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Health Outcomes for Older People: Questions for the Coming Decade Bibliography The reference works listed here are additional sources drawn upon by the committee. The works are arranged according to their relevance to particular recommendations made in the report. HEALTH-RELATED QUALITY OF LIFE Cassel, C.K. Issues of Age and Chronic Care: Another Argument for Health Reform. Journal of the American Geriatrics Society 40:404–409, 1992. Gill, T.M., and A.R.Feinstein. A Critical Appraisal of the Quality of Quality-of-Life Measurements. Journal of the American Medical Association 272(8):619–626, 1994. Gurwitz, J.H., N.F.Col, and J.Avorn. The Exclusion of the Elderly and Women From Clinical Trials in Acute Myocardial Infarction. Journal of the American Medical Association 268:417–1422, 1992. Lawrence, R.H., and A.M.Jette. Disentangling the Disablement Process. Journal of Gerontology: Social Sciences 51(B):4, S173–S182, 1996. Patrick, D.L., and P.Erickson. Health Status and Health Policy: Allocating Resources to Health Care. New York: Oxford University Press, 1993. Rubenstein, L.V., D.R.Calkins, S.Greenfield, et al. Health Status Assessment for Elderly Patients: Report of the Society of General Internal Medicine Task Force on Health Assessment. Journal of the American Geriatrics Society 37:562–569, 1988. Spilker, B., F.R.Molinek, K.A.Johnston, et al. Quality of Life Bibliography and Indexes. Medical Care 28(12):DS1–DS77, 1990.
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Health Outcomes for Older People: Questions for the Coming Decade Stewart, A.L., C.D.Sherbourne, and M.Brod. Measuring Health-Related Quality of Life in Older and Demented Populations. In Quality of Life and Pharmacoeconomics in Clinical Trials, 2d ed. B.Spilker, ed. Philadelphia: Lippincott-Raven Publishers, 1996. Testa, M.A., and D.C.Simonson. Assessment of Quality-of-Life Outcomes. New England Journal of Medicine 334:(13)835–840, 1996. SATISFACTION WITH CARE Gertis, M., S.Edgman-Levitan, J.Daly, and T.L.Delbanco. Through the Patient’s Eyes: Understanding and Promoting Patient-Centered Care. San Francisco: Jossey-Bass, Inc., 1993. Owens, D.L., and C.Batchelor. Patient Satisfaction and the Elderly. Social Science and Medicine 42(11):1483–1491. Rothman, M.L., P.Diehr, S.C.Hedrick, W.W.Erdly, D.G.Nickinovich. Effects of Contract Adult Day Health Care on Health Outcomes and Satisfaction with Care. Medical Care SS75–SS83, 1993. Teno, J. Consumer Reports and Ratings of Medical Care: Will We Ever Get Satisfaction? Paper presented at the Institute of Medicine workshop “Evaluating Health Outcomes for Elderly People in a Changing Health Care Marketplace,” Washington, D.C., June 20, 1996. “TOOLBOX” OF OUTCOMES MEASURES AND A CORE SET OF OUTCOMES MEASURES Andresen, E.M., B.M.Rothenberg, and J.G.Zimmer, eds. Health Status Assessment Among Older Adults . New York: Springer Publishing Co., in press. Magaziner, J. The Use of Proxy Respondents in Health Studies of the Aged. In The Epidemiologic Study of the Elderly. R.B.Wallace and R.F.Woolson, eds. New York: Oxford University Press, 1992. Mor, V. Using Global and Targeted Outcomes Measures in Applied Settings. Presentation at the Institute of Medicine workshop “Evaluating Health Outcomes for Elderly People in a Changing Health Care Marketplace,” Washington, D.C., June 20, 1996. Stewart, A.L., and J.E.Ware, eds. Measuring Functioning and Well-being. The Medical Outcomes Study Approach. Durham, N.C.: Duke University Press, 1992. PRACTICE PATTERNS AND THEIR EFFECT ON OUTCOMES General Chassin, M., J.Kosecoff, R.Park, et al. Does Inappropriate Use Explain Geographic Variations in the Use of Health Care Services? A Study of Three Procedures. Journal of the American Medical Association 258:2533–2537, 1987. Wennberg, J.E., and M.M.Cooper. Dartmouth Atlas of Health Care in the United States. Chicago: American Hospital Association, 1996.
