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Suggested Citation:"Appendix D: Registered Attendees." Institute of Medicine. 2014. Improving the Efficiency and Effectiveness of Genomic Science Translation: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/18549.
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Appendix D

Registered Attendees

Euan Ashley

Stanford University

Scott Beck

Mayo Clinic

Paul Billings

Life Technologies

Bruce Blumberg

Kaiser Permanente Northern California

Heather Brown

Blue Cross and Blue Shield Association

Wylie Burke

University of Washington, Seattle

Atul Butte

Stanford University

Melina Cimler

Illumina

Sean David

Stanford University

Vamil Divan

Credit Suisse

Michael Dougherty

American Society of Human Genetics

Geoffrey Duyk

TPG Biotech/ART

Samir Elamrani

Wilson Sonsini Goodrich & Rosati

Patricia Furlong

Parent Project Muscular Dystrophy

Daniel Geschwind

University of California, Los Angeles

Geoffrey Ginsburg

Duke University

Suggested Citation:"Appendix D: Registered Attendees." Institute of Medicine. 2014. Improving the Efficiency and Effectiveness of Genomic Science Translation: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/18549.
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William Gunn

Mendeley

Carolyn Hoban

Multiple Myeloma Research Foundation

Julia Hoeng

Philip Morris International

Eric Hoffman

Children’s National Medical Center

Gillian Hooker

Johns Hopkins University/ National Human Genome Research Institute Genetic Counseling Training Program

David Huntsman

British Columbia Cancer Agency

Elizabeth Iorns

Science Exchange

Samuel Johnson

Kaiser Permanente Colorado

Mohamed Khan

British Columbia Cancer Agency

Jana Klauer

Private Practice in Nutrition and Obesity

Roger Klein

Cleveland Clinic Foundation

Gabriela Lavezzari

PhRMA

Edison Liu

The Jackson Laboratory

Robert McCormack

Veridex, LLC

Kelly Marie McVearry

Northrop Grumman Health IT

C. Douglas Monroe

Kaiser Permanente

Jan Nowak

NorthShore University HealthSystem

Robert Nussbaum

University of California, San Francisco

Jyotishman Pathak

Mayo Clinic

Vijay Pillai

Oracle Health Sciences

Victoria Pratt

Quest Diagnostics

Ronald Przygodzki

U.S. Department of Veterans Affairs

Laura Lyman Rodriguez

National Human Genome Research Institute

Allen Roses

Duke University

Helena Rubinstein

Independent

William Rutter

Synergenics, LLC

Danielle Scelfo

Genomic Health

Suggested Citation:"Appendix D: Registered Attendees." Institute of Medicine. 2014. Improving the Efficiency and Effectiveness of Genomic Science Translation: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/18549.
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Sheri Schully

National Cancer Institute Joan Scott National Coalition for Health Professional Education in Genetics

Randy Scott

InVitae Corporation

Cecili Sessions

Air Force Medical Support Agency

Sam Shekar

Northrop Grumman

Todd Sherer

The Michael J. Fox Foundation for Parkinson’s Research

Pamela Shiao

Azusa Pacific University

Moyra Smith

University of California, Irvine

Kathryn Johansen Taber

American Medical Association

Weimin Tang

CrownBio

Sharon Terry

Genetic Alliance

James Thompson

McKesson

David Veenstra

University of Washington, Seattle

Michael Watson

American College of Medical Genetics and Genomics

Thomas White

University of California, Berkeley

Catherine Wicklund

Northwestern University

Dave Wilson

Oracle

Dara Wright

Affymetrix

Suggested Citation:"Appendix D: Registered Attendees." Institute of Medicine. 2014. Improving the Efficiency and Effectiveness of Genomic Science Translation: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/18549.
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Suggested Citation:"Appendix D: Registered Attendees." Institute of Medicine. 2014. Improving the Efficiency and Effectiveness of Genomic Science Translation: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/18549.
×
Page 65
Suggested Citation:"Appendix D: Registered Attendees." Institute of Medicine. 2014. Improving the Efficiency and Effectiveness of Genomic Science Translation: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/18549.
×
Page 66
Suggested Citation:"Appendix D: Registered Attendees." Institute of Medicine. 2014. Improving the Efficiency and Effectiveness of Genomic Science Translation: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/18549.
×
Page 67
Suggested Citation:"Appendix D: Registered Attendees." Institute of Medicine. 2014. Improving the Efficiency and Effectiveness of Genomic Science Translation: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/18549.
×
Page 68
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 Improving the Efficiency and Effectiveness of Genomic Science Translation: Workshop Summary
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The process for translating basic science discoveries into clinical applications has historically involved a linear and lengthy progression from initial discovery to preclinical testing, regulatory evaluation and approval, and, finally, use in clinical practice. The low rate of translation from basic science to clinical application has been a source of frustration for many scientists, clinicians, investors, policy makers, and patients who hoped that investments in research would result in improved products and processes for patients. Some feel that the anticipated deliverables from the Human Genome Project have not yet materialized, and although understanding of human health and disease biology has increased, there has not been a concomitant increase in the number of approved drugs for patients over the past 10 years.

Improving the Efficiency and Effectiveness of Genomic Science Translation is the summary of a workshop convened by the Institute of Medicine Roundtable on Translating Genomic-Based Research for Health in December 2012 to explore ways to improve the efficiency and effectiveness of the translation of genomic science to clinical practice. The workshop convened academic researchers, industry representatives, policy makers, and patient advocates to explore obstacles to the translation of research findings to clinical practice and to identify opportunities to support improvement of the early stages of the process for translation of genetic discoveries. This report discusses the realignment of academic incentives, the detection of innovative ways to fund translational research, and the generation or identification of alternative models that accurately reflect human biology or disease to provide opportunities to work across sectors to advance the translation of genomic discoveries.

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