Past Commissions and Advisory Boards

This Appendix is an expansion of the background information on some of the past commissions and advisory boards that have served to consider social, ethical, or legal issues related to advances in biomedicine. These are the:

  • Ethics Advisory Board of the Department of Health, Education, and Welfare (DHEW);

  • National Commission for the Protection of Human Subjects of Biomedical and Behavioral Research (National Commission);

  • President's Commission for the Study of Ethical Problems in Medicine and Biomedical and Behavioral Research (President's Commission);

  • NIH Recombinant DNA Advisory Committee;

  • Working Group on Ethical, Legal, and Social Implications of the Human Genome Project (ELSI Working Group);

  • Biomedical Ethics Advisory Committee;

  • New York State Task Force on Life and the Law; and

  • New Jersey Bioethics Commission.



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Society's Choices: Social and Ethical Decision Making in Biomedicine Past Commissions and Advisory Boards This Appendix is an expansion of the background information on some of the past commissions and advisory boards that have served to consider social, ethical, or legal issues related to advances in biomedicine. These are the: Ethics Advisory Board of the Department of Health, Education, and Welfare (DHEW); National Commission for the Protection of Human Subjects of Biomedical and Behavioral Research (National Commission); President's Commission for the Study of Ethical Problems in Medicine and Biomedical and Behavioral Research (President's Commission); NIH Recombinant DNA Advisory Committee; Working Group on Ethical, Legal, and Social Implications of the Human Genome Project (ELSI Working Group); Biomedical Ethics Advisory Committee; New York State Task Force on Life and the Law; and New Jersey Bioethics Commission.

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Society's Choices: Social and Ethical Decision Making in Biomedicine ETHICS ADVISORY BOARD OF THE DEPARTMENT OF HEALTH, EDUCATION, AND WELFARE (DHEW) Dates of operation: 1978-1980 Sponsorship/appointing authority: DHEW Secretary Function: to consult on all DHEW programs and policies, review of waiver submissions for proposals of fetal research potentially exceeding existing standards of risk, and advise the DHEW Secretary regarding such projects' approval or disapproval Scope: DHEW only Membership characteristics: rotating; included attorneys, theologians, and physicians Members: Chairman James C. Gaither, J.D. Cooley, Godward, Castro, Huddleson and Tatum San Francisco, California Vice Chairman David A. Hamburg, M.D. President, Carnegie Corporation of New York Member, Institute of Medicine Members Sissela Bok, Ph.D. Lecturer in Medical Ethics Harvard University Jack T. Conway Senior Vice President United Way of America Washington, D.C. Henry W. Foster, M.D. Professor and Chairman Department of Obstetrics and Gynecology Meharry Medical College Donald A. Henderson, M.D. Dean, School of Hygiene and Public Health Johns Hopkins University Maurice Lazarus Chairman, Finance Committee Federated Department Stores, Inc. Boston, Massachusetts Richard A. McCormick, S.T.D. Professor of Christian Ethics Kennedy Institute for the Study of Reproduction and Bioethics Georgetown University Washington, D.C. Robert F. Murray, M.D. Chief, Division of Medical Genetics College of Medicine Howard University Mitchell W. Spellman, M.D. Dean for Medical Services and Professor of Surgery Harvard Medical School Daniel C. Tosteson, M.D. Dean, Harvard Medical School Agnes N. Williams, LL.B. Potomac, Maryland Eugene M. Zwieback, M.D. Surgeon in Private Practice Omaha, Nebraska Report: Report and Conclusions: Support of Research Involving Human In Vitro Fertilization and Embryo Transfer, 1979

