APPENDIX B
Workshop Agenda

NON-HEART-BEATING TRANSPLANTATION II: THE SCIENTIFIC AND ETHICAL BASIS FOR PRACTICE AND PROTOCOLS

Washington, D.C., May 24–25, 1999

Monday, May 24, 1999

Introduction

Introduction to the Committee

Introduction to the Study

Institute of Medicine Study, 1997

OPO NHBD protocols 1997–1998

Policy Context

Lynn Rothberg-Wegman, Deputy Director, Division of Transplantation

Health Resources and Services Administration (HRSA)

Clinical Context: Decisions to Forgo Artificial Support

Brief review of legal/ethical basis for decisions to forgo treatment

End of Life Care and Organ Donation: The Patient and Family

Family member experiences

Short presentation; questions and answers

Bob and Nancy Curran

Peggy Schaeffer

Roundtable I. Protocol Content

Brief presentation by each program, comparing specific protocol provisions and rationale.

Washington Hospital Center, Jimmy Light, M.D.

University of Pittsburgh, Michael DeVita, M.D.



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OCR for page 95
Non-Heart-Beating Organ Transplantation: Practice and Protocols APPENDIX B Workshop Agenda NON-HEART-BEATING TRANSPLANTATION II: THE SCIENTIFIC AND ETHICAL BASIS FOR PRACTICE AND PROTOCOLS Washington, D.C., May 24–25, 1999 Monday, May 24, 1999 Introduction Introduction to the Committee Introduction to the Study Institute of Medicine Study, 1997 OPO NHBD protocols 1997–1998 Policy Context Lynn Rothberg-Wegman, Deputy Director, Division of Transplantation Health Resources and Services Administration (HRSA) Clinical Context: Decisions to Forgo Artificial Support Brief review of legal/ethical basis for decisions to forgo treatment End of Life Care and Organ Donation: The Patient and Family Family member experiences Short presentation; questions and answers Bob and Nancy Curran Peggy Schaeffer Roundtable I. Protocol Content Brief presentation by each program, comparing specific protocol provisions and rationale. Washington Hospital Center, Jimmy Light, M.D. University of Pittsburgh, Michael DeVita, M.D.

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Non-Heart-Beating Organ Transplantation: Practice and Protocols University of Florida/SHANDS, Danielle Cornell, R.N., B.S.N., C.P.T.C. New England Organ Bank, Francis Delmonico, M.D. Gift of Life Donor Program, John Edwards, R.N., C.P.T.C. Ohio Valley LifeCenter, David Lewis, R.N., B.S.N. Building Consensus on Protocol Content Committee questions Public comments Roundtable II. Protocol Development Brief overview of each program’s experiences in developing a protocol for non-heart-beating organ donation. Washington Hospital Center, Jimmy Light, M.D. University of Pittsburgh, Michael DeVita, M.D. University of Florida/SHANDS, Danielle Cornell, R.N., B.S.N., C.P.T.C. New England Organ Bank, Francis Delmonico, M.D. Gift of Life Donor Program, John Edwards, R.N., B.S.N., C.P.T.C. Ohio Valley Life Center, David Lewis, R.N., B.S.N. Steps in Protocol Development Committee questions Public comments Roundtable III: Protocol Implementation Transplant Coordinators Mark Reiner, , P.A., CPTC, University of Florida OPO North American Transplant Coordinators Association (NATCO) Transplant Recipients Patricia Weiskittel, R.N., M.S.N., American Nephrology Nurses’ Association Critical Care Nursing Jacqueline Sullivan, R.N., Ph.D., Neurosurgery Intensive Care Clinical Nurse Specialist Rural Hospitals Anne Freeman Cook, M.P.A., High Mountains High Plains Bioethics Project

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Non-Heart-Beating Organ Transplantation: Practice and Protocols Outcomes Louise Jaccobi, C.P.T.C., Louisiana Organ Procurement Agency Discussion of implementing a non-heart-beating organ procurement program and carrying out non-heart-beating organ procurement protocols: resources, outreach, education, follow-up. Discussion: Issues in Implementation Committee questions. Public comments Public Comment Tuesday, May 25 Issues in Dissemination and Research: Declaring Death Commissioned Paper: Stuart Youngner, M.D., Robert Arnold, M.D., and Michael DeVita, M.D. Committee questions Issues in Dissemination and Research: Evaluation Commissioned paper: M. Solomon, Ph.D. Committee questions The Donor Family A family-centered approach Family information pamphlet: review and discussion Public Comments