D. A. Mulrooney, W. Chemaitilly, K. R. Krull, D. M. Green, G. T. Armstrong, K. A. Nottage, K. E. Jones, C. A. Sklar, D. K. Srivastava, and L. L. Robison. 2013. Clinical ascertainment of health outcomes among adults treated for childhood cancer. JAMA 309(22):2371–2381. IOM (Institute of Medicine). 2005. From cancer patient to cancer survivor: Lost in transition. Washington, DC: The National Academies Press. IOM. 2013. Reducing tobacco-related cancer incidence and mortality: Workshop summary. Washington, DC: The National Academies Press. Johnson, R. H., F. L. Chien, and A. Bleyer. 2013. Incidence of breast cancer with distant involvement among women in the United States, 1976 to 2009. JAMA 309(8):800– 805. Khatcheressian, J. L., P. Hurley, E. Bantug, L. J. Esserman, E. Grunfeld, F. Halberg, A. Hantel, N. L. Henry, H. B. Muss, T. J. Smith, V. G. Vogel, A. C. Wolff, M. R. Somerfield, and N. E. Davidson. 2013. Breast cancer follow-up and management after primary treatment: American Society of Clinical Oncology clinical practice guideline update. Journal of Clinical Oncology 31(7):961–965. Kirchhoff, A. C., C. R. Lyles, M. Fluchel, J. Wright, and W. Leisenring. 2012. Limitations in health care access and utilization among long-term survivors of adolescent and young adult cancer. Cancer 118(23):5964–5972. Kwak, M., B. J. Zebrack, K. A. Meeske, L. Embry, C. Aguilar, R. Block, B. Hayes-Lattin, Y. Li, M. Butler, and S. Cole. 2013. Trajectories of psychological distress in adolescent and young adult patients with cancer: A 1-year longitudinal study. Journal of Clinical Oncology 31(17):2160–2166. Letourneau, J. M., E. E. Ebbel, P. P. Katz, K. H. Oktay, C. E. McCulloch, W. Z. Ai, A. J. Chien, M. E. Melisko, M. I. Cedars, and M. P. Rosen. 2012. Acute ovarian failure underestimates age-specific reproductive impairment for young women undergoing chemotherapy for cancer. Cancer 118(7):1933–1939. LIVESTRONG Young Adult Alliance. 2007. Closing the gap: A strategic plan. Addressing the recommendations of the Adolescent and Young Adult Oncology Progress Review Group. www. livestrong.org/pdfs/LAF-YAA-Report-pdf (accessed September 20, 2013). Lyon, M. E., S. Jacobs, L. Briggs, Y. I. Cheng, and J. Wang. 2013. Family-centered advance care planning for teens with cancer. JAMA Pediatrics 167(5):460–467. Martin, S., C. Ulrich, M. Munsell, S. Taylor, G. Lange, and A. Bleyer. 2007. Delays in cancer diagnosis in underinsured young adults and older adolescents. The Oncologist 12:816–824.

OCR for page 65
68 NEEDS OF ADOLESCENTS AND YOUNG ADULTS WITH CANCER Meacham, L. R., J. G. Gurney, A. C. Mertens, K. K. Ness, C. A. Sklar, L. L. Robison, and K. C. Oeffinger. 2005. Body mass index in long-term adult survivors of childhood cancer: A report of the childhood cancer survivor study. Cancer 103(8):1730–1739. Menzies, A. M., L. E. Haydu, L. Visintin, M. S. Carlino, J. R. Howle, J. F. Thompson, R. F. Kefford, R. A. Scolyer, and G. V. Long. 2012. Distinguishing clinicopathologic features of patients with V600E and V600K BRAF-mutant metastatic melanoma. Clinical Cancer Research 18(12):3242–3249. Miller, T. L., S. R. Lipsitz, G. Lopez-Mitnik, A. S. Hinkle, L. S. Constine, M. J. Adams, C. French, C. Proukou, A. Rovitelli, and S. E. Lipshultz. 2010. Characteristics and determinants of adiposity in pediatric cancer survivors. Cancer Epidemiology, Biomarkers, and Prevention 19(8):2013–2022. Morgan, S., S. Davies, S. Palmer, and M. Plaster. 2010. Sex, drugs, and rock ‘n’ roll: Caring for adolescents and young adults with cancer. Journal of Clinical Oncology 28:4825–4830. Nathan, P. C., M. L. Greenberg, K. K. Ness, M. M. Hudson, A. C. Mertens, M. C. Mahoney, J. G. Gurney, S. S. Donaldson, W. M. Leisenring, L. L. Robison, and K. C. Oeffinger. 2008. Medical care in long-term survivors of childhood cancer: A report from the childhood cancer survivor study. Journal of Clinical Oncology 26(27):4401–4409. NCI (National Cancer Institute). 