APPENDIX E
Tissue Bank Letter and Questionnaire

INSTITUTE OF MEDICINE

NATIONAL ACADEMY OF SCIENCES

2101 CONSTITUTION AVENUE, N.W. WASHINGTON, D.C. 20418

COMMITTEE ON BREAST CANCER RESEARCH

PHONE (202) 334-1917

FAX (202) 334-2316

October 18, 1996

Dear Grantee,

The U.S. Army Medical Research and Materiel Command's (USAMRMC's) Breast Cancer Research Program is currently being reviewed and evaluated by an independent scientific committee appointed by the Institute of Medicine (IOM). An important part of this process is obtaining information about the tissue banks being funded by the USAMRMC Breast Cancer Research Program. You are being asked to complete the enclosed brief questionnaire. You have been asked to participate as a result of our request to the USAMRMC to identify current tissue bank projects.

Your responses will be confidential and anonymous. To protect your confidentiality, we have selected a small number of investigators from a longer list of such projects. All responses will be pooled and neither the USAMRMC nor the committee will be given your identity or the name of your project. No



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A Review of the Department of Defense's Program for Breast Cancer Research APPENDIX E Tissue Bank Letter and Questionnaire INSTITUTE OF MEDICINE NATIONAL ACADEMY OF SCIENCES 2101 CONSTITUTION AVENUE, N.W. WASHINGTON, D.C. 20418 COMMITTEE ON BREAST CANCER RESEARCH PHONE (202) 334-1917 FAX (202) 334-2316 October 18, 1996 Dear Grantee, The U.S. Army Medical Research and Materiel Command's (USAMRMC's) Breast Cancer Research Program is currently being reviewed and evaluated by an independent scientific committee appointed by the Institute of Medicine (IOM). An important part of this process is obtaining information about the tissue banks being funded by the USAMRMC Breast Cancer Research Program. You are being asked to complete the enclosed brief questionnaire. You have been asked to participate as a result of our request to the USAMRMC to identify current tissue bank projects. Your responses will be confidential and anonymous. To protect your confidentiality, we have selected a small number of investigators from a longer list of such projects. All responses will be pooled and neither the USAMRMC nor the committee will be given your identity or the name of your project. No

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A Review of the Department of Defense's Program for Breast Cancer Research identifying information will be included in any reports resulting from this survey. Your participation is essential for identifying issues and strategies for improvement. The grantees' perspective will play an important part in the committee's deliberations. Please limit your response to two pages. Because of the short time frame for this study, we need to receive your responses no later than Tuesday, November 5, 1996. We encourage you to fax your response to 202-334-2316. If you have any questions or concerns about this survey, please call one of us at the phone numbers below. We appreciate your cooperation. Sincerely, Mary Poos Study Director Committee on Breast Cancer Research Sincerely, George Davatelis Program Officer Committee on Breast Cancer Research Questions for Tissue Banks: 1a.) Was the USAMRMC funding used to establish this tissue bank facility or was the facility already in existence? Do you receive other funding? Please explain in detail, and briefly itemize what the money was used for (e.g., capital expenditures, personnel, etc.). 1b.) For programs already in existence, what impact did these additional monies have on your program (i.e., expand current services, create new services, upgrade facilities, etc.)? 2.) Where do you get your tissue samples? 3.) Who can use your facility? What communities do you serve? 4.) How many requests have you gotten for samples since receiving the USAMRMC funds? 5.) How many tissue samples have you collected? 6.) Is there a fee for using the facility? Is it open to anybody who wants?

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A Review of the Department of Defense's Program for Breast Cancer Research 7.) Do you have guidelines for "informed consent," "discrepant opinions," and "quality assurance" Please explain what they are if you do (and include the forms/guidelines in your return answer) and why not if you do not.

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A Review of the Department of Defense's Program for Breast Cancer Research This page in the original is blank.