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Society's Choices: Social and Ethical Decision Making in Biomedicine THE NATIONAL COMMISSION FOR THE PROTECTION OF HUMAN SUBJECTS OF BIOMEDICAL AND BEHAVIORAL RESEARCH (NATIONAL COMMISSION) Dates of operation: 1974-1978 Sponsorship/appointing authority: U.S. Congress (under National Research Act of 1974, P.L. 93-348); appointments made by the Secretary of the Department of Health, Education, and Welfare (DHEW) Function: to identify basic ethical principles that should underlie the conduct of biomedical and behavioral research involving human subjects, develop guidelines that should be followed in such research to assure that it is conducted in accordance with such principles, and make recommendations to the DHEW Secretary regarding the development of regulations Scope: limited to research conducted or funded by the DHEW, study topics were congressionally mandated Membership characteristics: 5 scientists, 3 lawyers, 2 ethicists, and 1 social worker Members: Chairperson Kenneth J. Ryan, M.D. Chief of Staff Boston Hospital for Women Members Joseph V. Brady, Ph.D. Professor of Behavioral Biology Johns Hopkins University Robert E. Cooke, M.D. President Medical College of Pennsylvania Dorothy I. Height President National Council of Negro Women, Inc. Albert R.Jonsen, Ph.D. Associate Professor of Bioethics University of California, San Francisco Patricia King, J.D. Associate Professor of Law Georgetown University Law Center Karen Lebacqz, Ph.D. Associate Professor of Christian Ethics Pacific School of Religion David W. Louisell, J.D. Professor of Law University of California, Berkeley Donald W. Seldin, M.D. Professor and Chairman Department of Internal Medicine University of Texas at Dallas Eliot Stellar, Ph.D. Provost of the University Professor of Physiological Psychology University of Pennsylvania Robert H. Turtle, LL.B. Attorney VomBaur, Coburn, Simmons & Turtle Washington, D.C.

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Society's Choices: Social and Ethical Decision Making in Biomedicine Reports: Report and Recommendations: Research on the Fetus, 1975 Appendix to Report and Recommendations: Research on the Fetus, 1975 Proceedings of the March 14-15, 1975 Meeting The Belmont Report: Ethical Principles and Guidelines for the Protection of Human Subjects of Research, 1978 Appendix (Volumes I and II) to The Belmont Report: Ethical Principles and Guidelines for the Protection of Human Subjects of Research, 1978 Report and Recommendations: Research Involving Prisoners, 1976 Appendix to Report and Recommendations: Research Involving Prisoners, 1976 Report and Recommendations: Research Involving Children, 1977 Appendix to Report and Recommendations: Research Involving Children, 1977 Report and Recommendations: Psychosurgery, 1977 Appendix to Report and Recommendations: Psychosurgery, 1977 Disclosure of Research Information Under the Freedom of Information Act, 1977 Report and Recommendations: Special Study: Implications of Advances in Biomedical and Behavioral Research, 1978 Report and Recommendations: Research Involving Those Institutionalized as Mentally Infirm, 1978 Appendix to Report and Recommendations: Research Involving Those Institutionalized as Mentally Infirm, 1978 Report and Recommendations: Institutional Review Boards, 1978 Appendix to Report and Recommendations: Institutional Review Boards, 1978 Report and Recommendations: Ethical Guidelines for Delivery of Health Services by DHEW, 1978 Appendix to Report and Recommendations: Ethical Guidelines for Delivery of Health Services by DHEW, 1978

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Society's Choices: Social and Ethical Decision Making in Biomedicine PRESIDENT'S COMMISSION FOR THE STUDY OF ETHICAL PROBLEMS IN MEDICINE AND BIOMEDICAL AND BEHAVIORAL RESEARCH (PRESIDENT'S COMMISSION) Dates of Operation: January 1980-March 1983 Sponsorship/appointing authority: U.S. Congress (under: Biomedical Research and Training Amendments of 1978, P.L. 95-622); appointments made by the President Function: to advise the President and Congress on bioethical issues Scope: report topics mandated by Congress, but commission also had authority to undertake studies upon its own initiative Membership characteristics: rotating; as specified by law, there were 11 active commissioners at a time, 3 of whom were active in the practice of medicine, 3 biomedical or behavioral researchers, and 5 members from other fields Members: Chairman Morris B. Abram, J.D., L.L.D. New York, New York (July 1979-March 1983) Members H. Thomas Ballantine, Jr., M.D., M.S., D.Sc. Harvard Medical School (Aug. 1982-March 1983) George R. Dunlop, M.D. University of Massachusetts (Feb. 1982-March 1983) Renee C. Fox, Ph.D., D.H.L. University of Pennsylvania (July 1979-Feb. 1982) Mario Garcia-Palmieri, M.D. University of Puerto Rico (July 1979-Aug. 1982) Franes K. Graham, Ph.D. University of Wisconsin (May 1980-Jan. 1982) Bruce Kelton Jacobson, M.D. Southwestern Medical School Fort Worth, Texas (Aug. 1982-March 1983) Albert R. Jonsen, S.T.M., Ph.D. University of California, San Francisco (July 1979-Aug. 1982) Patricia A. King, J.D. Georgetown University (July 1979-May 1980) Mathilde Krim, Ph.D. Sloan-Kettering Institute for Cancer Research (July 1979-Oct. 1981) Donald N. Medearis, M.D. Harvard University (July 1979-Feb. 1982) John J. Moran, B.S. Houston, Texas (Aug. 1982-March 1983) Arno G. Motulsky, M.D. University of Washington (July 1979-March 1983) Daher B. Rahi, D.O. St. Clair Shores, Michigan (Feb. 1982-March 1983) Fritz C. Redlich, M.D. University of California, Los Angeles (July 1979-Feb. 1980)

