Appendix B
Data Sources for Studying Aging: Survey Characteristics and Linkage Capacities



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Improving Data on America's Aging Population: Summary of a Workshop Appendix B Data Sources for Studying Aging: Survey Characteristics and Linkage Capacities

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Improving Data on America's Aging Population: Summary of a Workshop

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Improving Data on America's Aging Population: Summary of a Workshop Appendix B—Data Sources for Studying Aging: Survey Characteristics and Linkage Capacities Survey Sample Oversamples Planned Periodicity Planned Linkage Capacities Dissemination and Information Contact (as of 8/96) Asset and Health Dynamics Among the Oldest-Old (AHEAD) Survey National panel study of cohorts born 1923 and earlier; 7,477 respondents aged 70+ in 1993 Blacks, Hispanics, and Florida residents 1993, 1995; biennial interviews planned Medicare records, NDI, state Medicaid files, SSA earnings & benefits files Cathy Terazas 313-763-9794 ahead.ask@umich.edu http://www.umich.edu/~hrswww/index.html Consumer Expenditure Survey (CEX) Nationally representative sample of 5,000 households; rotating panel None Decennial, pre-1980; ongoing since 1980; each new panel is interviewed for five consecutive quarters, then replaced No linkage Stephanie Shipp Bureau of Labor Statistics 202-606-6900 shipp_s@bls.gov Current Population Survey (CPS) Rotating national sample of 57,000 households None Monthly; households are in sample for 4 months then out of sample for 8 months, then in sample for 4 months No linkage Ron Tucker Bureau of the Census 301-457-3806 pop@census.gov Decennial Census All persons and housing units in the U.S. and its territories None Decennial No linkage POP/SIS 301-457-2422 pop@census.gov http://www.census.gov http://www.psc.lsa.umich.edu/aging/census.html German Socio-Economic Panel (GSOEP) National sample of 5,921 households in (former) Federal Republic of Germany; 2,179 (former) East German households added in 1990 None Annual, since 1984 No linkage elke.holst@diw-berlin.d400.de burk@maxwell.syr.edu http://www-cpr.maxwell.syr.edu/demogctr/demogctr.htm Health and Retirement Survey (HRS) Nationally representative sample of 7,700 households (over 12,600 persons) of those age 51–61 in 1992 and their spouses; will introduce new (younger); cohort every 5 years Blacks, Florida residents, and Mexican-Americans Baseline interview in 1992; follow-ups by mail or phone or every other year for 12 years Medicare records, NDI, SSA earnings data hrsquest@isr.umich.edu http://www.umich.edu/~hrswww/index.html Longitudinal Survey on Aging (LSOA) National sample of 7,541 persons aged 70+ in 1984; drawn from NHIS sample. None 1984, 1986, 1988, 1990 Medicare claims records; NDI Harold Lentzner 301-436-7035, ext. 172 HRL1@NCHS07a.em.cdc.gov

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Improving Data on America's Aging Population: Summary of a Workshop

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Improving Data on America's Aging Population: Summary of a Workshop Appendix B Data Sources for Studying Aging: Survey Characteristics and Linkage Capacities Survey Sample Oversamples Planned Periodicity Planned Linkage Capacities Dissemination and Information Contact (as of 8/96) Luxembourg Income Study (LIS) Data for more than 25 countries for one or more years; data bank has more than 60 data sets covering from 1968–1992 None Varies by nation No linkage LISAA@maxwell.syr.edu http://www-cpr.maxwell.syr.edu/lis_part/lisintro.htm Medicare Current Beneficiary Survey (MCBS) A rotating panel of a representative sample of 12,000 Medicare enrollees None Three interviews per year: Access to Care files available for 1991–93. Calendar Year Cost & Use files available in 1995 Medicare claims data Information Analysis Branch, Decision Support Division, Bureau of Data Management & Strategy, HCFA 410-597-5083 Medical Expenditure Panel Study (MEPS): Household Component National sample of 10,500 households and 23,000 individuals, selected from 1995 NHIS Starting in 1997: adults and children w/ functional or activity limitations; persons with incomes <200% of poverty level; persons who anticipate high levels of medical expenses Annual, since 1996 HCFA records Karen Beauregard 301-594-1400 kbeaureg@cghsir.ahcpr.gov dpotter@cghsir.ahcpr.gov Medical Expenditure Panel Study (MEPS): Nursing Home Component National sample of 800 nursing homes with 5,500 residents None First survey in the field in August 1997 No linkage Karen Beauregard 301-594-1400 kbeaureg@cghsir.ahcpr.gov dpotter@cghsir.ahcpr.gov National Ambulatory Medical Care Survey (NAMCS) National sample of 3,000 physicians in office-based practices. Covers 45,000 patient visits None Annual, since 1975 No linkage Cathy Burt 301-436-7132, ext. 175 cwb2@nch9a.em.cdc.gov National Health and Nutrition Examination Survey (NHANES III) Nationally representative sample of 30,000 persons aged 2 months and older; data sources include survey, physical exam, and lab tests Blacks, Mexican-Americans Periodic, with longitudinal follow-up Will be part of the HHS Plan for Survey Consolidation Vicki L. Burt 301-436-7080, ext. 116 NHANES I Epidemiologic Followup Survey (NHEFS) Nationally representative sample of 14,407 people aged 25–74, from 1971–1975 NHANES I sample Poverty areas, women of childbearing age, elderly Special cohort study; Data were collected in 1982–1984, 1986, 1987, and 1992. NDI and Medicare data Chris Cox 301-436-5979, ext. 115 csc3@nch7a.em.cdc.gov National Health Interview Survey (NHIS) Nationally representative sample of 41,000 households Blacks, Hispanics Annual NDI, HCFA records, Medicare state-based data Dr. Gerry Hendershot, 301-436-7085, ext. 142 nchsquery@nch10a.em.cdc.gov

