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Improving Data on America's Aging Population: Summary of a Workshop
Appendix B
Data Sources for Studying Aging: Survey Characteristics and Linkage Capacities
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Appendix B—Data Sources for Studying Aging: Survey Characteristics and Linkage Capacities
Survey
Sample
Oversamples
Planned Periodicity
Planned Linkage Capacities
Dissemination and Information Contact (as of 8/96)
Asset and Health Dynamics Among the Oldest-Old (AHEAD) Survey
National panel study of cohorts born 1923 and earlier; 7,477 respondents aged 70+ in 1993
Blacks, Hispanics, and Florida residents
1993, 1995; biennial interviews planned
Medicare records, NDI, state Medicaid files, SSA earnings & benefits files
Cathy Terazas 313-763-9794 ahead.ask@umich.edu http://www.umich.edu/~hrswww/index.html
Consumer Expenditure Survey (CEX)
Nationally representative sample of 5,000 households; rotating panel
None
Decennial, pre-1980; ongoing since 1980; each new panel is interviewed for five consecutive quarters, then replaced
No linkage
Stephanie Shipp Bureau of Labor Statistics 202-606-6900 shipp_s@bls.gov
Current Population Survey (CPS)
Rotating national sample of 57,000 households
None
Monthly; households are in sample for 4 months then out of sample for 8 months, then in sample for 4 months
No linkage
Ron Tucker Bureau of the Census 301-457-3806 pop@census.gov
Decennial Census
All persons and housing units in the U.S. and its territories
None
Decennial
No linkage
POP/SIS 301-457-2422 pop@census.gov http://www.census.gov http://www.psc.lsa.umich.edu/aging/census.html
German Socio-Economic Panel (GSOEP)
National sample of 5,921 households in (former) Federal Republic of Germany; 2,179 (former) East German households added in 1990
None
Annual, since 1984
No linkage
elke.holst@diw-berlin.d400.de burk@maxwell.syr.edu http://www-cpr.maxwell.syr.edu/demogctr/demogctr.htm
Health and Retirement Survey (HRS)
Nationally representative sample of 7,700 households (over 12,600 persons) of those age 51–61 in 1992 and their spouses; will introduce new (younger); cohort every 5 years
Blacks, Florida residents, and Mexican-Americans
Baseline interview in 1992; follow-ups by mail or phone or every other year for 12 years
Medicare records, NDI, SSA earnings data
hrsquest@isr.umich.edu http://www.umich.edu/~hrswww/index.html
Longitudinal Survey on Aging (LSOA)
National sample of 7,541 persons aged 70+ in 1984; drawn from NHIS sample.
None
1984, 1986, 1988, 1990
Medicare claims records; NDI
Harold Lentzner 301-436-7035, ext. 172 HRL1@NCHS07a.em.cdc.gov
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Appendix B Data Sources for Studying Aging: Survey Characteristics and Linkage Capacities
Survey
Sample
Oversamples
Planned Periodicity
Planned Linkage Capacities
Dissemination and Information Contact (as of 8/96)
Luxembourg Income Study (LIS)
Data for more than 25 countries for one or more years; data bank has more than 60 data sets covering from 1968–1992
None
Varies by nation
No linkage
LISAA@maxwell.syr.edu http://www-cpr.maxwell.syr.edu/lis_part/lisintro.htm
Medicare Current Beneficiary Survey (MCBS)
A rotating panel of a representative sample of 12,000 Medicare enrollees
None
Three interviews per year: Access to Care files available for 1991–93. Calendar Year Cost & Use files available in 1995
Medicare claims data
Information Analysis Branch, Decision Support Division, Bureau of Data Management & Strategy, HCFA 410-597-5083
Medical Expenditure Panel Study (MEPS): Household Component
National sample of 10,500 households and 23,000 individuals, selected from 1995 NHIS
Starting in 1997: adults and children w/ functional or activity limitations; persons with incomes <200% of poverty level; persons who anticipate high levels of medical expenses
Annual, since 1996
HCFA records
Karen Beauregard 301-594-1400 kbeaureg@cghsir.ahcpr.gov dpotter@cghsir.ahcpr.gov
Medical Expenditure Panel Study (MEPS): Nursing Home Component
National sample of 800 nursing homes with 5,500 residents
None
First survey in the field in August 1997
No linkage
Karen Beauregard 301-594-1400 kbeaureg@cghsir.ahcpr.gov dpotter@cghsir.ahcpr.gov
National Ambulatory Medical Care Survey (NAMCS)
National sample of 3,000 physicians in office-based practices. Covers 45,000 patient visits
None
Annual, since 1975
No linkage
Cathy Burt 301-436-7132, ext. 175 cwb2@nch9a.em.cdc.gov
National Health and Nutrition Examination Survey (NHANES III)
Nationally representative sample of 30,000 persons aged 2 months and older; data sources include survey, physical exam, and lab tests
Blacks, Mexican-Americans
Periodic, with longitudinal follow-up
Will be part of the HHS Plan for Survey Consolidation
Vicki L. Burt 301-436-7080, ext. 116
NHANES I Epidemiologic Followup Survey (NHEFS)
Nationally representative sample of 14,407 people aged 25–74, from 1971–1975 NHANES I sample
Poverty areas, women of childbearing age, elderly
Special cohort study; Data were collected in 1982–1984, 1986, 1987, and 1992.