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Society's Choices: Social and Ethical Decision Making in Biomedicine Anne A. Scitovsky, M.A. Palo Alto Medical Research Foundation (July 1979-Aug. 1982) Seymour Siegel, D.H.L. Jewish Theological Seminary New York, New York (Feb. 1982-March 1983) Lynda Hare Smith, B.S. Colorado Springs, Colorado (March 1982-March 1983) Kay Toma, M.D. Bell, California (Aug. 1982-March 1983) Charles J. Walker, M.D. Nashville, Tennessee (July 1979-March 1983) Carolyn A. Williams, Ph.D. University of North Carolina, Chapel Hill (Sept. 1980-Aug. 1982) Executive Director Alexander Morgan Capron, LL.B. (Dec. 1979-March 1983) Deputy Director Barbara Mishkin, M.A., J.D. (Jan. 1980-Jan. 1983) Assistant Directors MEDICINE Joanne Lynn, M.D., M.A. (Jan. 1981-March 1983) LAW Alan Meisel, J.D. (Aug, 1982-Dec. 1982) Alan J. Weisbard, J.D. (Jan. 1980-Aug. 1982) Professional Staff ECONOMICS Mary Ann Baily, Ph.D. (March 1980-Feb. 1983) ETHICS Dan Brock, Ph.D. (July 1981-July 1982) Allen Buchanan, Ph.D. (Jan. 1982-Dec. 1982) HEALTH POLICY Kathryn Kelly, M.S., M.S.W. (Oct. 1981-Dec. 1982) Susan Morgan (Feb. 1981-Feb. 1983) SOCIOLOGY Marian Osterweiss, Ph.D. (Jan. 1981-Jan. 1983) PUBLIC HEALTH Renie Schapiro, M.P.H. (March 1980-Feb. 1983) ETHICS Daniel Wikler, Ph.D. (Sept. 1980-Aug. 1981) Continuing Consultants SOCIOLOGY Bradford H. Gray, Ph.D. (Aug. 1981-Dec. 1982) ETHICS Dorothy E. Vawter (March 1980-Feb. 1983)

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Society's Choices: Social and Ethical Decision Making in Biomedicine Reports: Defining Death: A Report on the Medical, Legal, and Ethical Issues in the Determination of Death, 1981 Protecting Human Subjects: The Adequacy and Uniformity of Federal Rules and their Implementation, 1981 Whistleblowing in Biomedical Research: Policies and Procedures for Responding to Reports of Misconduct, 1981 Making Health Care Decisions: A Report on the Ethical and Legal Implications of Informed Consent in the Patient-Practitioner Relationship. Volume 1: Report, 1982 Making Health Care Decisions: A Report on the Ethical and Legal Implications of Informed Consent in the Patient-Practitioner Relationship. Volume 2: Appendices, Empirical Studies of Informed Consent, 1982 Making Health Care Decisions: A Report on the Ethical and Legal Implications of Informed Consent in the Patient-Practitioner Relationship. Volume 3: Appendices, Studies of the Foundations of Informed Consent, 1982 Splicing Life: A Report on the Social and Ethical Issues of Genetic Engineering with Human Beings, 1982 Compensating for Research Injuries: The Ethical and Legal Implications for Programs to Redress Injured Subjects, 1982 Deciding to Forego Life-Sustaining Treatment: A Report on the Ethical, Medical, and Legal Issues in Treatment Decisions, 1983 Implementing Human Research Regulations: Second Biennial Report of the Adequacy and Uniformity of Federal Rules and Policies, and of their Implementation, for the Protection of Human Subjects, 1983 Screening and Counseling for Genetic Conditions: The Ethical, Social, and Legal Implications of Genetic Screening, Counseling, and Education Programs, 1983 Securing Access to Health Care: The Ethical Implications of Differences in the Availability of Health Services. Volume 1: Report, 1983 Securing Access to Health Care: The Ethical Implications of Differences in the Availability of Health Services. Volume 2: Appendices, Socio cultural and Philosophical Studies, 1983 Securing Access to Health Care: The Ethical Implications of Differences in the Availability of Health Services. Volume 3: Appendices, Empirical, Legal, and Conceptual Studies, 1983 Summing Up: Final Report on Studies of the Ethical and Legal Problems in Medicine and Biomedical and Behavioral Research, 1983