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Improving Data on America's Aging Population: Summary of a Workshop Appendix B Data Sources for Studying Aging: Survey Characteristics and Linkage Capacities Survey Sample Oversamples Planned Periodicity Planned Linkage Capacities Dissemination and Information Contact (as of 8/96) National Health Interview Survey on Disability Phase I screens 50,000 households, phase II is a follow-up of persons with moderate to severe disabilities; about 20,000 households per year None A special two-year study NDI, HCFA records, Medicare state-based data Marcie Cynamon 301-436-7085, ext. 118 mlc6@nch8a.em.cdc.gov National Home and Hospice Care Survey (NHHCS) National sample of 1,500 home health agencies and hospices, with 9,000 current patients and 9,000 discharged patients None Annual, since 1992 No linkage Evelyn Mathis 301-436-8830, ext. 159 esm3@nch9a.em.cdc.gov National Hospital Ambulatory Medical Care Survey (NHAMCS) National sample of 600 hospitals with 90,000 patient visits None Annual, since 1992 No linkage Cathy Burt 301-436-7132, ext. 175 cwb2@nch9a.em.cdc.gov National Hospital Discharge Survey (NHDS) National sample of 542 hospitals and 250,000 discharges; sample updated in 1991 to include new hospitals None Annual, since 1965 No linkage Bob Pokras 301-436-7125, ext. 184 rop1@nch9a.em.cdc.gov National Longitudinal Survey (NLS) of Older Women National sample of 5,083 women aged 30–44 in 1967 Blacks Periodic. 17 interviews from 1967–1994 No linkage usersvc@pewter.chrr.ohio-state.edu National Long-Term Care Survey (NLTCS) Sample drawn from Medicare administrative files; 6,393 interviewed in 1982; more than 20,000 observations as of 1996 400–500 persons aged 95+; 1,200 persons identified as nondisabled. 1982, 1984, 1989, 1994; plans for 1999 and 2004 Medicare data, Part A and B service use records, 1982–1994 http://cps.duke.edu, then go to NLTCS files National Nursing Home Survey (NNHS) National sample of 1,500 nursing homes with 6,500 residents and 7,800 discharges None 1977, 1985, and 1995 No linkage; will be part of HHS Survey Integration Plan Evelyn Mathis 301-436-8830, ext. 159 esm3@nch9a.em.cdc.gov National Survey of Ambulatory Surgery (NSAS) National survey of 800 facilities, and 192,000 patients; surveys are completed by facility staff None Annual None Bob Pokras 301-436-7125, ext. 184 rop1@nch9a.em.cdc.gov National Survey of Families and Households (NSFH) National sample of 13,008 including main cross-section sample of 9,637age 19+ Blacks, Mexican-Americans, Puerto Ricans, HHs of single-parent families, stepfamilies, recently married and cohabiting couples Baseline survey in 1987–88; follow-up in 1992–94 No linkage nsfhhelp@ssc.wisc.edu http://www.ssc.edu/cde/nsfhwp/home.htm

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Improving Data on America's Aging Population: Summary of a Workshop Appendix B Data Sources for Studying Aging: Survey Characteristics and Linkage Capacities Survey Sample Oversamples Planned Periodicity Planned Linkage Capacities Dissemination and Information Contact (as of 8/96) National Survey of Midlife Development in the United States (MIDUS) National sample of 7,240 adults aged 25–74 in 1995, 4,240 from general population, 1,000 siblings, 1,000 twin pairs Men, older persons 1995, 2000 (planned) No linkage Dr. Orville Gilbert Brim, Life Trends 407-778-8899 Panel Survey of Income Dynamics (PSID) National sample of 4,800 households, beginning in 1968; 8,700 households in 1996 Blacks; Hispanics in 1990–1995, with Cubans and Puerto Ricans oversampled relative to Mexican-Americans Annual, since 1968 Medicare records, NDI, PSID geocode; does not have SSN; links via address bressan@umich.edu http://www.umich.edu/~psid/ Second Supplement on Aging I (SOA II) National sample of 10,000 persons aged 70+ in 1994, from NHIS Elderly persons living in Black households Special cohort study in 1994–1995; a follow-up is planned for 1997–1998 Ongoing record matches with NDI and HCFA Medicare records Harold Lentzner 301-436-7035, ext. 172 HRL1@NCHS07a.em.cdc.gov http://www.cdc.gov/nchswww/nchshome.htm http://www.cdc.gov/nchswww/aging.htm Survey of Income and Program Participation (SIPP) National sample of 14,000 to 20,000 households. Each longitudinal panel lasts 30–36 months None New panel introduced annually. A 48-month panel of 36,700 households planned for 1996 No linkage Michael McMahon Bureau of Census 301-457-3819 Wisconsin Longitudinal Study (WLS) Wisconsin high school graduates from the class of 1957 and their siblings; 10,317 in 1957; 9,400 in 1975; 8,500 in 1992–1993. 2,000 siblings in 1977; 5,000 siblings in 1992–1993. Twins 1957, 1975, 1992–1993; in-depth interviews and medical data to be collected for 200 in 1996–97 SSA earnings data, NDI wls@ssc.wisc.edu http://dpls.dacc.wisc.edu/WLS/wls_archive.html NOTE: HCFA-Health Care Financing Administration NDI-National Death Index SSA-Social Security Administration

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Improving Data on America's Aging Population: Summary of a Workshop