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Reducing the Odds: Preventing Perinatal Transmission of HIV in the United States (1999)
Institute of Medicine (IOM)

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. "E New York/New Jersey Site Visit Summary." Reducing the Odds: Preventing Perinatal Transmission of HIV in the United States. Washington, DC: The National Academies Press, 1999.

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research components, we are not prepared financially. If we don't have research, we don't have resources."

Counseling Emphasis on Newborn and Maternal Health

Counselors reported finding pregnant women to be generally receptive to HIV testing, even more receptive than women who are not pregnant. In their experience, the most persuasive arguments for patient acceptance of testing and treatment emphasized health benefits, first to the newborn and then to the mother. One counselor said, "We tell them [the pregnant women] that it's right for their baby, and what's best for the baby is also best for you." The experience of the counselors was confirmed by the patients who were interviewed. Virtually all patients described their newborn's health, before their own, as their overarching reason for proceeding with testing and treatment (see patient profiles). They described their experience as mothers as the best time of their lives. A number of them chose to proceed with subsequent pregnancies despite being HIV-positive.

Financing of Health Care

Most programs reported state and federal programs to be indispensable to financing health care. For low-income pregnant women, Medicaid was the premier program that paid for medications and medical care. Medicaid financed laboratory tests, antiretroviral therapy and other medications, primary care, and hospitalizations, including labor and delivery. Medicaid is relatively easy for pregnant women to obtain, if they meet federal and state eligibility requirements. Most programs helped their patients to fill out applications. Low-income women who are awaiting Medicaid approval or who do not qualify for Medicaid are eligible for supplementary coverage through a program called ADAP (AIDS Drug Assistance Program) that receives funds under the federal Ryan White Comprehensive AIDS Resources Emergency (CARE) Act. This program covers, free of charge, HIV-positive patients' medications, primary care, and home care.

Routine Incorporation of Counseling into Care

Programs regarded another ingredient of their success to be the incorporation of counseling, testing, and treatment procedures into routine clinical practice. Well-established clinic policies and management support were seen as key. Programs understood that counseling, while laborand time-intensive, was pivotal to patient acceptance of testing and treatment. Some programs also had policies for repeat testing to ensure that patients did not seroconvert later in pregnancy. One program reported testing patients every three to four months if the patient was seen early in the prenatal period.

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238
Front Matter (R1-R16)
Executive Summary (1-14)
1 Introduction (15-20)
2 Public Health Screening Programs (21-35)
3 Descriptive Epidemiology of the Perinatal Transmission of HIV (36-44)
4 Natural History, Detection, and Treatment of HIV Infection in Pregnant Women and Newborns (45-53)
5 Context of Services for Women and Children Affected by HIV/AIDS (54-67)
6 Implementation and Impact of the Public Health Service Counseling and Testing Guidelines (68-108)
7 Recommendations (109-133)
References (134-144)
Appendixes (145-146)
A Committee and Staff Biographies (147-154)
B Context of Services for Women and Children Affected by HIV/AIDS (155-189)
C Workshop I Summary (190-202)
D Workshop II Summary (203-235)
E New York/New Jersey Site Visit Summary (236-251)
F Alabama Site Visit Summary (252-259)
G South Texas Site Visit Summary (260-270)
H Florida Conference Summary (271-274)
I HIV Testing and Perinatal Transmission: Thoughts from an HIV-Positive Mother (275-285)
J Human Immunodeficiency Virus Antibody Testing Among Women 15-44: Results from the 1995 National Survey of Family Growth (286-303)
K Details of the Committee's Models and Assumptions (304-312)
L Passing the Test: New York's Newborn HIV Testing Policy, 1987-1997 (313-340)
M Excerpts from the Ryan White CARE Act Amendments of 1996 (341-346)
N 1995 U.S. Public Health Service Recommendations for Human Immunodeficiency Virus Counseling and Testing for Pregnant Women (347-371)
O Acronyms and Glossary (372-376)
Index (377-397)