National Academies Press: OpenBook
Suggested Citation:"Front Matter." Institute of Medicine and National Research Council. 1999. Review of the Disability Evaluation Study Design: Third Interim Report. Washington, DC: The National Academies Press. doi: 10.17226/9706.
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Review of Disability Evaluation Study Design

Third Interim Report

Gooloo S. Wunderlich and William D. Kalsbeek, Editors

Committee to Review the Social Security Administration's Disability Decision Process Research

Dorothy Rice, Chair

Division of Health Care Services

INSTITUTE OF MEDICINE and

Committee on National Statistics

Commission on Behavioral and Social Sciences and Education

NATIONAL RESEARCH COUNCIL

NATIONAL ACADEMY PRESS
Washington, D.C.

Suggested Citation:"Front Matter." Institute of Medicine and National Research Council. 1999. Review of the Disability Evaluation Study Design: Third Interim Report. Washington, DC: The National Academies Press. doi: 10.17226/9706.
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NATIONAL ACADEMY PRESS
2101 Constitution Avenue, N.W. Washington, DC 20418

NOTICE: The project that is the subject of this report was approved by the Governing Board of the National Research Council, whose members are drawn from the councils of the National Academy of Sciences, the National Academy of Engineering, and the Institute of Medicine. The members of the committee responsible for the report were chosen for their special competences and with regard for appropriate balance.

The Institute of Medicine was chartered in 1970 by the National Academy of Sciences to enlist distinguished members of the appropriate professions in the examination of policy matters pertaining to the health of the public. In this, the Institute acts under both the Academy's 1863 congressional charter responsibility to be an adviser to the federal government and its own initiative in identifying issues of medical care, research, and education. Dr. Kenneth I. Shine is President of the Institute of Medicine.

Support for this project was provided by Contract No. 600-96-27893 between the National Academy of Sciences and the Social Security Administration. The views presented in this report are those of the Institute of Medicine Committee to Review the Social Security Administration's Disability Decision Process Research and are not necessarily those of the funding agencies.

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For more information about the Institute of Medicine, visit the IOM home page at: www.iom.edu. For more information about the Committee on National Statistics, visit the CNSTAT home page at www2.nas.edu/cnstat.

Copyright 1999 by the National Academy of Sciences. All rights reserved.

Printed in the United States of America.

The serpent has been a symbol of long life, healing, and knowledge among almost all cultures and religions since the beginning of recorded history. The serpent adopted as a logotype by the Institute of Medicine is a relief carving from ancient Greece, now held by the Staatliche Museen in Berlin.

Suggested Citation:"Front Matter." Institute of Medicine and National Research Council. 1999. Review of the Disability Evaluation Study Design: Third Interim Report. Washington, DC: The National Academies Press. doi: 10.17226/9706.
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COMMITTEE TO REVIEW THE SOCIAL SECURITY ADMINISTRATION'S DISABILITY DECISION PROCESS RESEARCH

DOROTHY P. RICE (Chair), Professor Emeritus,

Department of Social and Behavioral Sciences, Institute for Health and Aging, University of California at San Francisco

MONROE BERKOWITZ, Professor of Economics, Emeritus, and Director,

Disability and Health Economics Research, Rutgers University, New Brunswick, New Jersey

RONALD S. BROOKMEYER, Professor of Biostatistics,

The Johns Hopkins University School of Hygiene and Public Health

GERBEN DEJONG, Director,

National Rehabilitation Hospital Research Center, and

Professor of Family Medicine and Adjunct Professor,

Georgetown University Institute of Public Policy, Washington, D.C.

MARSHAL F. FOLSTEIN, Chairman and Professor of Psychiatry,

Tufts University School of Medicine; and

Psychiatrist-in-Chief,

New England Medical Center, Boston, Massachusetts

ROBERT M. GROVES, Director of the Joint Program on Survey Methodology at the University of Maryland at College Park; and Professor and Program Director,

Survey Research Center of the University of Michigan at Ann Arbor

ALAN M. JETTE, Professor and Dean,

Sargent College of Health and Rehabilitation Sciences, Boston University

WILLIAM D. KALSBEEK, Professor of Biostatistics and Director,

Survey Research Unit, University of North Carolina at Chapel Hill

JERRY L. MASHAW, Sterling Professor of Law and Management and Professor,

Institute for Social and Policy Studies, Yale University

CATHARINE C. MASLOW, Director,

Initiative on Alzheimer's and Managed Care, Alzheimer's Association, Washington, D.C.