NDI and Medicare data
Chris Cox 301-436-5979, ext. 115 csc3@nch7a.em.cdc.gov
National Health Interview Survey (NHIS)
Nationally representative sample of 41,000 households
Blacks, Hispanics
Annual
NDI, HCFA records, Medicare state-based data
Dr. Gerry Hendershot, 301-436-7085, ext. 142 nchsquery@nch10a.em.cdc.gov
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Appendix B Data Sources for Studying Aging: Survey Characteristics and Linkage Capacities
Survey
Sample
Oversamples
Planned Periodicity
Planned Linkage Capacities
Dissemination and Information Contact (as of 8/96)
National Health Interview Survey on Disability
Phase I screens 50,000 households, phase II is a follow-up of persons with moderate to severe disabilities; about 20,000 households per year
None
A special two-year study
NDI, HCFA records, Medicare state-based data
Marcie Cynamon 301-436-7085, ext. 118 mlc6@nch8a.em.cdc.gov
National Home and Hospice Care Survey (NHHCS)
National sample of 1,500 home health agencies and hospices, with 9,000 current patients and 9,000 discharged patients
None
Annual, since 1992
No linkage
Evelyn Mathis 301-436-8830, ext. 159 esm3@nch9a.em.cdc.gov
National Hospital Ambulatory Medical Care Survey (NHAMCS)
National sample of 600 hospitals with 90,000 patient visits
None
Annual, since 1992
No linkage
Cathy Burt 301-436-7132, ext. 175 cwb2@nch9a.em.cdc.gov
National Hospital Discharge Survey (NHDS)
National sample of 542 hospitals and 250,000 discharges; sample updated in 1991 to include new hospitals
None
Annual, since 1965
No linkage
Bob Pokras 301-436-7125, ext. 184 rop1@nch9a.em.cdc.gov
National Longitudinal Survey (NLS) of Older Women
National sample of 5,083 women aged 30–44 in 1967
Blacks
Periodic. 17 interviews from 1967–1994
No linkage
usersvc@pewter.chrr.ohio-state.edu
National Long-Term Care Survey (NLTCS)
Sample drawn from Medicare administrative files; 6,393 interviewed in 1982; more than 20,000 observations as of 1996
400–500 persons aged 95+; 1,200 persons identified as nondisabled.
1982, 1984, 1989, 1994; plans for 1999 and 2004
Medicare data, Part A and B service use records, 1982–1994
http://cps.duke.edu, then go to NLTCS files
National Nursing Home Survey (NNHS)
National sample of 1,500 nursing homes with 6,500 residents and 7,800 discharges
None
1977, 1985, and 1995
No linkage; will be part of HHS Survey Integration Plan
Evelyn Mathis 301-436-8830, ext. 159 esm3@nch9a.em.cdc.gov
National Survey of Ambulatory Surgery (NSAS)
National survey of 800 facilities, and 192,000 patients; surveys are completed by facility staff
None
Annual
None
Bob Pokras 301-436-7125, ext. 184 rop1@nch9a.em.cdc.gov
National Survey of Families and Households (NSFH)
National sample of 13,008 including main cross-section sample of 9,637age 19+
Blacks, Mexican-Americans, Puerto Ricans, HHs of single-parent families, stepfamilies, recently married and cohabiting couples
Baseline survey in 1987–88; follow-up in 1992–94
No linkage
nsfhhelp@ssc.wisc.edu http://www.ssc.edu/cde/nsfhwp/home.htm
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Appendix B Data Sources for Studying Aging: Survey Characteristics and Linkage Capacities
Survey
Sample
Oversamples
Planned Periodicity
Planned Linkage Capacities
Dissemination and Information Contact (as of 8/96)
National Survey of Midlife Development in the United States (MIDUS)
National sample of 7,240 adults aged 25–74 in 1995, 4,240 from general population, 1,000 siblings, 1,000 twin pairs
Men, older persons
1995, 2000 (planned)
No linkage
Dr. Orville Gilbert Brim, Life Trends 407-778-8899
Panel Survey of Income Dynamics (PSID)
National sample of 4,800 households, beginning in 1968; 8,700 households in 1996
Blacks; Hispanics in 1990–1995, with Cubans and Puerto Ricans oversampled relative to Mexican-Americans
Annual, since 1968
Medicare records, NDI, PSID geocode; does not have SSN; links via address
bressan@umich.edu http://www.umich.edu/~psid/
Second Supplement on Aging I (SOA II)
National sample of 10,000 persons aged 70+ in 1994, from NHIS
Elderly persons living in Black households
Special cohort study in 1994–1995; a follow-up is planned for 1997–1998
Ongoing record matches with NDI and HCFA Medicare records
Harold Lentzner 301-436-7035, ext. 172 HRL1@NCHS07a.em.cdc.gov http://www.cdc.gov/nchswww/nchshome.htm http://www.cdc.gov/nchswww/aging.htm
Survey of Income and Program Participation (SIPP)
National sample of 14,000 to 20,000 households. Each longitudinal panel lasts 30–36 months
None
New panel introduced annually. A 48-month panel of 36,700 households planned for 1996
No linkage
Michael McMahon Bureau of Census 301-457-3819
Wisconsin Longitudinal Study (WLS)
Wisconsin high school graduates from the class of 1957 and their siblings; 10,317 in 1957; 9,400 in 1975; 8,500 in 1992–1993. 2,000 siblings in 1977; 5,000 siblings in 1992–1993.
Twins
1957, 1975, 1992–1993; in-depth interviews and medical data to be collected for 200 in 1996–97
SSA earnings data, NDI
wls@ssc.wisc.edu http://dpls.dacc.wisc.edu/WLS/wls_archive.html
NOTE: HCFA-Health Care Financing Administration
NDI-National Death Index
SSA-Social Security Administration
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Representative terms from entire chapter:
nationally representative
