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Suggested Citation:"Front Matter." Institute of Medicine and National Research Council. 2000. Survey Measurement of Work Disability: Summary of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/9787.
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SURVEY MEASUREMENT OF WORK DISABILITY

Summary of a Workshop

Nancy Mathiowetz and Gooloo S. Wunderlich, Editors

Committee to Review the Social Security Administration's Disability Decision Process Research

Dorothy Rice, Chair

Division of Health Care Services

INSTITUTE OF MEDICINE

and

Committee on National Statistics

Commission on Behavioral and Social Sciences and Education

NATIONAL RESEARCH COUNCIL

NATIONAL ACADEMY PRESS
Washington, D.C.

Suggested Citation:"Front Matter." Institute of Medicine and National Research Council. 2000. Survey Measurement of Work Disability: Summary of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/9787.
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NATIONAL ACADEMY PRESS
2101 Constitution Avenue, NWWashington, DC20418

NOTICE: The project that is the subject of this report was approved by the Governing Board of the National Research Council, whose members are drawn from the councils of the National Academy of Sciences, the National Academy of Engineering, and the Institute of Medicine. The members of the committee responsible for the report were chosen for their special competences and with regard for appropriate balance.

Support for this project was provided by Contract No. 600-96-27893 between the National Academy of Sciences and the Social Security Administration. The views presented in this report are those of the Institute of Medicine Committee to Review the Social Security Administration 's Disability Decision Process Research and are not necessarily those of the funding agencies.

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For more information about the Institute of Medicine, visit the IOM home page at: www.iom.edu. For more information about the Committee on National Statistics, visit the CNSTAT home page at www2.nas.edu/cnstat.

Copyright 2000 by the National Academy of Sciences. All rights reserved.

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Suggested Citation:"Front Matter." Institute of Medicine and National Research Council. 2000. Survey Measurement of Work Disability: Summary of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/9787.
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THE NATIONAL ACADEMIES

National Academy of Sciences

National Academy of Engineering

Institute of Medicine

National Research Council

The National Academy of Sciences is a private, nonprofit, self-perpetuating society of distinguished scholars engaged in scientific and engineering research, dedicated to the furtherance of science and technology and to their use for the general welfare. Upon the authority of the charter granted to it by the Congress in 1863, the Academy has a mandate that requires it to advise the federal government on scientific and technical matters. Dr. Bruce M. Alberts is president of the National Academy of Sciences.

The National Academy of Engineering was established in 1964, under the charter of the National Academy of Sciences, as a parallel organization of outstanding engineers. It is autonomous in its administration and in the selection of its members, sharing with the National Academy of Sciences the responsibility for advising the federal government. The National Academy of Engineering also sponsors engineering programs aimed at meeting national needs, encourages education and research, and recognizes the superior achievements of engineers. Dr. William A. Wulf is president of the National Academy of Engineering.

The Institute of Medicine was established in 1970 by the National Academy of Sciences to secure the services of eminent members of appropriate professions in the examination of policy matters pertaining to the health of the public. The Institute acts under the responsibility given to the National Academy of Sciences by its congressional charter to be an adviser to the federal government and, upon its own initiative, to identify issues of medical care, research, and education. Dr. Kenneth I. Shine is president of the Institute of Medicine.

The National Research Council was organized by the National Academy of Sciences in 1916 to associate the broad community of science and technology with the Academy's purposes of furthering knowledge and advising the federal government. Functioning in accordance with general policies determined by the Academy, the Council has become the principal operating agency of both the National Academy of Sciences and the National Academy of Engineering in providing services to the government, the public, and the scientific and engineering communities. The Council is administered jointly by both Academies and the Institute of Medicine. Dr. Bruce M. Alberts and Dr. William A. Wulf are chairman and vice chairman, respectively, of the National Research Council.

Suggested Citation:"Front Matter." Institute of Medicine and National Research Council. 2000. Survey Measurement of Work Disability: Summary of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/9787.
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COMMITTEE TO REVIEW THE SOCIAL SECURITY ADMINISTRATION'S DISABILITY DECISION PROCESS RESEARCH

DOROTHY P. RICE (Chair), Professor Emeritus,

Department of Social and Behavioral Sciences, Institute for Health and Aging, University of California at San Francisco

MONROE BERKOWITZ, Professor of Economics, Emeritus, and Director,

Disability and Health Economics Research, Rutgers University, New Brunswick, New Jersey

RONALD S. BROOKMEYER, Professor of Biostatistics,

The Johns Hopkins University School of Hygiene and Public Health

GERBEN DEJONG, Director,

National Rehabilitation Hospital Research Center, and

Professor of Family Medicine and Adjunct Professor,

Georgetown University Institute of Public Policy, Washington, D.C.

