National Academies Press: OpenBook

Enhancing Data Systems to Improve the Quality of Cancer Care (2000)

Chapter: Appendix B: Workshop Agenda and Participants

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Suggested Citation:"Appendix B: Workshop Agenda and Participants." Institute of Medicine and National Research Council. 2000. Enhancing Data Systems to Improve the Quality of Cancer Care. Washington, DC: The National Academies Press. doi: 10.17226/9970.
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APPENDIX B

Workshop Agenda and Participants

ENHANCING DATA SYSTEMS TO IMPROVE THE QUALITY OF CANCER CARE

The National Academies

Cecil and Ida Green Building, Room 130

2001 Wisconsin Avenue, N.W.

Washington, D.C.

AGENDA

Monday, October 4

8:00 a.m.–8:30 a.m.

Continental Breakfast

8:30 a.m.–8:45 a.m.

Welcome and Introduction

Joseph Simone

SESSION ONE: OVERVIEW

Evidence-based measures are available to assess cancer care quality, but data systems are not yet in place to give practitioners information on their performance relative to national or regional norms. This presentation will review well-established quality measures, the need for population-based data and monitoring systems, and outstanding health services research questions that remain to be answered with quality-related data.

8:45 a.m.–9:15 a.m.

What Do We Want? Tools for Quality Monitoring and Health Services Research

Tom Smith

SESSION TWO: USING CANCER REGISTRIES TO MONITOR THE QUALITY OF HEALTH CARE

Population-based cancer registries are the foundation of surveillance and cancer control programs. Presentations on how cancer registry data have been

Suggested Citation:"Appendix B: Workshop Agenda and Participants." Institute of Medicine and National Research Council. 2000. Enhancing Data Systems to Improve the Quality of Cancer Care. Washington, DC: The National Academies Press. doi: 10.17226/9970.
×

and potentially might be applied to quality assessment will be followed by a status report on the Centers for Disease Control and Prevention 's National Program of Cancer Registries, the federal effort to bolster the states' cancer surveillance infrastructure. Next, National Cancer Institute staff will describe how the Surveillance, Epidemiology, and End Results (SEER) program has been used to answer important health services research questions. Brief presentations describing of some of the technical, methodological, and legal issues raised in using registry data to monitor healthcare quality will be followed by a discussion that will focus on the merits and limitations of wider applications of quality assessment using cancer registries.

9:15 a.m.–10:00 a.m.

Using State Registry Data to Monitor Healthcare Quality

  • Registry-Based Quality Assessments: A Review

    Bruce Hillner

  • The potential for registry-based quality assessments

    John Ayanian

10:00 a.m.–10:30 a.m.

The Status of State Registries

Dan Miller

10:30 a.m.–11:00 a.m.

Using SEER to Answer Quality-Related Health Services Research Questions

Joan Warren

Arnold Potosky

11:00 a.m.–11:15 a.m.

Coffee Break

11:15 a.m.–12:30 p.m.

Issues Related to Using Registry Data to Monitor Quality of Care

  • The Intersection of Cancer Surveillance and Quality Assessment

    Linda Harlan

    Joseph Lipscomb

  • Data Elements Needed for Quality Assessment

    Jay Piccirillo

  • Privacy Issues

    James Hodge

12:30 p.m.–1:30 p.m.

Lunch Break

1:30 p.m.–2:30 p.m.

Discussion: How Can Registry Data be Used to Monitor Quality?

Tom Tucker

Suggested Citation:"Appendix B: Workshop Agenda and Participants." Institute of Medicine and National Research Council. 2000. Enhancing Data Systems to Improve the Quality of Cancer Care. Washington, DC: The National Academies Press. doi: 10.17226/9970.
×

SESSION THREE: CANCER CARE DATA AND ACCOUNTABILITY

Information about clinical practice can serve as a powerful tool to change physician and patient behavior and to improve the quality of care. Hospital-reported data have been used to assess patterns of care and to monitor compliance to practice guidelines. The National Cancer Data Base (NCDB), maintained by the American College of Surgeons and American Cancer Society holds promise for assessing progress toward quality improvement because it includes information on the care experience of nearly 60 percent of individuals diagnosed with cancer. The National Comprehensive Cancer Network (NCCN) is an effort on the part of large cancer centers to collect quality data and incorporate them into an ongoing quality improvement program. Presenters will review the status of these quality initiatives and discuss resources needed to assure complete coverage of individuals, their treatments, and outcomes.

The discussion will focus on the strengths and weakness of these programs, the feasibility of setting national or regional quality benchmarks, and the resources needed to ensure acceptance and quality improvement at the local level.

2:30 p.m.–3:30 p.m.

Using Hospital-Based Data to Monitor Physicians and Hospitals

  • The National Cancer Data Base

    Monica Morrow

  • The National Comprehensive Cancer Network

    Jane Weeks

3:30 p.m.–4:00 p.m.

Discussion: Implementing Successful Internal Quality Monitoring

J. Gale Katterhagen

4:00 p.m.–4:15 p.m.

