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The Unpredictable Certainty: White Papers (1997)
Computer Science and Telecommunications Board (CSTB)

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. "Effective Information Transfer for Health Care: Quality versus Quantity." The Unpredictable Certainty: White Papers. Washington, DC: The National Academies Press, 1997.

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Page 554

Analysis

Assessing the demands placed on the national information infrastructure by health care services requires considering the needs of the health care providers and their intermediaries. This analysis is thus based on customer pull rather than on technology push. This approach is likely to lead to lower estimates than would a model focusing on technological capabilities. However, we will assume a progressive environment, where much paper has been displaced by the technologies that are on our horizon.

In our model, information requests are initially generated for the delivery of health care by the providers and their intermediaries. Pharmacies and laboratories are important nodes in the health care delivery system. Education for providers and patients is crucial as well and will be affected by the new technologies. Managers of health care facilities have their needs as well, paralleled at a broader level by the needs of public health agencies. Functions such as the publication of medical literature and the production of therapeutics are not covered here, since we expect that topics such as digital libraries and manufacturing in this report will do justice to those areas.

Services for the Health Care Provider

The initial point in our model is the interaction of the provider with the patient. Such an interaction may be the initial encounter, where tradition demands a thorough workup and recording of physical findings; it may be a visit motivated by a problem, where diagnostic expertise is at a premium; it may be an emergency, perhaps due to trauma, where the problem may be obvious but the treatment less so; or it may be a more routine follow-up visit. In practice, the majority of visits fall into this routine category.

Adequate follow-up is crucial to health care effectiveness and is an area where information technology has much to offer. Having the right data at hand permits the charting of progress, as well as the therapeutic adjustments needed to improve or maintain the patient's health care status. Follow-up care is mainly provided locally. The majority of the consumers of such care are the older, less mobile population. It is this population that has the more complex, longer-term illnesses that require more information

The needs for information differ for each of the interactions described above. Initial workups mainly produce data. The diagnostic encounter has the greatest access demands. Emergency trauma care may require some crucial information, but it is rarely available, so that reliance is placed on tests and asking the patient or relatives for information. Note that many visits to emergency facilities, especially in urban settings, are made to obtain routine care, because of the absence of accessible clinical services. For our analysis these are recategorized. A goal for health care modernization should be better allocation of resources to points of need, but here we discuss only the information needs. Information for follow-up visits should summarize the patient's history; unexpected findings will trigger a diagnostic routine.

To assess the need for data transmission we need to look at both the distance and the media likely to carry the needed information. Media differ greatly, and all must be supported. Many physical findings can be described compactly with text. Laboratory findings are compactly represented in numeric form. Sensor-based tests, such as EKGs and EEGs, are time series, requiring some, but still modest, data volumes. Sonograms can be voluminous. The results of ultrasound scans are often presented as images. Other diagnostic procedures often produce images directly, such as x-ray or CT and similar scans that are digitally represented. High-quality x-rays require much storage and transmission capacity, whereas most digital images have larger pixels or voxels and require more modest storage volumes. The practitioner typically relies on intermediate specialists to interpret the data obtained from sensors and images, although for validation access to the source material is also wanted.

The distance that this information has to travel depends both on setting and data source. Table 1 indicates estimated sources of patient care information for the types of clinical encounters listed.

