eventual implementation. The group has also published a booklet, Taking Steps, which provides a useful information format and worksheet for the public on advance directives.

The Whitmore Foundation

Hospice for the Deaf


Judith Lauterstein, Ph.D.

The George Whitmore Foundation

33 East 38th Street, Suite 3A

New York, NY 10016


When hospitalized, the deaf frequently sustain long periods of social isolation. They cannot communicate with doctors and other hospital staff unless a qualified interpreter is present. Currently, there are no hospice programs actively serving the deaf community. The George Whitmore Foundation, in collaboration with the Jacob Perlow Hospice, will create a program of hospice care for the deaf at the end of life. A key component of this pilot program will be the collection of data from the deaf community about their experiences with end-stage illness.

Additional Internet Sites of Interest

The Compassionate Friends: www.jjt.com

Growth House, Inc.: www.growthhouse.org

The International Work Group on Death, Dying, and Bereavement: www.wwdc.com/death/iwg/iwg.html

The Union of American Hebrew Congregations: server.huc.edu/rjbackup/uahc/conv/adres/care.html

Health Care Financing Administration: www.hcfa.gov

Agency for Health Care Policy Research: www.ahcpr.gov

The National Academies | 500 Fifth St. N.W. | Washington, D.C. 20001
Copyright © National Academy of Sciences. All rights reserved.
Terms of Use and Privacy Statement