Coffee break

Six in 10 new cases of cancer occur among the elderly. Consequently, the Health Care Financing Administration (HCFA) in administering the Medicare Program has many opportunities to improve the quality of cancer care. The State-based Peer Review Organizations, for example, have conducted a number of assessments of cancer care quality.

4:15 p.m.–5:00 p.m.

HCFA's Use of Cancer Care Quality Data

Stephen Jencks

Various professional organizations are involved in accreditation programs to enhance the quality of care. Individuals involved in three such programs will describe them and their inclusion of cancer care measures.

Suggested Citation:"Appendix B: Workshop Agenda and Participants." Institute of Medicine and National Research Council. 2000. Enhancing Data Systems to Improve the Quality of Cancer Care. Washington, DC: The National Academies Press. doi: 10.17226/9970.
×

5:00 p.m.–5:30 p.m.

Accreditation Programs

  • Health Plans: National Committee for Quality Assurance

    Roger Winn

  • Physicians: American Medical Association

    Jeffrey Crane

  • Hospitals: Joint Commission on Accreditation of Healthcare Organizations and American College of Surgeons' Commission on Cancer

    Monica Morrow

Tuesday, October 5

8:00 a.m.–8:30 a.m.

Continental Breakfast

8:30 a.m.–9:00 a.m.

Summary of Day One

Vivien Chen

Tom Smith

SESSION FOUR: DATA FOR HEALTH SERVICES RESEARCH

9:00 a.m.–10:00 a.m.

The National Center for Health Statistics, the Agency for Health Care Policy and Research, and the American Cancer Society are among the sponsors of large population-based surveys, providing a wealth of opportunities for health service researchers. Presenters will provide brief overviews of research using these resources and will discuss their strengths and weaknesses for cancer research. Next, the purpose, scope, and methods of two large cancer survivorship surveys being launched by the American Cancer Society will be described. Lastly, we will hear about NCI's HMO Cancer Research Network, an effort to facilitate collaborative research among managed care organizations. The discussion will focus on resource needs for health services research.

  • National Center for Health Statistics, National Hospital Discharge Survey

    Phyllis Wingo

  • Agency for Health Care Policy and Research, Healthcare Cost and Utilization Project

    David Morris

  • American Cancer Society, Cancer Survivorship Surveys

    Frank Baker

Suggested Citation:"Appendix B: Workshop Agenda and Participants." Institute of Medicine and National Research Council. 2000. Enhancing Data Systems to Improve the Quality of Cancer Care. Washington, DC: The National Academies Press. doi: 10.17226/9970.
×
  • National Cancer Institute, HMO Cancer Research Network

    Martin Brown

10:00 a.m.–10:30 a.m.

Discussion: Resource Needs for Health Services Research

Tom Smith

SESSION FIVE: CANCER CARE DATA NEEDS

10:30 a.m.–12:30 p.m.

Discussion with NCPB

Joseph Simone

  • How can we better use what we already have?

  • How can we improve available systems to expand quality monitoring efforts and improve the timeliness of analyses?

  • What new data initiatives are needed (e.g., linkages, special studies, new collection systems)?

  • What organizational, technical, and financial resources are needed?

PARTICIPANTS

John Ayanian, M.D., M.P.P.

Assistant Professor

Harvard Medical School

Departments of Medicine and Health Care Policy

Frank Baker, Ph.D.

Vice President for Behavioral Research

American Cancer Society

Rachel Ballard-Barbash, M.D., M.P.H.

Chief, Applied Research Program

Division of Cancer Control and Population Sciences

National Cancer Institute

Martin Brown, Ph.D.

Chief, Health Services and Economics Branch

Applied Research Program

Division of Cancer Control and Population Sciences

National Cancer Institute

Jeffrey Crane, M.D.

Staff physician

Raleigh Hematology Oncology Clinic

Linda Harlan, Ph.D.

Epidemiologist

Applied Research Program

Division of Cancer Control and Population Sciences

National Cancer Institute

Suggested Citation:"Appendix B: Workshop Agenda and Participants." Institute of Medicine and National Research Council. 2000. Enhancing Data Systems to Improve the Quality of Cancer Care. Washington, DC: The National Academies Press. doi: 10.17226/9970.
×

Bruce Hillner, M.D.

Professor of Medicine

Medical College of Virginia

Virginia Commonwealth University

James G. Hodge, Jr., J.D., LL.M.

Greenwall Fellow

Georgetown University Law Center

Stephen F. Jencks, M.D., M.P.H.

Senior Clinical Advisor

Health Standards and Quality Bureau

Health Care Financing Administration

J. Gale Katterhagen, M.D.

Medical Director for the Cancer Program and Breast Center

Mills-Peninsula Health Services

Medical Director for Quality

Sutter Health

Joe Lipscomb, Ph.D.

Chief, Outcomes Research Branch

Applied Research Program

Division of Cancer Control and Population Sciences

National Cancer Institute

Daniel Miller, M.D., M.P.H.