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Society's Choices: Social and Ethical Decision Making in Biomedicine NIH RECOMBINANT DNA ADVISORY PANEL Dates of operation: authorized in February 1975, ongoing Sponsorship/appointing authority: Department of Health, Education, and Welfare, National Institutes of Health, Office of Recombinant DNA Activities Function: to provide guidance to the NIH on issues in the field of recombinant DNA research, review protocols for federally funded recombinant DNA research, and develop guidelines for the conduct of this research Scope: research conducted or supported by the NIH Membership characteristics: size has ranged from 15 to 40 members; today RDAC has 24 members, including lawyers, ethicists, political scientists, researchers, and clinicians Members: Chairman LeRoy B. Walters, Ph.D. Kennedy Institute of Ethics Georgetown University Washington, D.C. Members Constance E. Brinckerhoff, Ph.D. Dartmouth Medical School Hanover, New Hampshire Nancy L. Buc, L.L.B. Well, Gotshal, and Manges Washington, D.C. Alexander M. Capron, L.L.B. The Law Center University of Southern California Los Angeles, California Ira H. Carmen, Ph.D. University of Illinois Urbana, Illinois Gary A. Chase, Ph.D. The Johns Hopkins University Baltimore, Maryland Patricia A. DeLon, Ph.D. University of Delaware Newark, Delaware Roy H. Doi, Ph.D. University of California Davis, California Krishna R. Dronamraju, Ph.D. Foundation for Genetic Research Houston, Texas E. Peter Geiduschek, Ph.D. University of California, San Diego LaJolla, California Mariann Grossman Institute of Human Gene Therapy Philadelphia, Pennsylvania Robert Haselkorn, Ph.D. University of Chicago Chicago, Illinois Susan S. Hirano, Ph.D. University of Wisconsin Madison, Wisconsin Donald J. Krogstad, M.D. Tulane University School of Medicine New Orleans, Louisiana Abbey S. Meyers National Organization for Rare Disorders New Fairfield, Connecticut

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Society's Choices: Social and Ethical Decision Making in Biomedicine Dusty A. Miller, Ph.D. Fred Hutchinson Cancer Research Center Seattle, Washington Arno G. Motulsky, M.D. University of Washington Medical School Seattle, Washington Robertson Parkman, M.D. Childrens Hospital of Los Angeles Los Angeles, California Leonard E. Post, Ph.D. Parke-Davis Pharmaceutical Division Ann Arbor, Michigan Marian G. Secundy, Ph.D. Howard University College of Medicine Washington, D.C. Brian R. Smith, M.D. Yale University School of Medicine New Haven, Connecticut Stephen E. Straus, M.D. National Institutes of Health Bethesda, Maryland Doris T. Zallen, Ph.D. Virginia Polytechnic Institute and State University Blacksburg, Virginia Executive Secretary Nelson A.Wivel, M.D. Office of Recombinant DNA Activities National Institutes of Health Bethesda, Maryland Reports: Points to Consider in the Design and Submission of Human Somatic-Cell Gene Therapy Protocols, 1985 (Human Gene Therapy Subcommittee)