MARSHAL F. FOLSTEIN, Chairman and Professor of Psychiatry,

Tufts University School of Medicine; and

Psychiatrist-in-Chief,

New England Medical Center, Boston, Massachusetts

ROBERT M. GROVES, Director of the Joint Program on Survey Methodology at the

University of Maryland at College Park; and

Professor and Program Director,

Survey Research Center of the University of Michigan at Ann Arbor

ALAN M. JETTE, Professor and Dean,

Sargent College of Health and Rehabilitation Sciences, Boston University

WILLIAM D. KALSBEEK, Professor of Biostatistics and Director,

Survey Research Unit, University of North Carolina at Chapel Hill

JERRY L. MASHAW, Sterling Professor of Law and Management and Professor,

Institute for Social and Policy Studies, Yale University

CATHARINE C. MASLOW, Director,

Initiative on Alzheimer's and Managed Care, Alzheimer's Association, Washington, D.C.

DONALD L. PATRICK, Professor of Health Services,

University of Washington School of Public Health and Community Medicine

HAROLD A. PINCUS, Senior Scientific Consultant,

Robert Wood Johnson Foundation, the John D. & Catherine T. MacArthur Foundation, and the RAND Corporation

JOHN A. SWETS, Chief Scientist,

Information Sciences, BBN Technologies, Cambridge, Massachusetts

EDWARD H. YELIN, Professor of Medicine and Health Policy,

Department of Medicine and Institute for Health Policy Studies, University of California at San Francisco

Study Staff

GOOLOO S. WUNDERLICH, Study Director

KATHLEEN NOLAN, Research Associate

NICOLE AMADO, Senior Project Assistant

Suggested Citation:"Front Matter." Institute of Medicine and National Research Council. 2000. Survey Measurement of Work Disability: Summary of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/9787.
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BOARD ON HEALTH CARE SERVICES INSTITUTE OF MEDICINE

DON E. DETMER (Chair), Professor of Medical Education in

Health Evaluation Sciences, University of Virginia

BARBARA J. McNEIL (Vice Chair), Ridley Watts Professor,

Department of Health Care Policy, Harvard Medical School

LINDA AIKEN, The Claire M. Fagin Leadership Professor of Nursing and Professor of Sociology, and Director of the Center for

Health Outcomes and Policy Research, University of Pennsylvania

STUART H. ALTMAN, Sol C. Chaikin Professor of National Health Policy,

The Florence Heller Graduate School for Social Policy, Brandeis University

HARRIS BERMAN, Chairman and Chief Executive Officer,

Tufts Health Plan, Waltham, Massachusetts

BRIAN BILES, Senior Vice President,

The Commonwealth Fund, New York, New York

CHRISTINE CASSEL, Chairman,

Henry L. Schwarz Department of Geriatrics and Adult Development, Mount Sinai Medical Center, New York, New York

PAUL D. CLAYTON, Medical Informaticist,

Intermountain Health Care, Salt Lake City, Utah

PAUL F. GRINER, Vice President and Director,

Center for the Assessment and Management of Change in Academic Medicine, Association of American Medical Colleges, Washington, D.C.

RUBY P. HEARN, Senior Vice President,

Robert Wood Johnson Foundation, Princeton, New Jersey

PETER BARTON HUTT, Partner,

Covington and Burling, Washington, D.C.

ROBERT L. JOHNSON, Professor of Pediatrics and Clinical Psychiatry and Director of Adolescent and Young Adult Medicine,

University of Medicine and Dentistry of New Jersey, New Jersey Medical School

JACQUELINE KOSECOFF, President and Co-Chief Executive Officer,

Protocare, Santa Monica, California

SHEILA T. LEATHERMAN, Executive Vice President,

Center for Health Care Policy and Evaluation, United Health Care Corporation, Minneapolis, Minnesota

UWE E. REINHARDT, James Madison Professor of Political Economy and Professor of Economics and Public Affairs,

Princeton University

SHOSHANNA SOFAER, Robert P. Luciano Professor of Health Care Policy,

School of Public Affairs, Baruch College

GAIL L. WARDEN, President and Chief Executive Officer,

Henry Ford Health System, Detroit, Michigan

JANET M. CORRIGAN, Director,

Board on Health Care Services, IOM

Suggested Citation:"Front Matter." Institute of Medicine and National Research Council. 2000. Survey Measurement of Work Disability: Summary of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/9787.
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COMMITTEE ON NATIONAL STATISTICS NATIONAL RESEARCH COUNCIL

JOHN E. ROLPH (Chair),

Marshall School of Business, University of Southern California

JOSEPH G. ALTONJI,

Department of Economics, Northwestern University

JULIE DAVANZO,

RAND, Santa Monica, California

WILLIAM F. EDDY,

Department of Statistics, Carnegie Mellon University

WILLIAM D. KALSBEEK,

Survey Research Unit, Department of Biostatistics, University of North Carolina

RODERICK J. A. LITTLE,

School of Public Health, University of Michigan

THOMAS A. LOUIS,

Division of Biostatistics, University of Minnesota

CHARLES F. MANSKI,

Department of Economics, Northwestern University

WILLIAM D. NORDHAUS,

Department of Economics, Yale University

JANET L. NORWOOD,

The Urban Institute, Washington, D.C.

