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Stem Cell Therapies: Opportunities for Ensuring the Quality and Safety of Clinical Offerings: Summary of a Joint Workshop by the Institute of Medicine, the National Academy of Sciences, and the International Society for Stem Cell Research (2014)

Chapter: Appendix D: Registered Attendees

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Page 81 Cite
Suggested Citation:"Appendix D: Registered Attendees." Institute of Medicine and National Research Council. 2014. Stem Cell Therapies: Opportunities for Ensuring the Quality and Safety of Clinical Offerings: Summary of a Joint Workshop by the Institute of Medicine, the National Academy of Sciences, and the International Society for Stem Cell Research. Washington, DC: The National Academies Press. doi: 10.17226/18746.
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D

Registered Attendees

Lida Anestidou

Institute for Laboratory Animal Research

The National Academies

María de Jesús Medina Arellano

Autonomous University of Nayarit, Mexico

Andrew H. Baker

University of Glasgow, Scotland

Paolo Bianco

Department of Molecular Medicine

Sapienza University of Rome

Alessandro Blasimme

Institut National de la Santé et de la Recherche

Médicale, France

Laura Bocanera

Akron Clinical

Michael Boo

National Marrow Donor Program

Joel Brill

Predictive Health, LLC

Maria Cabreira

Texas Heart Institute

Tim Caulfield

University of Alberta, Canada

Sheila Chari

Cell Press—Cell Stem Cell

R. Alta Charo

University of Wisconsin–Madison

George Daley

Harvard University

Reed Davis

International Cellular Medicine Society

Page 82 Cite
Suggested Citation:"Appendix D: Registered Attendees." Institute of Medicine and National Research Council. 2014. Stem Cell Therapies: Opportunities for Ensuring the Quality and Safety of Clinical Offerings: Summary of a Joint Workshop by the Institute of Medicine, the National Academy of Sciences, and the International Society for Stem Cell Research. Washington, DC: The National Academies Press. doi: 10.17226/18746.
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Ellen G. Feigal

California Institute for Regenerative Medicine

Fred H. Gage

Salk Institute for Biological Studies

Nara Gavini

National Heart, Lung, and Blood Institute

National Institutes of Health

Larry Goldstein

University of California, San Diego, School of Medicine

Nady Golestaneh

Georgetown University School of Medicine

Barbara Graves

Howard Hughes Medical Institute

Rebecca Jorgenson

California Institute for Regenerative Medicine

Story Landis

National Institutes of Health

Jacquelyn Liberto

MEDNAX

National Medical Group

Vivian Lopez-Blanco

MEDNAX

National Medical Group

Michael May

Center for Commercialization of Regenerative Medicine

Roger Medel

MEDNAX

National Medical Group

Maria Millan

California Institute for Regenerative Medicine

Toshio Miyata

Health and Global Policy Institute

Afsaneh Morteza

Beth Israel Deaconess Medical Center

Willis Navarro

National Marrow Donor Program

Barbara Nelsen

Nelsen Biomedical

Steve Olson

Writer

Joon Faii Ong

Imperial College, London

Luis Ortiz

University of Pittsburgh

Alan Petersen

Monash University, Australia

Michael Phelan

Osage Partners

Page 83 Cite
Suggested Citation:"Appendix D: Registered Attendees." Institute of Medicine and National Research Council. 2014. Stem Cell Therapies: Opportunities for Ensuring the Quality and Safety of Clinical Offerings: Summary of a Joint Workshop by the Institute of Medicine, the National Academy of Sciences, and the International Society for Stem Cell Research. Washington, DC: The National Academies Press. doi: 10.17226/18746.
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Amy Comstock Rick

Parkinson’s Action Network

Margaret Riley

University of Virginia School of Law

Pamela Robey

National Insitute of Dental and Craniofacial Research

National Insitutes of Health

Heather Rooke

International Society for Stem Cell Research

Beth Roxland

New York University School of Law

Glenn L. Schattman

Weill Medical College

Christopher Scott

Stanford University

Aditi Sengupta

Department of Continuing Medical Education

Harvard Medical School

Douglas Sipp

RIKEN Center for Developmental Biology

Susan Soloman

New York Stem Cell Foundation

Alan Spitzer

MEDNAX

National Medical Group

Sally Temple

Regenerative Research Foundation

Kemi Tomobi

Student National Medical Association

Gil Van Bokkelen

Athersys, Inc.