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Society's Choices: Social and Ethical Decision Making in Biomedicine WORKING GROUP ON ETHICAL, LEGAL, AND SOCIAL IMPLICATIONS OF THE HUMAN GENOME PROJECT (ELSI WORKING GROUP) Dates of operation: 1988, ongoing Sponsorship/appointing authority: NIH Center for Human Genome Research and the Department of Energy Function: to stimulate research on issues through grant making; to refine the research agenda through workshops, commissioned papers, and invited lectures; to solicit public input through town meetings and public testimony; to support the development of educational materials; to encourage international collaboration in this area. In terms of policy-making, the goals of the ELSI Working Group are to clarify the ethical, legal, and social consequences of mapping and sequencing the human genome through a program of targeted research; to develop policy options at professional, institutional, governmental, and societal levels to ensure that genetic information is used to maximize the benefit to individuals and society; to improve understanding of the issues and policy options through educational initiatives at public, professional, and policy-making levels; and, to stimulate public discussion of the issues and policy options. Scope: all social, legal, and ethical issues relating to the Human Genome Project Membership characteristics: with the exception of the chairperson, members are ad hoc technical consultants representing basic and clinical genetics, law, and ethics Members: Chairperson Nancy Wexler, Ph.D. Hereditary Disease Foundation, and Department of Neurology and Psychiatry College of Physicians and Surgeons Columbia University New York Members Jonathan Beckwith, Ph.D. Department of Microbiology and Molecular Genetics Harvard Medical School Boston, Massachusetts Robert Cook-Deegan, M.D. Institute of Medicine National Academy of Sciences Washington, D.C. Patricia King,J.D. Professor of Law Georgetown University Law Center Washington, D.C. Victor McKusick, M.D. Division of Medical Genetics Johns Hopkins Hospital Baltimore, Maryland Robert F. Murray, Jr., M.D. Department of Pediatrics Howard University College of Medicine Washington, D.C. Thomas H. Murray, Ph.D. Center for Biomedical Ethics School of Medicine Case Western Reserve University Cleveland, Ohio

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Society's Choices: Social and Ethical Decision Making in Biomedicine Reports: Workshop on the Introduction of New Genetic Tests, 1990 Genetic Discrimination and the Americans with Disabilities Act, 1991

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Society's Choices: Social and Ethical Decision Making in Biomedicine THE BIOMEDICAL ETHICS ADVISORY COMMITTEE (BEAC) Dates of operation: September 1988-September 1989 Sponsorship/appointing authority: Congressional Biomedical Ethics Board (BEB); (under Health Research Extension Act, May 1985) Function: to study and report to Congress on a continuing basis on ethical issues arising from health care delivery and biomedical and behavioral research Scope: mandated by BEB; first three reports mandated were on (1) implications of human genetic engineering, (2) fetal research, and (3) nutrition and hydration in dying patients Membership characteristics: 14 members appointed from the fields of law, ethics, biomedical research, and clinical care, including two lay members; appointment process took almost two and a half years Members: Julianne Beckett Associate Director for Consumer Affairs National Maternal and Child Health Resource Center University of Iowa James Bopp,Jr. Esq. Brames, McCormick, Bopp & Abel Terre Haute, Indiana Watson Allen Bowes,Jr., M.D. Professor, Department of Obstetrics and Gynecology University of North Carolina School of Medicine Alexander Morgan Capron University Professor of Law, Medicine and Public Policy The Law Center University of Southern California Christine K. Cassel, M.D., F.A.C.P. Chief, Section of Internal Medicine Pritzker School of Medicine University of Chicago James Franklin Childress, Ph.D. Professor, Department of Religious Studies University of Virginia Theodore Friedmann. M.D. Center for Genetics Department of Pediatrics University of California School of Medicine San Diego Ms. Sylvia Drew Ivie Executive Director T.H.E. Clinic for Women, Inc. Los Angeles, California Reverend Donald G. McCarthy, Ph.D. Church of Saint Antoninus Cincinnati, Ohio Edmund D. Pellegrino, M.D. Director, Kennedy Institute of Ethics Georgetown University Washington, D.C. Kenneth N. Rosenbaum, M.D. Childrens' Hospital National Medical Center Washington, D.C.