2010. Palliative care in cancer. http://www.cancer.gov/ cancertopics/factsheet/Support/palliative-care (accessed September 20, 2013). Nekhlyudov, L., S. M. Greene, J. Chubak, B. Rabin, L. Tuzzio, S. Rolnick, and T. S. Field. 2013. Cancer research network: using integrated healthcare delivery systems as platforms for cancer survivorship research. Journal of Cancer Survivorship 7(1):55–62. Ness, K. K., W. M. Leisenring, S. Huang, M. M. Hudson, J. G. Gurney, K. Whelan, W. L. Hobbie, G. T. Armstrong, L. L. Robison, and K. C. Oeffinger. 2009. Predictors of inactive lifestyle among adult survivors of childhood cancer: A report from the Childhood Cancer Survivor Study. Cancer 115(9):1984–1994. Oeffinger, K. C., A. C. Mertens, C. A. Sklar, Y. Yasui, T. Fears, M. Stovall, T. A. Vik, P. D. Inskip, and L. L. Robison. 2003. Obesity in adult survivors of childhood acute lymphoblastic leukemia: A report from the childhood cancer survivor study. Journal of Clinical Oncology 21(7):1359–1365. Oeffinger, K. C., A. C. Mertens, M. M. Hudson, J. G. Gurney, J. Casillas, H. Chen, J. Whitton, M. Yeazel, Y. Yasui, and L. L. Robison. 2004. Health care of young adult survivors of childhood cancer: A report from the Childhood Cancer Survivor Study. Annals of Family Medicine 2(1):61–70. Oeffinger, K. C., A. C. Mertens, C. A. Sklar, T. Kawashima, M. M. Hudson, A. T. Meadows, D. L. Friedman, N. Marina, W. Hobbie, N. S. Kadan-Lottick, C. L. Schwartz, W. Leisenring, and L. L. Robison. 2006. Chronic health conditions in adult survivors of childhood cancer. New England Journal of Medicine 355(15):1572–1582. Park, E. R., F. P. Li, Y. Liu, K. M. Emmons, A. Ablin, L. L. Robison, A. C. Mertens; Childhood Cancer Survivor Study. 2005. Health insurance coverage in survivors of childhood cancer: The Childhood Cancer Survivor Study. Journal of Clinical Oncology 23(36):9187–9197.

OCR for page 65
REFERENCES 69 Park, E. R., A. C. Kirchhoff, J. P. Zallen, J. S. Weissman, H. Pajolek, A. C. Mertens, G. T. Armstrong, L. L. Robison, K. Donelan, C. J. Recklitis, L. R. Diller, and K. A. Kuhlthau. 2012. Childhood Cancer Survivor Study participants’ perceptions and knowledge of health insurance coverage: Implications for the Affordable Care Act. Journal of Cancer Survivorship 6(3):251–259. Parsons, H. M., L. C. Harlan, N. L. Seibel, J. L. Stevens, and T. H. M. Keegan. 2011. Clinical trial participation and time to treatment among adolescents and young adults with cancer: Does age at diagnosis or insurance make a difference? Journal of Clinical Oncology 29:4045–4053. Parsons, H. M., L. C. Harlan, C. F. Lynch, A. S. Hamilton, X. C. Wu, I. Kato, S. M. Schwartz, A. W. Smith, G. Keel, and T. H. Keegan. 2012. Impact of cancer on work and education among adolescent and young adult cancer survivors. Journal of Clinical Oncology 30(19):2393–2400. Paulussen, M., S. Ahrens, and H. F. Juergens. 2003. Cure rates in Ewing tumor patients aged over 15 years are better in pediatric oncology units: Results of GPOH CESS/EICESS studies. Procedures of the American Society of Clinical Oncology 22:816 (Abstract 3279). Rabin, C., and M. Politi. 2010. Need for health behavior interventions for young adult cancer survivors. American Journal of Health Behavior 34(1):70–76. Rebholz, C. E., C. S. Rueegg, G. Michel, R. A. Ammann, N. X. von der Weid, C. E. Kuehni, and B. D. Spycher. 2012. Clustering of health behaviours in adult survivors of childhood cancer and the general population. British Journal of Cancer 107(2):234–242. Reilly, J. J., M. Brougham, C. Montgomery, F. Richardson, A. Kelly, and B. E. Gibson. 2001. Effect of glucocorticoid therapy on energy intake in children treated for acute lymphoblastic leukemia. Journal of Clinical Endocrinology and Metabolism 86(8):3742– 3745. Robien, K., K. K. Ness, L. M. Klesges, K. S. Baker, and J. G. Gurney. 