DONALD L. PATRICK, Professor of Health Services,

University of Washington School of Public Health and Community Medicine

HAROLD A. PINCUS, Senior Scientific Consultant,

Robert Wood Johnson Foundation, the John D. & Catherine T. MacArthur Foundation, and the RAND Corporation

JOHN A. SWETS, Chief Scientist,

Information Sciences, BBN Technologies, Cambridge, Massachusetts

EDWARD H. YELIN, Professor of Medicine and Health Policy,

Department of Medicine and Institute for Health Policy Studies, University of California at San Francisco

Study Staff

GOOLOO S. WUNDERLICH, Study Director

KATHLEEN NOLAN, Research Associate

NICOLE AMADO, Senior Project Assistant

Suggested Citation:"Front Matter." Institute of Medicine and National Research Council. 1999. Review of the Disability Evaluation Study Design: Third Interim Report. Washington, DC: The National Academies Press. doi: 10.17226/9706.
×

BOARD ON HEALTH CARE SERVICES INSTITUTE OF MEDICINE

DON E. DETMER (Chair), Professor of Medical Education in Health Evaluation Sciences,

University of Virginia

BARBARA J. McNEIL (Vice Chair), Ridley Watts Professor,

Department of Health Care Policy, Harvard Medical School

LINDA AIKEN, The Claire M. Fagin Leadership Professor of Nursing and Professor of Sociology, and Director of the Center for Health Outcomes and Policy Research,

University of Pennsylvania

STUART H. ALTMAN, Sol C. Chaikin Professor of National Health Policy,

The Florence Heller Graduate School for Social Policy, Brandeis University

HARRIS BERMAN, Chairman and Chief Executive Officer,

Tufts Health Plan, Waltham, Massachusetts

BRIAN BILES, Senior Vice President,

The Commonwealth Fund, New York, New York

CHRISTINE CASSEL, Chairman,

Henry L. Schwarz Department of Geriatrics and Adult Development, Mount Sinai Medical Center, New York, New York

PAUL D. CLAYTON, Medical Informaticist,

Intermountain Health Care, Salt Lake City, Utah

PAUL F. GRINER, Vice President and Director,

Center for the Assessment and Management of Change in Academic Medicine, Association of American Medical Colleges, Washington, D.C.

RUBY P. HEARN, Senior Vice President,

Robert Wood Johnson Foundation, Princeton, New Jersey

PETER BARTON HUTT, Partner,

Covington and Burling, Washington, D.C.

ROBERT L. JOHNSON, Professor of Pediatrics and Clinical Psychiatry and Director of Adolescent and Young Adult Medicine,

University of Medicine and Dentistry of New Jersey, New Jersey Medical School

JACQUELINE KOSECOFF, President and Co-Chief Executive Officer,

Protocare, Santa Monica, California

SHEILA T. LEATHERMAN, Executive Vice President,

Center for Health Care Policy and Evaluation, United Health Care Corporation, Minneapolis, Minnesota

UWE E. REINHARDT, James Madison Professor of Political Economy and Professor of Economics and Public Affairs,

Princeton University

SHOSHANNA SOFAER, Robert P. Luciano Professor of Health Care Policy,

School of Public Affairs, Baruch College

GAIL L. WARDEN, President and Chief Executive Officer,

Henry Ford Health System, Detroit, Michigan

JANET M. CORRIGAN, Director,

Board on Health Care Services, IOM

Suggested Citation:"Front Matter." Institute of Medicine and National Research Council. 1999. Review of the Disability Evaluation Study Design: Third Interim Report. Washington, DC: The National Academies Press. doi: 10.17226/9706.
×