Chief, Cancer Surveillance Branch

National Center for Chronic Disease Prevention and Health Promotion

Division of Cancer Prevention and Control

Centers for Disease Control and Prevention

David Morris, M.D.

Clinical Instructor

Department of Radiation Oncology University of North Carolina

Monica Morrow, M.D.

Professor of Surgery

Northwestern University Medical School

Jay F. Piccirillo, M.D., F.A.C.S.

Associate Professor and Director

Clinical Outcomes Research Office

Department of Otolaryngology-Head and Neck Surgery

Washington University School of Medicine

Arnold Potosky, Ph.D.

Operations Research Analyst

Health Services and Economics Branch Applied Research Program

Division of Cancer Control and Population Sciences

National Cancer Institute

Tom Smith, M.D., F.A.C.P.

Associate Professor of Medicine and Health Administration

Medical College of Virginia

Virginia Commonwealth University

Tom Tucker, M.P.H.

Associate Professor

Department of Health Services

College of Allied Health Professions and Department of Preventive Medicine and Environmental Health

College of Medicine

University of Kentucky

Jane Weeks, M.D., M.Sc.

Associate Professor of Medicine

Harvard Medical School

Associate Professor

Health Policy and Management

Harvard School of Public Health

Suggested Citation:"Appendix B: Workshop Agenda and Participants." Institute of Medicine and National Research Council. 2000. Enhancing Data Systems to Improve the Quality of Cancer Care. Washington, DC: The National Academies Press. doi: 10.17226/9970.
×

Joan Warren, Ph.D.

Epidemiologist

Health Services and Economics Branch

Applied Research Program

Division of Cancer Control and Population Sciences

National Cancer Institute

Phyllis Wingo, Ph.D., M.S.

Director of Surveillance

Department of Epidemiology and Surveillance

American Cancer Society

Roger Winn M.D.

Chief, Section of Community Oncology

Department of Internal Medical Specialties

Division of Medicine

U.T.M.D. Anderson Cancer Center

Suggested Citation:"Appendix B: Workshop Agenda and Participants." Institute of Medicine and National Research Council. 2000. Enhancing Data Systems to Improve the Quality of Cancer Care. Washington, DC: The National Academies Press. doi: 10.17226/9970.
×
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Suggested Citation:"Appendix B: Workshop Agenda and Participants." Institute of Medicine and National Research Council. 2000. Enhancing Data Systems to Improve the Quality of Cancer Care. Washington, DC: The National Academies Press. doi: 10.17226/9970.
×
Page 123
Suggested Citation:"Appendix B: Workshop Agenda and Participants." Institute of Medicine and National Research Council. 2000. Enhancing Data Systems to Improve the Quality of Cancer Care. Washington, DC: The National Academies Press. doi: 10.17226/9970.
×
Page 124
Suggested Citation:"Appendix B: Workshop Agenda and Participants." Institute of Medicine and National Research Council. 2000. Enhancing Data Systems to Improve the Quality of Cancer Care. Washington, DC: The National Academies Press. doi: 10.17226/9970.
×
Page 125
Suggested Citation:"Appendix B: Workshop Agenda and Participants." Institute of Medicine and National Research Council. 2000. Enhancing Data Systems to Improve the Quality of Cancer Care. Washington, DC: The National Academies Press. doi: 10.17226/9970.
×
Page 126
Suggested Citation:"Appendix B: Workshop Agenda and Participants." Institute of Medicine and National Research Council. 2000. Enhancing Data Systems to Improve the Quality of Cancer Care. Washington, DC: The National Academies Press. doi: 10.17226/9970.
×
Page 127
Suggested Citation:"Appendix B: Workshop Agenda and Participants." Institute of Medicine and National Research Council. 2000. Enhancing Data Systems to Improve the Quality of Cancer Care. Washington, DC: The National Academies Press. doi: 10.17226/9970.
×
Page 128
Suggested Citation:"Appendix B: Workshop Agenda and Participants." Institute of Medicine and National Research Council. 2000. Enhancing Data Systems to Improve the Quality of Cancer Care. Washington, DC: The National Academies Press. doi: 10.17226/9970.
×
Page 129
Suggested Citation:"Appendix B: Workshop Agenda and Participants." Institute of Medicine and National Research Council. 2000. Enhancing Data Systems to Improve the Quality of Cancer Care. Washington, DC: The National Academies Press. doi: 10.17226/9970.
×
Page 130
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One of the barriers to improving the quality of cancer care in the United States is the inadequacy of data systems. Out-of-date or incomplete information about the performance of doctors, hospitals, health plans, and public agencies makes it hard to gauge the quality of care. Augmenting today's data systems could start to fill the gap.

This report examines the strengths and weaknesses of current systems and makes recommendations for enhancing data systems to improve the quality of cancer care. The board's recommendations fall into three key areas:

  • Enhance key elements of the data system infrastructure (i.e., quality-of-care measures, cancer registries and databases, data collection technologies, and analytic capacity).
  • Expand support for analyses of quality of cancer care using existing data systems.
  • Monitor the effectiveness of data systems to promote quality improvement within health systems.
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