2008. Poor adherence to dietary guidelines among adult survivors of childhood acute lymphoblastic leukemia. Journal of Pediatric Hematology/Oncology 30(11):815–822. Rojas, M. P., E. Telaro, A. Russo, I. Moschetti, L. Coe, R. Fossati, D. Palli, T. M. del Roselli, and A. Liberati. 2005. Follow-up strategies for women treated for early breast cancer. Cochrane Database of Systematic Reviews (1):CD001768. SAMHSA (Substance Abuse and Mental Health Services Administration). 2009. Results from the 2008 National Survey on Drug Use and Health: National Findings. http:// www.samhsa.gov/data/nsduh/2k8nsduh/2k8results.pdf (accessed October 28, 2013). SAMHSA. 2010. Results from the 2009 National Survey on Drug Use and Health:Volume I. Summary of National Findings. http://oas.samhsa.gov/NSDUH/2k9NSDUH/2k9 Results.htm (accessed October 28, 2013). Schnipper, L. E., T. J. Smith, D. Raghavan, D. W. Blayney, P. A. Ganz, T. M. Mulvey, and D. S. Wollins. 2012. American Society of Clinical Oncology identifies five key opportunities to improve care and reduce costs: The top five list for oncology. Journal of Clinical Oncology 30(14):1715–1724. Smith, A. W., K. M. Bellizzi, T. H. Keegan, B. Zebrack, V. W. Chen, A. V. Neale, A. S. Hamilton, M. Shnorhavorian, and C. F. Lynch. 2013. Health-related quality of life of adolescent and young adult patients with cancer in the United States: The Adolescent and Young Adult Health Outcomes and Patient Experience study. Journal of Clinical Oncology 31(17):2136–2145.

OCR for page 65
70 NEEDS OF ADOLESCENTS AND YOUNG ADULTS WITH CANCER Stock, W., M. La, B. Sanford, C. D. Bloomfield, J. W. Vardiman, P. Gaynon, R. A. Larson, and J. Nachman; Children’s Cancer Group; Cancer and Leukemia Group B. 2008. What determines the outcomes for adolescents and young adults with acute lymphoblastic leukemia treated on cooperative group protocols? A comparison of Children’s Cancer Group and Cancer and Leukemia Group B studies. Blood 112(5):1646–1654. Tai, E., N. Buchanan, J. Townsend, T. Fairley, A. Moore, and L. C. Richardson. 2012. Health status of adolescent and young adult cancer survivors. Cancer 118(19):4884–4891. Temel, J. S., J. A. Greer, A. Muzikansky, E. R. Gallagher, S. Admane, V. A. Jackson, C. M. Dahlin, C. D. Blinderman, J. Jacobsen, W. F. Pirl, J. A. Billings, and T. J. Lynch. 2010. Early palliative care for patients with metastatic non-small-cell lung cancer. New England Journal of Medicine 363(8):733–742. Tricoli, J. V., N. L. Seibel, D. G. Blair, K. Albritton, and B. Hayes-Lattin. 2011. Unique characteristics of adolescent and young adult acute lymphoblastic leukemia, breast cancer, and colon cancer. Journal of the National Cancer Institute 103(8):628–635. Tyc, V. L., S. N. Rai, S. Lensing, J. L. Klosky, D. B. Stewart, and J. Gattuso. 2003. Intervention to reduce intentions to use tobacco among pediatric cancer survivors. Journal of Clinical Oncology 21(7):1366–1372. Veal, G. J., C. M. Hartford, and C. F. Stewart. 2010. Clinical pharmacology in the adolescent oncology patient. Journal of Clinical Oncology 28(32):4790–4799. WCRF (World Cancer Research Fund) and AICR (American Institute for Cancer Research). 1997. Food, nutrition and the prevention of cancer: A global perspective. London, UK: World Cancer Research Fund, and Washington, DC: American Institute for Cancer Research. Withycombe, J. S., J. E. Post-White, J. L. Meza, R. G. Hawks, L. M. Smith, N. Sacks, and N. L. Seibel. 2009. Weight patterns in children with higher risk all: A report from the children’s oncology group (COG) for CCG. 1961. Pediatric Blood and Cancer 53(7):1249–1254. Yabroff, K. R., P. F. Short, S. Machlin, E. Dowling, H. Rozjabek, C. Li, T. McNeel, D. U. Ekwueme, and K. S. Virgo. 2013. Access to preventive health care for cancer survivors. American Journal of Preventive Medicine 45(3):304–312. Zebrack, B., B. Mathews-Bradshaw, and S. Siegel. 2010. Quality cancer care for adolescents and young adults: A position statement. Journal of Clinical Oncology 28(32):4862–4867.