AIDS Coalition to Unleash Power (ACT-UP), 8, 53, 137, 138, 469, 471

AIDS/HIV, 96, 119

antidiscrimination legislation, 349, 350

confidentiality in autopsy reports, 117

confidentiality in research, 459-463

ethical issues in, 168, 458

ethicist-activist collaborations, 475

gay and lesbian concerns, 52-53

grassroots organizations, 137-138

hospital utilization and, 56

in minority populations, 49

new drug research, 470-472

policy conflicts in, 459

political context of policymaking in, 352, 458-459, 474-475

public health classification, 336-337

research funding, 52-53, 352

research protocols, 468-472

screening for, 463-466, 491

testing pregnant women and newborns, 467-468

tuberculosis and, 472-474

women's issues, 51, 467-468

American Academy of Pediatrics, 7, 119, 411

American Association of Bioethics, 120

American Association of Colleges of Nursing, 82

American College of Obstetricians and Gynecologists, 7, 118, 120, 180, 485

American College of Physicians, 7, 119

American Council of Life Insurance, 451

American Dental Association, 82

American Fertility Society, 118, 180, 485

American Foundation for AIDS Research, 470

American Hospital Association, 36, 411, 412

American Medical Association, 7, 69, 117-118, 120, 348, 411, 419, 484

American Thoracic Society, 7, 119

Americans with Disabilities Act, 348-350, 352

ELSI and, 442, 447, 452

Antibiotics, 15, 170

tuberculosis resistance, 472

Argentina, 110

Arizona, 480

Arkansas, 313

Armstrong, John A., 61

Arras, John, 247

Artificial insemination, 499n.59

Asilomar conference, 78, 95, 435

Assisted suicide, 36, 119, 184, 317-318, 319-320

state regulation of, 18-19

vs. refusal of treatment, 309, 315

Association of American Medical Colleges (AAMC), 81, 83

Association of State and Territorial Health Officials, 464-465

Augenstein, Leroy, 69

Australia, 109, 110

B

Baby Doe issues, 102, 119, 121, 318-319, 411

Baby Mcase, 100

Barnes, Barry, 394-395

Bauer, Gary, 481, 482

Bayer, Ronald, 247

Bayh-Dole Patent and Trademark Laws Amendment Act, 59

Beckwith, Jonathan, 438-439

Beecher, Henry, 32

Beneficence, 91

Bentham, Jeremy, 206

Bernard, Claude, 30

Bernard, Jean, 491, 492

Beta-thalassemia, 140

Bioethics

academic development, 67-70

centers for study of, 8, 69, 131-133

complexity of moral decision making in, 252

conceptual evolution, 4, 176

core issues, 358, 359

current deliberations, 73, 168

as government domain, 5-6

multidisciplinary investigations, 74- 75

as philosophic discipline, 70-73

Front Matter (R1-R12)

Contents (R13-R18)

Executive Summary (1-24)

Part I (25-26)

1. Introduction (27-42)

2. The Social Context of Bioethical Problem Solving (43-66)

3. Systematic Approaches to Bioethics (67-86)

4. The Spectrum of Societal Responses (87-149)

5. Criteria for Success (150-167)

6. Conclusions and Recommendations (168-194)

Part II: Commissioned Papers (195-200)

Moral Epistemology (201-214)

Public Moral Discourse (215-240)

The Value of Consensus (241-260)

Bioethics Commissions: What Can We Learn from Past Successes and Failures? (261-306)

Limiting Life-Prolonging Medical Treatment: A Comparative Analysis of the President's Commission and the New York State Task Force (307-334)

The Formulation of Health Policy by the Three Branches of Government (335-357)

The Role of Religious Participation and Religious Belief in Biomedical Decision Making (358-387)

Trust, Honesty, and the Authority of Science (388-408)

Institutional Ethics Committees: Local Perspectives on Ethical Issues in Medicine (409-431)

The Ethical, Legal, and Social Implications Program of the National Center for Human Genome Research: A Missed Opportunity? (432-457)

AIDS, Ethics, and Activism: Institutional Encounters in the Epidemic's First Decade (458-476)

La Penible Valse Hesitation: Fetal Tissue Research Review and the Use of Bioethics Commissions in France and the United States (477-502)

Appendix: Past Commissions and Advisory Boards (503-520)

Index (521-542)