Luciano Vidal

Hospital Lanari

David C. Vladeck

Georgetown University School of Law

John Wagner

University of Minnesota

Irving L. Weissman

Stanford University School of Medicine

Michael Werner

Alliance for Regenerative Medicine

Frank Williams

Hawaii Institute of Molecular Education

Nancy Witty

International Society for Stem Cell Research

Page 84 Cite
Suggested Citation:"Appendix D: Registered Attendees." Institute of Medicine and National Research Council. 2014. Stem Cell Therapies: Opportunities for Ensuring the Quality and Safety of Clinical Offerings: Summary of a Joint Workshop by the Institute of Medicine, the National Academy of Sciences, and the International Society for Stem Cell Research. Washington, DC: The National Academies Press. doi: 10.17226/18746.
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Jiwen Zhang

GE Healthcare

Qi Zhou

Institute of Zoology

Chinese Academy of Sciences

Page 81 Cite
Suggested Citation:"Appendix D: Registered Attendees." Institute of Medicine and National Research Council. 2014. Stem Cell Therapies: Opportunities for Ensuring the Quality and Safety of Clinical Offerings: Summary of a Joint Workshop by the Institute of Medicine, the National Academy of Sciences, and the International Society for Stem Cell Research. Washington, DC: The National Academies Press. doi: 10.17226/18746.
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Page 82 Cite
Suggested Citation:"Appendix D: Registered Attendees." Institute of Medicine and National Research Council. 2014. Stem Cell Therapies: Opportunities for Ensuring the Quality and Safety of Clinical Offerings: Summary of a Joint Workshop by the Institute of Medicine, the National Academy of Sciences, and the International Society for Stem Cell Research. Washington, DC: The National Academies Press. doi: 10.17226/18746.
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Page 83 Cite
Suggested Citation:"Appendix D: Registered Attendees." Institute of Medicine and National Research Council. 2014. Stem Cell Therapies: Opportunities for Ensuring the Quality and Safety of Clinical Offerings: Summary of a Joint Workshop by the Institute of Medicine, the National Academy of Sciences, and the International Society for Stem Cell Research. Washington, DC: The National Academies Press. doi: 10.17226/18746.
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Page 84 Cite
Suggested Citation:"Appendix D: Registered Attendees." Institute of Medicine and National Research Council. 2014. Stem Cell Therapies: Opportunities for Ensuring the Quality and Safety of Clinical Offerings: Summary of a Joint Workshop by the Institute of Medicine, the National Academy of Sciences, and the International Society for Stem Cell Research. Washington, DC: The National Academies Press. doi: 10.17226/18746.
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Stem cells offer tremendous promise for advancing health and medicine. Whether being used to replace damaged cells and organs or else by supporting the body's intrinsic repair mechanisms, stem cells hold the potential to treat such debilitating conditions as Parkinson's disease, diabetes, and spinal cord injury. Clinical trials of stem cell treatments are under way in countries around the world, but the evidence base to support the medical use of stem cells remains limited. Despite this paucity of clinical evidence, consumer demand for treatments using stem cells has risen, driven in part by a lack of available treatment options for debilitating diseases as well as direct-to-consumer advertising and public portrayals of stem cell-based treatments. Clinics that offer stem cell therapies for a wide range of diseases and conditions have been established throughout the world, both in newly industrialized countries such as China, India, and Mexico and in developed countries such as the United States and various European nations. Though these therapies are often promoted as being established and effective, they generally have not received stringent regulatory oversight and have not been tested with rigorous trials designed to determine their safety and likely benefits. In the absence of substantiated claims, the potential for harm to patients - as well as to the field of stem cell research in general - may outweigh the potential benefits.

To explore these issues, the Institute of Medicine, the National Academy of Sciences, and the International Society for Stem Cell Research held a workshop in November 2013. Stem Cell Therapies summarizes the workshop. Researchers, clinicians, patients, policy makers, and others from North America, Europe, and Asia met to examine the global pattern of treatments and products being offered, the range of patient experiences, and options to maximize the well-being of patients, either by protecting them from treatments that are dangerous or ineffective or by steering them toward treatments that are effective. This report discusses the current environment in which patients are receiving unregulated stem cell offerings, focusing on the treatments being offered and their risks and benefits. The report considers the evidence base for clinical application of stem cell technologies and ways to assure the quality of stem cell offerings.

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