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PAPERBACK list:$26.00 Web:$23.40 add to cart Rights & Permissions Free PDF Access Free Resources Sign in to download PDF book and chapters PDF EXECUTIVE SUMMARY Display this book on your site! Related Titles Expanding Access to Research Data: Reconciling Risks and Opportunities Putting People on the Map: Protecting Confidentiality with Linked Social-Spatial Data Other Related Titles Improving Access to and Confidentiality of Research Data: Report of a Workshop (2000) Commission on Behavioral and Social Sciences and Education (CBASSE) Web Search Builder Use this book's key terms to search within this book, across our collection, or across the Web. Skim This Chapter Skim this chapter and use this chapter's key terms to search within this book. Reference Finder Paste in your own text to find books that relate to your topic. Page 58   E-mail  Facebook  Digg  Stumble  Twitter More The following HTML text is provided to enhance online readability. Many aspects of typography translate only awkwardly to HTML. Please use the page image as the authoritative form to ensure accuracy. APPENDIX B Workshop Agenda Thursday, October 14, 1999 8:45 WELCOME AND OPENING REMARKS Barbara Boyle Torrey, Director, Commission on Behavioral and Social Sciences and Education Miron Straf, Director, Committee on National Statistics Richard Suzman, Behavioral and Social Research Program,National Institute on Aging INTRODUCTION AND WORKSHOP PREVIEW Norman Bradburn, Workshop Chair 9:05 SESSION I. Linked longitudinal databases: Achievements to date and prospects TOPIC 1: Case Studies Paper 1: HRS application: “How Policy Variables Influence the Timing of Social Security Disability Applications” Richard Burkhauser, Cornell University Robert Weathers, Cornell University Page 58 Front Matter (R1-R12) 1 Introduction (1-4) 2 The Data Access, Confidentiality Tradeoff (5-17) 3 Ethical and Legal Requirements Associated with Data Dissemination (18-28) 4 Alternative Approaches for Limiting Disclosure Risks and Facilitating Data Access (29-36) 5 Current Agency and Organization Practices (37-50) References and Bibliography (51-52) Appendix A Workshop and Participants (53-57) Appendix B Workshop Agenda (58-62)

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OCR for page 58
Improving Access to and Confidentiality of Research Data: Report of a Workshop APPENDIX B Workshop Agenda Thursday, October 14, 1999 8:45 WELCOME AND OPENING REMARKS Barbara Boyle Torrey, Director, Commission on Behavioral and Social Sciences and Education Miron Straf, Director, Committee on National Statistics Richard Suzman, Behavioral and Social Research Program,National Institute on Aging INTRODUCTION AND WORKSHOP PREVIEW Norman Bradburn, Workshop Chair 9:05 SESSION I. Linked longitudinal databases: Achievements to date and prospects TOPIC 1: Case Studies Paper 1: HRS application: “How Policy Variables Influence the Timing of Social Security Disability Applications” Richard Burkhauser, Cornell University Robert Weathers, Cornell University

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Improving Access to and Confidentiality of Research Data: Report of a Workshop Paper 2: NLS-Y application: “Confidential Data Files Linked to the National Longitudinal Survey of Youth, 1979: A Case Study” Rachel Gordon, University Illinois at Chicago TOPIC 2: Risks and Rewards of Data Linking Presentation: “Protecting Confidentiality of Linked Datasets: Don't Throw the Baby Out with Bathwater” J. Michael Dean, University of Utah TOPIC 3: Report from the Conference on the Value of Linked Data Presentation: Robert Willis, University of Michigan GENERAL DISCUSSION OF PAPERS/PRESENTATIONS 11:10 SESSION II. Legal and ethical requirements for dissemination: Recent and prospective developments TOPIC 1: Philosophical Issues Paper: “Regulating Access to Research Data Files: Ethical Issues” Mary Ann Baily, George Washington University Discussant: Robert Boruch, University of Pennsylvania TOPIC 2: Recent and Prospective New Legislation Paper: Donna Eden, U.S. Department of Health and Human Services Discussant: Robert Gellman, Privacy and Information Policy Consultant TOPIC 3: Problems and Issues of Institutional Review Boards Paper: Thomas Puglisi/Jeffery Cohen, Office for Protection from Research Risks, National Institutes of Health GENERAL DISCUSSION, led by Norman Bradburn  

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Improving Access to and Confidentiality of Research Data: Report of a Workshop 2:00 SESSION III. Procedures for releasing public-use microdata files TOPIC 1: Agency Practices for Releasing Public-Use Micro-Data Files Presentation: “Checklist on Disclosure Potential of Proposed Data Releases,” developed by the Interagency Confidentiality and Data Access Group Alvan Zarate, National Center for Health Statistics Paper: “A Survey of Statistical Disclosure Limitation (SDL) Practices of Organizations that Distribute Public Use Microdata” Thomas Jabine, Private Consultant Alice Robbin, Indiana University Heather Koball, Committee on National Statistics Discussant: Erik Austin, Inter-university Consortium for Political and Social Research Paper: “Multiple Imputation in the Survey of Consumer Finances” Arthur Kennickell, Federal Reserve Board Discussant: Stephen Fienberg, Carnegie Mellon University TOPIC 2: Quantification of Disclosure Risk Paper: Sallie Keller-McNulty, Los Alamos National Laboratory George Duncan, Carnegie Mellon University Discussant: Latanya Sweeney, Carnegie Mellon University 4:30 GENERAL DISCUSSION 5:00 CLOSING COMMENTS AND ADJOURN

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Improving Access to and Confidentiality of Research Data: Report of a Workshop Friday, October 15, 1999 9:00 SESSION IV. Procedures for restricting access: who gets access to micro-data, and under what conditions TOPIC: Use of restricted access procedures for major linked longitudinal databases Paper: “Review of Data Licensing Agreements at U.S. Government Agencies and Research Organizations” Paul Massell, U.S. Census Bureau Discussant: Mark McClellan, Stanford University Presentation: Remote data access at the National Center for Health Statistics John Horm, National Center for Health Statistics Discussant: Finis Welch, Texas A&M University Presentation: Statistics Canada procedures; data liberation and associated Internet background information Garnett Picot, Statistics Canada Presentation: Data licensing systems Marilyn McMillen, National Center for Education Statistics Presentation: Data Centers—A critical assessment Patrick Collins, California Census Research Data Center J. Bradford Jensen, Carnegie Mellon Census Research Data Center 1:30 GENERAL DISCUSSION  

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Improving Access to and Confidentiality of Research Data: Report of a Workshop 2:00 SESSION V. Workshop Summary Review and address questions posed at the opening of the workshop Thomas Louis, Member, Committee on National Statistics Norman Bradburn, Workshop Chair General response Workshop participants 2:45 CLOSING COMMENTS/ADJOURN

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national statistics