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Society's Choices: Social and Ethical Decision Making in Biomedicine Kenneth John Ryan, M.D. Brigham and Women's Hospital Boston, Massachusetts Stanley Burton Troup, M.D. Professor of Medicine, Health Care, and Human Values Department of Internal Medicine University of Cincinnati College of Medicine Members of Congressional Bioethics Board SENATE MEMBERS Albert Gore (D-TN), Vice Chair Dale Bumpers (D-AK) David Durenberger (R-MN) Gordon Humphrey (R-NH) Edward Kennedy (D-MA) Lowell Weiker (R-CT)* HOUSE MEMBERS Willis Gradison (R-OH), Chair Thomas Bliley (R-VA) Thomas Luken (D-OH) J. Roy Rowland (D-GA) Thomas Tauke (R-IA) Henry Waxman (D-CA) *   Replaced in 1988 by Don Nickles (R-OK)

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Society's Choices: Social and Ethical Decision Making in Biomedicine NEW YORK STATE TASK FORCE ON LIFE AND THE LAW Dates of operation: March, 1985 to present Sponsorship/appointing authority: New York Governor Mario Cuomo Function: to develop recommendations for New York State public policy (in the form of proposed legislation, regulation, public education, and other measures) on a wide range of issues arising from recent advances in medical technology; reports seek to inform and focus public debate Scope: such issues as the determination of death, the withdrawal and withholding of life-sustaining treatment, new reproductive technologies (artificial insemination and in vitro fertilization), surrogate parenting, the treatment of disabled newborns, organ transplantation, and, in a more limited context, abortion Membership characteristics: 25 members; includes prominent physicians, nurses, lawyers, academics, and representatives of numerous religious communities Members: Karl Adler, M.D. Dean, New York Medical College Richard J. Concannon, Esq. Kelley, Drye & Warren Karl Adler, M.D. Dean, New York Medical College Rev. Msgr. John A Alesandro Chancellor, Roman Catholic Diocese of Rockville Center John Arras, Ph.D. Clinical Associate Professor of Bioethics Albert Einstein College of Medicine Montefiore Medical Center Mario L. Baeza, Esq. Debevoise & plimpton The Right Rev. David Ball Bishop, Episcopal Diocese of Albany Rabbi J. David Bleich Professor of Talmud, Yeshiva University Professor of Jewish Law and Ethics Benjamin Cardozo School of Law Evan Calkins, M.D. Professor of Medicine, Emeritus SUNY Buffalo Richard J. Concannon, Esq. Kelley, Drye & Warren Myron W. Conovitz, M.D. Attending Physician, North Shore University Hospital Clinical Associate Professor of Medicine Cornell University Medical College Saul J. Farber, M.D. Dean and Provost Chairman, Department of Medicine New York University School of Medicine Alan R. Fleishman, M.D. Director, Division of Neonatology Albert Einstein College of Medicine montefiore Medical Center Samuel Gorovitz, Ph.D. Dean, College of Arts and Sciences Professor of Philosophy Syracuse University

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Society's Choices: Social and Ethical Decision Making in Biomedicine Jane Greenlaw,J.D., R.N. Director, Division of Medical Humanities University of Rochester School of Medicine and Dentistry Beatrix A. Hamburg, M.D. Chairman, Division of Child and Adolescent Psychiatry Mount Sinai School of Medicine Denise Hanlon, R.N., M.S. Clinical Specialist Rehabilitation and Gerontology SUNY Buffalo, School of Nursing Rev. Donald W. McKinney First Unitarian Church of Brooklyn Chairman Emeritus, Choice in Dying Maria I. New, M.D. Chief, Department of Pediatrics New York Hospital Cornell Medical Center JohnJ. Regan,J.S.D. Professor of Law Hofstra University School of Law Rabbi A. James Rudin National Director of Interreligious Affairs The American Jewish Committee Rev. Betty Bone Schiess Episcopal Diocese of Central New York Barbara Shack The New York Civil Liberties Union Rev. Robert S. Smith Director, Institute for Medicine in Contemporary Society SUNY Health Science Center at Stony Brook Elizabeth W. Stack Commissioner, New York State Commission on Quality of Care for the Mentally Retarded Reports: The Required Request Law, March 1986 Do Not Resuscitate Orders, April 1986 The Determination of Death, July 1986 Life-Sustaining Treatments: Making Decisions and Appointing a Health Care Agent, July 1987 Transplantation in New York State: The Procurement and Distribution of Organs and Tissues, January 1988 Fetal Extrauterine Survivability, January 1988 Surrogate Parenting: Analysis and Recommendations for Public Policy, May 1988 When Others Must Choose: Deciding for Patients Without Capacity, March 1992