EDWARD B. PERRIN,

Department of Health Services, University of Washington

PAUL R. ROSENBAUM,

Department of Statistics, The Wharton School, University of Pennsylvania

FRANCISCO J. SAMANIEGO,

Division of Statistics, University of California at Davis

RICHARD L. SCHMALENSEE,

Sloan School of Management, Massachusetts Institute of Technology

ANDREW WHITE, Acting Director

Suggested Citation:"Front Matter." Institute of Medicine and National Research Council. 2000. Survey Measurement of Work Disability: Summary of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/9787.
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Acknowledgments

The Committee to Review the Social Security Administration's Disability Decision Process Research (the committee) acknowledges with appreciation the many people who participated in the Workshop on Survey Measurement of Work Disability, including those who prepared papers for presentation, those who served as formal discussants, and the many others who contributed to the lively and informative discussions at the workshop. Support for the study was provided by the Social Security Administration. We particularly wish to thank Scott Muller and Rosanne Hanratty who serve as government project officers for the study. They provided valuable support for the workshop.

We gratefully acknowledge Nancy Mathiowetz of the Joint Program in Survey Methodology, University of Maryland, who served as consultant for planning, organizing, and coediting the summary of the workshop. We acknowledge with gratitude the commitment and support of the committee staff in organizing the workshop and preparing the report. Gooloo Wunderlich, Study Director, and Nancy Mathiowetz not only undertook the major responsibility for the workshop, but also prepared the report. Kathleen Nolan worked closely with the study director and the consultant in organizing the workshop, developing the agenda, and preparing the charts and formatting tables for publication. Rebecca Lucchese, Senior Project Assistant, assisted in the logistical and administrative arrangements of the workshop. Many thanks go to Nicole Amado, Senior Project Assistant for cheerfully and competently reviewing the drafts, and making editorial corrections to the entire report, and preparing it for publication under tight deadlines. The chair thanks the committee members for their time and commitment to the workshop.

Page viii Cite
Suggested Citation:"Front Matter." Institute of Medicine and National Research Council. 2000. Survey Measurement of Work Disability: Summary of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/9787.
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REVIEWERS

The report was reviewed by individuals chosen for their diverse perspectives and technical expertise in accordance with procedures approved by the National Research Council's Report Review Committee. The purpose of this independent review is to provide candid and critical comments to assist the authors and the National Academy of Sciences in making the published report as sound as possible and to ensure that the report meets institutional standards for objectivity, evidence, and responsiveness to the study charge. The content of the review comments and the draft manuscript remain confidential to protect the integrity of the deliberative process.

The committee wishes to thank the following individuals for their participation in the report review process: Edward Brandt, Jr., University of Oklahoma, David Keer, National Institute on Disability and Rehabilitation; Cille Kennedy, National Institute of Mental Health; Mary Grace Kovar, National Opinion Research Center; Janet Norwood, Urban Institute; and Edward Perrin, University of Washington.

While the individuals listed above provided many constructive comments and suggestions, responsibility for the final content of the report rests solely with the authoring committee and the National Academy of Sciences.

Dorothy P. Rice

Chair

Suggested Citation:"Front Matter." Institute of Medicine and National Research Council. 2000. Survey Measurement of Work Disability: Summary of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/9787.
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Suggested Citation:"Front Matter." Institute of Medicine and National Research Council. 2000. Survey Measurement of Work Disability: Summary of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/9787.
×

SURVEY MEASUREMENT OF WORK DISABILITY

Suggested Citation:"Front Matter." Institute of Medicine and National Research Council. 2000. Survey Measurement of Work Disability: Summary of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/9787.
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The Social Security Administration (SSA) is engaged in redesigning its disability determination process for providing cash benefits and medical assistance to blind and disabled persons under the Social Security Disability Insurance (SSDI) program and the Supplemental Security Income (SSI) program (Title II and Title XVI of the Social Security Act). The agency has undertaken a multiyear research effort to develop and test the feasibility, validity, reliability, and practicality of the redesigned disability determination process before making any decision about its national implementation.

Survey Measurement of Work Disability reviews and provides advice on this research. One of the major areas for review is the ongoing independent, scientific review of the scope of work, design, and content of the Disability Evaluation Study (DES) and the conduct of the study by the chosen survey contractor. This report identifies statistical design, methodological, and content concerns and addresses other issues as they arise.

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