Appendix A

Workshop Agenda

Improving the Efficiency and Effectiveness of Genomic Science Translation: A Workshop

December 3, 2012

The Beckman Center of the National Academies
100 Academy
Irvine, CA

Workshop Objectives:

•   To examine how basic science can best be positioned to foster successful translation of early genomic discoveries.

•   To explore the challenges in and identify potential opportunities for improving the efficacy of the translation process.

•   To define pathways for moving innovative basic science forward.

 
8:30–8:45 A.M. WELCOMING REMARKS AND CHARGE TO WORKSHOP SPEAKERS AND PARTICIPANTS
 
 

Wylie Burke, Roundtable Co-Chair

Professor and Chair,

Department of Bioethics and Humanities

University of Washington, Seattle

 
 

Sharon Terry, Roundtable Co-Chair

President and Chief Executive Officer

Genetic Alliance

 


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Appendix A Workshop Agenda Improving the Efficiency and Effectiveness of Genomic Science Translation: A Workshop December 3, 2012 The Beckman Center of the National Academies 100 Academy Irvine, CA Workshop Objectives: • To examine how basic science can best be positioned to foster suc- cessful translation of early genomic discoveries. • To explore the challenges in and identify potential opportunities for improving the efficacy of the translation process. • To define pathways for moving innovative basic science forward. 8:30–8:45 A.M. WELCOMING REMARKS AND CHARGE TO WORKSHOP SPEAKERS AND PARTICIPANTS Wylie Burke, Roundtable Co-Chair Professor and Chair, Department of Bioethics and Humanities University of Washington, Seattle Sharon Terry, Roundtable Co-Chair President and Chief Executive Officer Genetic Alliance 47

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48 EFFICIENCY AND EFFECTIVENESS OF GENOMIC SCIENCE TRANSLATION 8:45–10:20 A.M. S  ESSION I: CONNECTING BASIC RESEARCH AND HEALTH CARE NEEDS Discussion Provocateur: William J. Rutter Chairman/Chief Executive Officer and Founder Synergenics, LLC 8:45–9:05 A.M. Genomics to Health Edison Liu President and Chief Executive Officer The Jackson Laboratory 9:05–9:25 A.M. Genomics and Personalized Cancer Treatment David G. Huntsman Associate Professor of Medicine University of British Columbia 9:25–10:15 A.M. Discussion with Speakers and Attendees 10:15–10:20 A.M. Session Distillation and Potential Next Steps William J. Rutter Chairman/Chief Executive Officer and Founder Synergenics, LLC 10:20–10:35 A.M. BREAK 10:35 A.M.– S  ESSION II: MOVING BASIC SCIENCE FORWARD 12:10 P.M. Discussion Provocateur: Robert L. Nussbaum Chief, Division of Medical Genetics Department of Medicine and Institute of Human Genetics University of California, San Francisco Discovering New Drugs and Diagnostics from 10:35–10:55 A.M.  300 Billion Points of Data Butte Atul Chief and Associate Professor of Systems Medicine, Department of Pediatrics Stanford University School of Medicine

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APPENDIX A 49 Translating Genetic and Genomic Research in 10:55–11:15 A.M.  Neuropsychiatric Conditions: Lessons from Autism Research Daniel Geschwind Gordon and Virginia MacDonald Distinguished Chair in Human Genetics and Professor of Neurology and Psychiatry, University of California, Los Angeles, School of Medicine 11:15 A.M.– Discussion with Speakers and Attendees 12:05 P.M. 12:05–12:10 P.M. Session Distillation and Potential Next Steps Robert L. Nussbaum Chief, Division of Medical Genetics Department of Medicine and Institute of Human Genetics University of California, San Francisco, School of Medicine 12:10–1:00 P.M. WORKING LUNCH 1:00–2:35 P.M. S  ESSION III: THE ROLE OF INDUSTRY AND VENTURE CAPITAL Discussion Provocateur: Wylie Burke, Roundtable Co-Chair Professor and Chair Department of Bioethics and Humanities University of Washington, Seattle 1:00–1:20 P.M. Lost in Translation: The Systematic and Comprehensive Geoffrey Duyk Partner and Managing Director TPG Biotech T  ranslating Genomic Science into Clinical Practice: 1:20–1:40 P.M. Time for Innovative Business Models Randy Scott Chairman and Chief Executive Officer InVitae

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50 EFFICIENCY AND EFFECTIVENESS OF GENOMIC SCIENCE TRANSLATION 1:40–2:30 P.M. Discussion with Speakers and Attendees 2:30–2:35 P.M. Session Distillation and Potential Next Steps Wylie Burke, Roundtable Co-Chair Professor and Chair Department of Bioethics and Humanities University of Washington, Seattle 2:35–4:10 P.M. SESSION IV: THE ROLE OF ADVOCACY IN FACILITATING BASIC SCIENTIFIC RESEARCH Discussion Provocateur: Sharon Terry, Roundtable Co-Chair President and Chief Executive Officer Genetic Alliance 2:35–2:55 P.M. Purpose of Advocacy—Helping to Solve Important Problems Pat Furlong Founding President and Chief Executive Officer Parent Project Muscular Dystrophy 2:55–3:15 P.M. Bridging the Gap Between Basic and Clinical Research Todd Sherer Chief Executive Officer The Michael J. Fox Foundation for Parkinson’s Research 3:15–4:05 P.M. Discussion with Speakers and Attendees 4:05–4:10 P.M. Session Distillation and Potential Next Steps Sharon Terry, Roundtable Co-Chair President and Chief Executive Officer Genetic Alliance 4:10–4:25 P.M. BREAK 4:25–5:30 P.M. SESSION V: NEXT STEPS

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APPENDIX A 51 4:25–5:30 P.M. LEADING THE STRATEGY FOR MORE EFFICIENT AND EFFECTIVE TRANSLATION Discussion Provocateur: Geoffrey Ginsburg Director, Center for Genomic Medicine Institute for Genomic Sciences & Policy Duke University Discussants: William J. Rutter Chairman/Chief Executive Officer and Founder Synergenics, LLC Daniel Geschwind Gordon and Virginia MacDonald Distinguished Chair in Human Genetics and Professor of Neurology and Psychiatry, University of California, Los Angeles, School of Medicine Geoffrey Duyk Partner and Managing Director, TPG Biotech Todd Sherer Chief Executive Officer, The Michael J. Fox Foundation for Parkinson’s Research 5:30–5:45 P.M. SESSION VI: CONCLUSION 5:30–5:45 P.M. CONCLUDING REMARKS Wylie Burke, Roundtable Co-Chair Professor and Chair Department of Bioethics and Humanities University of Washington, Seattle Sharon Terry, Roundtable Co-Chair President and Chief Executive Officer Genetic Alliance 5:45 P.M. ADJOURN

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