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Front Matter (R1-R14)
The National Information Infrastructure and the Earth Sciences: Possibilities and Challenges (1-9)
Government Services Information Infrastructure Management (10-17)
Cutting the Gordian Knot: Providing the American Public with Advanced Universal Access in a Fully Competitive Marketplace at the Lowest Possible Cost (18-25)
The Role of Cable Television in the NII (26-30)
Competing Definitions of 'Openness' on the GII (31-37)
Communications for People on the Move: A Look into the Future (38-43)
Building the NII: Will the Shareholders Come? (And if They Don't, Will Anyone Really Care?) (44-56)
The Electronic Universe: Network Delivery of Data, Science, and Discovery (57-66)
An SDTV Decoder with HDTV Capability: An All-Format ATV Decoder (67-75)
NII and Intelligent Transport Systems (76-84)
Post-NSFNET Statistics Collection (85-96)
NII Road Map: Residential Broadband (97-100)
The NII in the Home: A Consumer Service (101-109)
Internetwork Infrastructure Requirements for Virtual Environments (110-122)
Electric Utilities and the NII: Issues and Opportunities (123-132)
Interoperation, Open Interfaces, and Protocol Architecture (133-144)
Service Provider Interoperability and the National Information Infrastructure (145-155)
Funding the National Information Infrastructure: Advertising, Subscription, and Usage Charges (156-164)
The NII in the Home (165-167)
The Evolution of the Analog Set-Top Terminal to a Digital Interactive Home Communications Terminal (168-177)
Spread ALOHA Wireless Multiple Access: The Low-Cost Way for Ubiquitous, Tetherless Access to the Information Infrastructure (178-184)
Plans for Ubiquitous Broadband Access to the National Information Infrastructure in the Ameritech Region (185-189)
How Do Traditional Legal, Commercial, Social, and Political Structures, When Confronted with a New Service, React and Interact? (190-200)
The Internet, the World Wide Web, and Open Information Services: How to Build the Global Information Infrastructure (201-204)
Organizing the Issues (205-208)
The Argument for Universal Access to the Health Care Information Infrastructure: The Particular Needs of Rural Areas, the Poor, and the Underserved (209-216)
Toward a National Data Network: Architectural Issues and the Role of Government (217-227)
Statement on National Information Infrastucture Issues (228-232)
Proposal for an Evaluation of Health Care Applications on the NII (233-236)
The Internet - A Model: Thoughts on the Five Year Outlook (237-240)
The Economics of Layered Networks (241-247)
The Fiber-Optic Challenge of Information Infrastructure (248-255)
Cable Television Technology Deployment (256-270)
Privacy, Access and Equity, Democracy, and Networked Interactive Media (271-279)
As We May Work: An Approach Toward Collaboration on the NII (280-285)
The Use of the Social Security Number as the Basis for a National Citizen Identifier (286-291)
Estimating the Costs of Telecommunications Regulation (292-303)
Residential PC Access: Issues with Bandwidth Availability (304-314)
The National Information Infrastructure: A High Performance Computing and Communications Perspective (315-334)
Nomadic Computing and Communications (335-341)
NII 2000: The Wireless Perspective (342-350)
Small Manufacturing Enterprises and the National Information Infrastructure (351-363)
Architecture for an Emergency Lane on the NII: Crisis Information Management (364-373)
Aspects of Integrity in the NII (374-377)
What the NII Could Be: A User Perspective (378-387)
Role of the PC in Emerging Information Infrastructures (388-396)
NII Evolution - Technology Deployment Plans, Challenges, and Opportunities: AT&T Perspective (397-404)
Enabling Petabyte Computing (405-411)
Private Investment and Federal National Information Infrastructure Policy (412-415)
Thoughts on Security and the NII (416-421)
Trends in Deployments of New Telecommunications Services by Local Exchange Carriers in Support of an Advanced National Information Infrastructure (422-433)
The Future NII/GII: Views of Interexchange Carriers (434-446)
Technology in the Local Network (447-461)
Recognizing What the NII Is, What It Needs, and How to Get It (462-468)
Electronic Integrated Product Development as Enabled by a Global Information Environment: A Requirement for Success in the Twenty-first Century (469-478)
Interoperability, Standards, and Security: Will the NII Be Based on Market Principles? (479-491)
Technology and Cost Models for Connecting K-12 Schools to the National Information Infrastructure (492-510)
Geodata Interoperability: A Key NII Requirement (511-520)
Electronic Commerce (521-537)
Prospects and Prerequisites for Local Telecommunications Competition: Public Policy Issues for the NII (538-545)
The Awakening 3.0: PCs, TSBs, or DTMF-TV - Which Is Right for the Next Generation's Public Network? (546-552)
Effective Information Transfer for Health Care: Quality versus Quantity (553-559)
Integrating Technology with Practice: A Technology-enhanced, Field-based Teacher Preparation Program (560-575)
RegNet: An NPR Regulatory Reform Initiative Toward NII/GII Collaboratories (576-604)
Electronic Document Interchange and Distribution Based on the Portable Document Format, an Open Interchange Format (605-617)