National Academies Press: OpenBook

Enhancing Data Systems to Improve the Quality of Cancer Care (2000)

Chapter: Appendix E: Reporting Requirements, NPCR, NCDB, SEER

« Previous: Appendix D: Information on Cancer Registries, by State
Suggested Citation:"Appendix E: Reporting Requirements, NPCR, NCDB, SEER." Institute of Medicine and National Research Council. 2000. Enhancing Data Systems to Improve the Quality of Cancer Care. Washington, DC: The National Academies Press. doi: 10.17226/9970.
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APPENDIX E Reporting Requirements, NPCR, NCDB, SEER,

SOURCE: Commission on Cancer, 1996. Standards of the Commission on Cancer, Volume II: Registry Operations and Data Standards. Chicago: Commission on Cancer. Reprinted with permission.

Suggested Citation:"Appendix E: Reporting Requirements, NPCR, NCDB, SEER." Institute of Medicine and National Research Council. 2000. Enhancing Data Systems to Improve the Quality of Cancer Care. Washington, DC: The National Academies Press. doi: 10.17226/9970.
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Section Three: Comparison of Data Sets

DEFINITIONS

Required Data Set (R)

Commission-approved programs must record the required data set items using the codes and definitions specified in the ROADS.

Supplementary Data Set (S)

The supplementary data set contains additional data items that are important for the efficient operation of a cancer registry. The Commission recommends that the supplementary data set be collected.

Optional Data Set (O)

The optional data set includes items that may be of interest to specific institutions or groups.

Surveillance, Epidemiology, and End Results Program (SEER)

Required data elements for a central registry affiliated with the National Cancer Institute's SEER Program.

National Program of Cancer Registries (NPCR)

Required and recommended data elements for state cancer registries participating in the National Program of Cancer Registries of the Centers for Disease Control & Prevention.

COMPARISON OF DATA SETS

An (x) indicates that the item is part of the data set.

* At the time of publication, it is unknown if the organization will collect this data item.

Suggested Citation:"Appendix E: Reporting Requirements, NPCR, NCDB, SEER." Institute of Medicine and National Research Council. 2000. Enhancing Data Systems to Improve the Quality of Cancer Care. Washington, DC: The National Academies Press. doi: 10.17226/9970.
×

Section Three: Comparison of Data Sets

Suggested Citation:"Appendix E: Reporting Requirements, NPCR, NCDB, SEER." Institute of Medicine and National Research Council. 2000. Enhancing Data Systems to Improve the Quality of Cancer Care. Washington, DC: The National Academies Press. doi: 10.17226/9970.
×

Section Three: Comparison of Data Sets

Suggested Citation:"Appendix E: Reporting Requirements, NPCR, NCDB, SEER." Institute of Medicine and National Research Council. 2000. Enhancing Data Systems to Improve the Quality of Cancer Care. Washington, DC: The National Academies Press. doi: 10.17226/9970.
×

Section Three: Comparison of Data Sets

Suggested Citation:"Appendix E: Reporting Requirements, NPCR, NCDB, SEER." Institute of Medicine and National Research Council. 2000. Enhancing Data Systems to Improve the Quality of Cancer Care. Washington, DC: The National Academies Press. doi: 10.17226/9970.
×

Section Three: Comparison of Data Sets

Suggested Citation:"Appendix E: Reporting Requirements, NPCR, NCDB, SEER." Institute of Medicine and National Research Council. 2000. Enhancing Data Systems to Improve the Quality of Cancer Care. Washington, DC: The National Academies Press. doi: 10.17226/9970.
×

Section Three: Comparison of Data Sets

Suggested Citation:"Appendix E: Reporting Requirements, NPCR, NCDB, SEER." Institute of Medicine and National Research Council. 2000. Enhancing Data Systems to Improve the Quality of Cancer Care. Washington, DC: The National Academies Press. doi: 10.17226/9970.
×
Page 148
Suggested Citation:"Appendix E: Reporting Requirements, NPCR, NCDB, SEER." Institute of Medicine and National Research Council. 2000. Enhancing Data Systems to Improve the Quality of Cancer Care. Washington, DC: The National Academies Press. doi: 10.17226/9970.
×
Page 149
Suggested Citation:"Appendix E: Reporting Requirements, NPCR, NCDB, SEER." Institute of Medicine and National Research Council. 2000. Enhancing Data Systems to Improve the Quality of Cancer Care. Washington, DC: The National Academies Press. doi: 10.17226/9970.
×
Page 150
Suggested Citation:"Appendix E: Reporting Requirements, NPCR, NCDB, SEER." Institute of Medicine and National Research Council. 2000. Enhancing Data Systems to Improve the Quality of Cancer Care. Washington, DC: The National Academies Press. doi: 10.17226/9970.
×
Page 151
Suggested Citation:"Appendix E: Reporting Requirements, NPCR, NCDB, SEER." Institute of Medicine and National Research Council. 2000. Enhancing Data Systems to Improve the Quality of Cancer Care. Washington, DC: The National Academies Press. doi: 10.17226/9970.
×
Page 152
Suggested Citation:"Appendix E: Reporting Requirements, NPCR, NCDB, SEER." Institute of Medicine and National Research Council. 2000. Enhancing Data Systems to Improve the Quality of Cancer Care. Washington, DC: The National Academies Press. doi: 10.17226/9970.
×
Page 153
Suggested Citation:"Appendix E: Reporting Requirements, NPCR, NCDB, SEER." Institute of Medicine and National Research Council. 2000. Enhancing Data Systems to Improve the Quality of Cancer Care. Washington, DC: The National Academies Press. doi: 10.17226/9970.
×
Page 154
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One of the barriers to improving the quality of cancer care in the United States is the inadequacy of data systems. Out-of-date or incomplete information about the performance of doctors, hospitals, health plans, and public agencies makes it hard to gauge the quality of care. Augmenting today's data systems could start to fill the gap.

This report examines the strengths and weaknesses of current systems and makes recommendations for enhancing data systems to improve the quality of cancer care. The board's recommendations fall into three key areas:

  • Enhance key elements of the data system infrastructure (i.e., quality-of-care measures, cancer registries and databases, data collection technologies, and analytic capacity).
  • Expand support for analyses of quality of cancer care using existing data systems.
  • Monitor the effectiveness of data systems to promote quality improvement within health systems.
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