COMMITTEE ON NATIONAL STATISTICS NATIONAL RESEARCH COUNCIL

JOHN E. ROLPH (Chair),

Marshall School of Business, University of Southern California

JOSEPH G. ALTONJI,

Department of Economics, Northwestern University

JULIE DAVANZO,

RAND, Santa Monica, California

WILLIAM F. EDDY,

Department of Statistics, Carnegie Mellon University

WILLIAM D. KALSBEEK,

Survey Research Unit, Department of Biostatistics, University of North Carolina

RODERICK J. A. LITTLE,

School of Public Health, University of Michigan

THOMAS A. LOUIS,

Division of Biostatistics, University of Minnesota

CHARLES F. MANSKI,

Department of Economics, Northwestern University

WILLIAM D. NORDHAUS,

Department of Economics, Yale University

JANET L. NORWOOD,

The Urban Institute, Washington, D.C.

EDWARD B. PERRIN,

Department of Health Services, University of Washington

PAUL R. ROSENBAUM,

Department of Statistics, The Wharton School, University of Pennsylvania

FRANCISCO J. SAMANIEGO,

Division of Statistics, University of California at Davis

RICHARD L. SCHMALENSEE,

Sloan School of Management, Massachusetts Institute of Technology

MIRON L. STRAF, Director (on leave)

ANDREW WHITE, Acting Director

Suggested Citation:"Front Matter." Institute of Medicine and National Research Council. 1999. Review of the Disability Evaluation Study Design: Third Interim Report. Washington, DC: The National Academies Press. doi: 10.17226/9706.
×

REVIEWERS

This report has been reviewed in draft form by individuals chosen for their diverse perspectives and technical expertise, in accordance with procedures approved by the NRC's Report Review Committee. The purpose of this independent review is to provide candid and critical comments that will assist the institution in making the published report as sound as possible and to ensure that the report meets institutional standards for objectivity, evidence, and responsiveness to the study charge. The review comments and draft manuscript remain confidential to protect the integrity of the deliberative process. We wish to thank the following individuals for their participation in the review of this report:

NORMAN BRADBURN, Senior Vice President for Research of the National Opinion Research Center (NORC), University of Chicago

JOAN LEON, Private Consultant, Berkeley, California

RODERICK J. A. LITTLE, Chair, Department of Biostatistics, University of Michigan

EDWARD B. PERRIN, Professor Emeritus, University of Washington

SEYMOUR SUDMAN, Professor, University of Illinois-Urbana

While the individuals listed above have provided constructive comments and suggestions, it must be emphasized that responsibility for the final content of this report rests entirely with the authoring committee and the institution.

Suggested Citation:"Front Matter." Institute of Medicine and National Research Council. 1999. Review of the Disability Evaluation Study Design: Third Interim Report. Washington, DC: The National Academies Press. doi: 10.17226/9706.
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The Social Security Administration (SSA) has been engaged in a major effort to redesign the process for determining disability for cash benefits and medical assistance under its Social Security Disability Insurance (SSDI), Title II of the Social Security Act and the Supplemental Security Income (SSI), Title XVI of the Social Security Act. Because of the complexity and far-reaching impact of its efforts, SSA concluded that the redesign effort requires extensive research, testing, and validation, as well as further development of some of its components before national implementation. The effect of the new determination process on the number and characteristics of future beneficiaries also needs further study. The agency asked the National Academies to provide ongoing independent and unbiased review of, and recommendations on, its current and proposed research as it relates to the development of a revised disability decision process including the approach, survey design, and content of the complex multiyear Disability Evaluation Study (DES).

The present report is the third in a series of short interim reports of the National Academies' Committee to Review the SSA's Disability Decision Process. This third interim report relates directly to one of the contract tasks—review of the design, approach, and content of the DES, as proposed by SSA's contractor for the survey, Westat, Inc. This report is limited to a brief review of the sample design (including that of the pilot study), instruments and procedures, and response rates goals developed by Westat and provided by SSA in June 1999 to the committee for its review and recommendations. It also comments on the proposed timeline for initiation of each phase of the survey.

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