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Health Outcomes for Older People: Questions for the Coming Decade Wennberg, J.E., and A.Gittelsohn. Small Area Variations in Health Care Delivery: A Population-Based Health Information System Can Guide Planning and Regulatory Decisionmaking. Science 182:1102–1108, 1973. Wennberg, J.E., J.L.Freeman, R.M.Shelton, and T.A.Bubolz. Hospital Use and Mortality Among Medicare Beneficiaries in Boston and New Haven. New England Journal of Medicine 321(17):1168–1173, 1989. Advance Care Planning Emanuel, L.L., and E.J.Emanuel. Decisions at the End of Life: Guided by Communities of Patients. Hastings Center Report 23(5):6–14, 1993. The SUPPORT Principal Investigators for the SUPPORT Project. A Controlled Trial to Improve Care for Seriously Ill Hospitalized Patients: The Study to Understand Prognoses and Preferences for Outcomes and Risks of Treatments. Journal of the American Medical Association 274:1591–1598, 1995. Thomasma, D.C. The Ethical Challenge of Providing Healthcare for the Elderly. Cambridge Quarterly of Healthcare Ethics 4(2):148–162, 1995. Clinical Practice Guidelines, Pathways, and Other Strategies Berwick, D.M. Harvesting Knowledge from Improvement. Journal of the American Medical Association 275(11):877–878, 1996. Epstein, R.S., and L.M.Sherwood. From Outcomes Research to Disease Management: A Guide for the Perplexed. Annals of Internal Medicine 124(9):832–837. Greco P.J., and J.M.Eisenberg. Changing Physicians’ Practices. New England Journal of Medicine 329:1271–1274, 1993. Institute of Medicine (IOM). Clinical Practice Guidelines: Directions for a New Program. M.J.Field and K.N.Lohr, eds. Washington, D.C.: National Academy Press, 1989. IOM. Guidelines for Clinical Practice: From Development to Use. M.J.Field and K.N.Lohr, eds. Washington, D.C.: National Academy Press, 1992. Interdisciplinary Intervention Teams Applegate, W.B., and R.Burns. Geriatric Medicine. Journal of the American Medical Association 275(23):1812–1813, 1996. Rubenstein, L.Z., D.Wieland, and R.Bernabei. Geriatric Assessment Technology: The State of the Art. Milan, Italy: Editrice Kurtis, 1995. Stuck, A.E., A.L.Siu, G.D.Wieland, J.Adams, and L.Z.Rubenstein. Comprehensive Geriatric Assessment: A Meta-Analysis of Controlled Trials. Lancet 342:1032–1036, 1993.
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Health Outcomes for Older People: Questions for the Coming Decade INVOLVEMENT IN CARE DECISIONMAKING Flood, A.B., J.E.Wennberg, R.F.Nease, F.J.Fowler, J.Ding, and L.M.Hynes. The Importance of Patient Preferences in the Decision to Screen for Prostate Cancer. Journal of General Internal Medicine 11(6)342–349, 1996. Fryback, P.D., and B.R.Reinert. Facilitating Health in People with Terminal Diagnoses by Encouraging a Sense of Control. Medsurg Nursing 3(2):197–201, 1993. Kaplan, S.H., K.A.Dukes, L.M.Sullivan, T.J.Tripp, and S.Greenfield. Is Passivity A Risk Factor for Poor Health Outcomes? Boston: New England Medical Center, 1996. Welch, G.H., P.C.Albertsen, R.F.Nease, T.A.Bubolz, and J.H.Wasson. Estimating Treatment Benefits for the Elderly: The Effect of Competing Risks. Annals of Internal Medicine 124(6):577–584, 1996. EDUCATION AND DISSEMINATION OF OUTCOMES INFORMATION Batalden, P.B., E.C.Nelson, and J.S.Roberts. Linking Outcomes Measurement to Continual Improvement: The Serial “V” Way of Thinking About Improving Clinical Care. Journal on Quality Improvement 20(4):167–180, 1994. Chassin, M.R., E.L.Hannan, and B.A.DeBuono. Benefits and Hazards of Reporting Medical Outcomes Publicly. New England Journal of Medicine 334:394–398, 