pilot studies of new tests before wide-scale introduction;
cost-effectiveness analysis of genetic testing;
critical deficiencies in data on genetic services;
research on population distribution and heterogeneity of traits involved in genetic or genetically influenced disease; and
assessment of what has been learned thus far from ELSI research and policy studies.
The National Academies of Sciences, Engineering, and Medicine
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Assessing Genetic Risks: Implications for Health and Social Policy.
Washington, DC: The National Academies Press, 1994.
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