. "5 Individuals and Families: Models and Interventions." Health and Behavior: The Interplay of Biological, Behavioral, and Societal Influences. Washington, DC: The National Academies Press, 2001.
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Health and Behavior: The Interplay of Biological, Behavioral, and Societal Influences
TABLE 5–1 Family Focused Intervention Research on Selected Chronic Diseasesa
Diseases of Childhood and Adolescence
Diseases of Adulthood and the Elderly
Cystic fibrosis1
Breast cancer1
Cancer1
Coronary arterial disease1
Insulin-dependent diabetes2
Hypertension1
Congenital heart disease1
Non-insulin-dependent diabetes0
Sickle-cell anemia1
Alzheimer’s disease and other dementia2
Asthma2
Human immunodeficiency virus0
Chronic obstructive pulmonary disease and asthma0
a Superscript numbers refer to amount of correlational and intervention research found in literature: 2=considerable, 1=some, 0=little or none.
Interventions for Children and Adolescents with Chronic Disease
An organizational framework of family-focused interventions is helpful for comparing outcomes across several diseases. Three categories are used here and defined in Table 5–2: psychoeducational interventions to provide information about the disease and methods for its management by multiple family members, modified psychoeducational interventions to strengthen and improve family relationship quality and functioning, and family therapy. These are described below with illustrative examples.
Psychoeducational Interventions
This is the most common type of family-focused intervention. It aims to increase family members’ understanding of the disease and its management and to improve their capacity for management of the disease, including early recognition of the stress-induced changes occasioned by managing disease in the family setting and more effective adaptations that involve asking for help, reconfiguring expectations, reappropriating roles, and so on. Education and behavioral methods predominate. Parents and siblings of ill children are common targets for psychoeducational inter-