APPENDIX B

Workshop on Survey Measurement of Work Disability: Challenges for Survey Design and Method

Committee to Review SSA's Disability Decision Process Research

National Academy of Sciences/Institute of Medicine

Holiday Inn Georgetown, Mirage I

2101 Wisconsin Avenue, N.W., Washington, D.C.

May 27–28, 1999

WORKSHOP AGENDA

Thursday, May 27

9:00–9:15 a.m.

Welcome and Introduction

Dorothy Rice, Chair

9:15–9:30 a.m.

Welcoming Remarks

Jane Ross, Deputy Commissioner, SSA

SESSION ONE

9:30–10:30 a.m.

Overview of the Two Background Papers: Opportunities for Methodological Research on Survey Measures Related to Disability

Elizabeth Badley, Alan Jette, and Nancy Mathiowetz

Contributor: Allan Sampson

An examination of the various conceptual models of disability and the disablement process and their ability to address SSA's disability program requirements.

  • The challenges related to the translation of conceptual models to valid and reliable questions which can be administered to the general population.

  • The identification of the coverage, nonresponse, and measurement error properties of current measures of work disability.

  • Potential problems in cross-walking among measures of disability collected in a variety of settings and under varying survey conditions.



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SURVEY MEASUREMENT OF WORK DISABILITY: Summary of a Workshop APPENDIX B Workshop on Survey Measurement of Work Disability: Challenges for Survey Design and Method Committee to Review SSA's Disability Decision Process Research National Academy of Sciences/Institute of Medicine Holiday Inn Georgetown, Mirage I 2101 Wisconsin Avenue, N.W., Washington, D.C. May 27–28, 1999 WORKSHOP AGENDA Thursday, May 27 9:00–9:15 a.m. Welcome and Introduction Dorothy Rice, Chair 9:15–9:30 a.m. Welcoming Remarks Jane Ross, Deputy Commissioner, SSA SESSION ONE 9:30–10:30 a.m. Overview of the Two Background Papers: Opportunities for Methodological Research on Survey Measures Related to Disability Elizabeth Badley, Alan Jette, and Nancy Mathiowetz Contributor: Allan Sampson An examination of the various conceptual models of disability and the disablement process and their ability to address SSA's disability program requirements. The challenges related to the translation of conceptual models to valid and reliable questions which can be administered to the general population. The identification of the coverage, nonresponse, and measurement error properties of current measures of work disability. Potential problems in cross-walking among measures of disability collected in a variety of settings and under varying survey conditions.

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SURVEY MEASUREMENT OF WORK DISABILITY: Summary of a Workshop SESSION TWO 10:45 a.m.–12:00 p.m. Implications of Different Concepts for Survey Measurement Problems Discussion Leader: Robert Groves Contributors: Ellen MacKenzie and Allan Hunt How do the various conceptual models address the dynamic nature of disability and how do these models address SSA's disability program requirements? How do the various conceptual models address the role of environment, adaptation, expectations, and perceptions? What measurement gaps exist between the various conceptual models of disability and the current set of disability measures used in federal surveys? SESSION THREE 1:00–2:00 p.m. Sampling, Accessing, and Measuring People with Disabilities Discussion Leader: Colm O'Muircheartaigh Contributors: Lawrence Branch and Ronald Kessler To what extent do varying modes and methods of data collection facilitate participation among persons with disabilities? If access to a person with a work disability is limited (due to the interface between the survey design and the nature of the disability), how is the measurement of disability affected by the role of the proxy respondent—caregiver as respondent, other proxy respondent? Can tradeoffs be assessed between nonresponse and measurement errors? What gaps exist in our knowledge of the relative impact of coverage, nonresponse, and measurement error on estimates of disability? SESSION FOUR 2:00–3:00 p.m. Questionnaire Development Issues for Measures of Work Disability Discussion Leader: Seymour Sudman Contributors: Roger Tourangeau and Jack McNeil In light of developments related to the integration of

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SURVEY MEASUREMENT OF WORK DISABILITY: Summary of a Workshop cognitive theory and survey methodology, how should measures of work disability be evaluated? How does the dynamic nature of disability and the disablement process impact the measurement of work disability? How is measurement affected by the role of the person providing the information—self-respondent, caregiver as respondent, or other proxy reporters? To what extent should we look to statistical modeling related to scale reduction as a means for reducing the effects of measurement error? How will the measurement of work disability in a variety of settings (the DES and other ongoing federal data collection efforts) impact SSA's ability to monitor the pool of people potentially eligible for disability benefits? What research needs to be conducted to develop robust measures of work disability, and to address the gaps in our knowledge about the measurement error properties of current measures? SESSION FIVE 3:30–5:00 p.m. Role of Environment in Survey Measurement of Disability Discussion Leader: David Gray Contributors: Sandra Berry and Lois Verbrugge How is the measurement of work disability affected by environment, perceptions, and expectations? Is there a differential impact of environment on the reporting of disability as a function of the role of the person providing the information—self-respondent, caregiver, or other proxy respondent? What do we know about the measurement of the role of environment, expectations, and perceptions with respect to the various sources of survey error, specifically, nonresponse and measurement error? What gaps exist in our knowledge of how to adequately measure environment and its impact on the measurement of work disability? What research needs to be conducted to address these gaps?

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SURVEY MEASUREMENT OF WORK DISABILITY: Summary of a Workshop 5:00–5:30 p.m. General Discussion 5:40–6:40 p.m. Adjourn—Reception for all attendees Friday, May 28 SESSION SIX 9:00–10:30 a.m. Defining a Research Agenda Discussion Chair: Dorothy Rice What are the criteria for a “successful” measurement of functional capacity to work? Feasibility and practicality of designing and administering (i.e., safety, cost, etc.) measures of functional capacity to work. Technical issues of incorporating reliability, validity, sensitivity, and specificity in the context of SSA's disability decision process. How can these measurement approaches be linked to work requirements in the context of SSA's disability decision process? 10:45 a.m.–12:00 p.m. General Discussion Moderator: Robert Groves 12:00–12:15 p.m. Concluding Remarks Dorothy Rice 12:15 p.m. Adjourn