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Society's Choices: Social and Ethical Decision Making in Biomedicine NEW JERSEY COMMISSION ON LEGAL AND ETHICAL PROBLEMS IN THE DELIVERY OF HEALTH CARE Dates of operation: 1985 to 1991 Sponsorship/appointing authority: Governor of New Jersey, New Jersey Senate President, and Speaker of the General Assembly Function: to provide a comprehensive and scholarly examination of the impact of advancing technology on health care decisions and to recommend policies to the governor, legislature, and citizens of New Jersey Scope: focused on three areas: surrogate motherhood, decision making about medical treatment (especially advance directives), and determination of death Membership characteristics: 26 members, including 4 legislators, 9 representatives of executive agencies and major statewide professional and health care organizations, as well as representatives from the fields of law, medicine, nursing, science, humanities, theology, and health care administration Members: Chairman Paul W. Armstrong, M.A., J.D., LL.M. Councellor at Law Members Sr. Jane Frances Brady President, St. Joseph's Medical Center Thomas P. Brown, M.A. Acting Ombudsman for the Institutionalized Elderly The Hon. Gerald Cardinale, D.D.S. Senator-District 39 Diana Czarepuszko, R.N., L.N.H.A. Executive Director, Cheshire Home Robert W. Deaton Director of Long Term Care Diocese of Camden Joseph Fennelly, M.D. Vice Chairman, Bioethics Committee Medical Society of New Jersey J. Richard Goldstein, M.D. President, Stopwatch, Inc. Noreen Haveron, R.N., B.S.N. Assistant Nursing Supervisor Nutley Nursing Service Lois Hull Director, Division of Aging The Hon. C. Richard Kamin Assemblyman-District 23 Rabbi Charles A. Kroloff Rabbi, Temple Emanu-El The Hon. David C. Kronick Assemblyman-District 32 Paul Langevin, M.A. Assistant Commissioner for Health Facilities Evaluation Mary K. Lindner, R.N., M.A. Senior Vice President, Patient Services and Executive Director of Nursing Overlook Hospital Rita Martin Legislative Director NJ. Citizens Concerned for Life

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Society's Choices: Social and Ethical Decision Making in Biomedicine Russell L. Mcintyre, Ph.D. Associate Professor (Medical Ethics) University of Medicine and Dentistry of New Jersey Robert Wood Johnson Medical School Patricia Ann Murphy, R.N., Ph.D. Clinical Specialist (Bereavement) Newark Beth Israel Medical Center Michael Nevina, M.D. Internist, Chairman, Bioethics Committee Pascack Valley Hospital Sally Nunn, R.N. Chair, Bioethics Committee Shore Memorial Hospital Robert L. Pickens, M.D. Chairman, Bioethics Committee Medical Society of New Jersey David Rogoff, M.S. Director, Haven Hospice John F. Kennedy Medical Center Rita Marie G. Rondum Member, State Legislative Committee American Association of Retired Persons Mary S. Strong Chair, Citizens' Committee on Biomedical Ethics Joseph F. Suozzo, Esq. Assistant Director of Litigation Edward Tetalman, Esq. Assistant Commissioner for Intergovernmental Affairs Robert S. Olick, M.A., J.D., Executive Director Michael Vollen, M.A., Associate Director Adrienne Asch, M.D., Ph.D., Associate in Social Science and Policy Anne Reichman Schiff, LL.M., Associate in Law Ellen B. Friedland, Esq. Consultant Sally Sulphen, B.A., Administrative Assistant Reports: Problems and Approaches in Health Care Decision Making: The New Jersey Experience, 1990 Advance Directives for Health Care: Planning Ahead for Important Health Care Decisions, 1991 The New Jersey Advance Directives for Health Care and Death Acts: Statutes, Commentaries, and Analyses, 1991 After Baby M: The Legal, Ethical, and Social Dimensions of Surrogacy, 1992 Death and the Brain-Damaged Patient, 1992 The New Jersey Advance Directives for Health Care Act (and the Patient Self- Determination Act): A Guidebook for Health Care Professionals, 1992

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