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OCR for page 95
Non-Heart-Beating Organ Transplantation: Practice and Protocols
APPENDIX B
Workshop Agenda
NON-HEART-BEATING TRANSPLANTATION II: THE SCIENTIFIC AND ETHICAL BASIS FOR PRACTICE AND PROTOCOLS
Washington, D.C., May 24–25, 1999
Monday, May 24, 1999
Introduction
Introduction to the Committee
Introduction to the Study
Institute of Medicine Study, 1997
OPO NHBD protocols 1997–1998
Policy Context
Lynn Rothberg-Wegman, Deputy Director, Division of Transplantation
Health Resources and Services Administration (HRSA)
Clinical Context: Decisions to Forgo Artificial Support
Brief review of legal/ethical basis for decisions to forgo treatment
End of Life Care and Organ Donation: The Patient and Family
Family member experiences
Short presentation; questions and answers
Bob and Nancy Curran
Peggy Schaeffer
Roundtable I. Protocol Content
Brief presentation by each program, comparing specific protocol provisions and rationale.
Washington Hospital Center, Jimmy Light, M.D.
University of Pittsburgh, Michael DeVita, M.D.
OCR for page 96
Non-Heart-Beating Organ Transplantation: Practice and Protocols
University of Florida/SHANDS, Danielle Cornell, R.N., B.S.N., C.P.T.C.
New England Organ Bank, Francis Delmonico, M.D.
Gift of Life Donor Program, John Edwards, R.N., C.P.T.C.
Ohio Valley LifeCenter, David Lewis, R.N., B.S.N.
Building Consensus on Protocol Content
Committee questions
Public comments
Roundtable II. Protocol Development
Brief overview of each program’s experiences in developing a protocol for non-heart-beating organ donation.
Washington Hospital Center, Jimmy Light, M.D.
University of Pittsburgh, Michael DeVita, M.D.
University of Florida/SHANDS, Danielle Cornell, R.N., B.S.N., C.P.T.C.
New England Organ Bank, Francis Delmonico, M.D.
Gift of Life Donor Program, John Edwards, R.N., B.S.N., C.P.T.C.
Ohio Valley Life Center, David Lewis, R.N., B.S.N.
Steps in Protocol Development
Committee questions
Public comments
Roundtable III: Protocol Implementation
Transplant Coordinators
Mark Reiner, , P.A., CPTC, University of Florida OPO
North American Transplant Coordinators Association (NATCO)
Transplant Recipients
Patricia Weiskittel, R.N., M.S.N., American Nephrology Nurses’ Association
Critical Care Nursing
Jacqueline Sullivan, R.N., Ph.D., Neurosurgery Intensive Care Clinical Nurse Specialist
Rural Hospitals
Anne Freeman Cook, M.P.A., High Mountains High Plains Bioethics Project
OCR for page 97
Non-Heart-Beating Organ Transplantation: Practice and Protocols
Outcomes
Louise Jaccobi, C.P.T.C., Louisiana Organ Procurement Agency
Discussion of implementing a non-heart-beating organ procurement program and carrying out non-heart-beating organ procurement protocols: resources, outreach, education, follow-up.
Discussion: Issues in Implementation
Committee questions.
Public comments
Public Comment
Tuesday, May 25
Issues in Dissemination and Research: Declaring Death
Commissioned Paper: Stuart Youngner, M.D., Robert Arnold, M.D., and Michael DeVita, M.D.
Committee questions
Issues in Dissemination and Research: Evaluation
Commissioned paper: M. Solomon, Ph.D.
Committee questions
The Donor Family
A family-centered approach
Family information pamphlet: review and discussion
Public Comments
Representative terms from entire chapter:
public comments
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