1996. Schneider, E.C., and A.E.Epstein. Influence of Cardiac-Surgery Performance Reports on Referral Practices and Access to Care. New England Journal of Medicine 335:251–256, 1996. FINANCING SYSTEMS Physician Payment Review Commission (PPRC). Annual Report to Congress. Washington, D.C.: PPRC, 1996. Weissert, W. Outcomes Research in Managed Care for Elderly People: A Review and Agenda. Paper presented at the Institute of Medicine workshop “Evaluating Health Outcomes for Elderly People in a Changing Health Care Marketplace,” Washington, D.C., June 20, 1996. SERVICE DELIVERY AND UTILIZATION Delfosse, R. Urban and Rural Classification of the National Health Provider Inventory Providers: United States, 1991. Advance Data. No. 266. Hyattsville, Md.: National Center for Health Statistics, 1995. GAO (General Accounting Office). Medicare HMOs: Rapid Enrollment Growth Concentrated in Selected States. GAO/HEHS-96–20. Washington, D.C.: GAO, 1996. Horn, S.D., P.D.Sharkey, and J.Gassaway. Intended and Unintended Consequences of HMO Cost-Containment Strategies: Results from the Managed Care Outcomes Project. The American Journal of Managed Care 2(3):237–247, 1996.
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Health Outcomes for Older People: Questions for the Coming Decade Iezzoni, L.I., ed. Risk Adjustment for Measuring Health Care Outcomes. Ann Arbor, Mich.: Health Administration Press, 1994. Iversen, L.H., C.N.Oberg, and C.L.Polich. The Availability of Long-Term Care Services for Medicare Beneficiaries in Health Maintenance Organizations. Medical Care 26:918–925, 1988. Mor, V. Using Global and Targeted Outcomes Measures in Applied Settings. Presentation at the Institute of Medicine workshop “Evaluating Health Outcomes for Elderly People in a Changing Health Care Marketplace,” Washington, D.C., June 20, 1996. TRANSITIONS Bauer, E.J. Transitions from Home to Nursing Home in a Capitated Long-Term Care Program: The Role of Individual Support Systems. Health Services Research 31(3):309–326, 1996. Coleman, B., E.Kassner, and J.Pack. New Directions for State Long-Term Care Systems. Vol. II, Addressing Institutional Bias and Fragmentation. Washington, D.C.: American Association of Retired Persons/Public Policy Institute, 1996. Newman, S.J. The Effects of Supports on Sustaining Older Disabled Persons in the Community. Washington, D.C.: American Association of Retired Persons/Public Policy Institute, 1995. QUALITY ASSESSMENT AND IMPROVEMENT IOM. Medicare: A Strategy for Quality Assurance. K.N.Lohr, ed. Washington, D.C.: National Academy Press, 1990. Kane, R.L. Improving the Quality of Long-Term Care. Journal of the American Medical Association 273(17):1376–1380, 1995. CONDUCT OF RESEARCH Angell, M. Science on Trial: The Clash of Medical Evidence and the Law in the Breast Implant Case. New York: W.W. Norton, 1996. Beauchamp, T., R.Cook, W.Fayerweather, G.Raabe, S.Cowles, and G.Spivey. Ethical Guidelines for Epidemiologists. Journal of Clinical Epidemiology 44(Suppl. 1):151S–169S, 1991. Hillman, A.L., J.M.Eisenberg, M.V.Pauly, B.S.Bloom, H.Glick, B.Kinosian, and J.S.Schwartz. Avoiding Bias in the Conduct and Reporting of Cost-Effectiveness Research Sponsored by Pharmaceutical Companies. New England Journal of Medicine 324(19):1362–1365, 1991. DATA QUALITY Harris, T.B., and M.G.Kovar. Data Sets for Research in Aging: The National Center for Health Statistics. In The Epidemiologic Study of the Elderly. R.B.Wallace and R.F.Woolson, eds. New York: Oxford University Press, 1992.
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Representative terms from entire chapter: